magicpez

Latest Activity

1. Recessive Epidermolysis Bullosa -I need advice

   magicpez replied to NurseLisa64's topic in General Nursing

   I should add too I stumbled upon this thread via Google Alerts for EB. I am not a nurse. I am involved with many EB Patients online and have worked with a few in person. I will be living with a severe RDEB patient in about a month too. I thank you to...

2. Recessive Epidermolysis Bullosa -I need advice

   magicpez replied to NurseLisa64's topic in General Nursing

   You are going to be dealing with what most doctors who have even seen this disorder call the most horrible thing they have experienced. The fact that it never gets better is going to be rough. Stick with it. You are needed so much. You are going to c...

3. Recessive Epidermolysis Bullosa -I need advice

   magicpez replied to NurseLisa64's topic in General Nursing

   You're doing a great thing. Feel free to ask this same question at Epidermolysis Bullosa Friends where you will receive answers from people dealing specifically with EB.