Wasting time for what is right (long post,sorry)

Nurses General Nursing

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I am sorry up front if this gets long.

Quick history here. I am an RN as well as a patient of a GI doc. Well, he has been treating me for almost 3 yrs and I am worse now than I was when I started "treatment". I have Ulcerative Colitis, bad but not life threatning (yet). So, after some complications from my last round of meds I developed an actual life threatning complication (pancreatitis w/ some strange liver involvement and splenomegaly).So, I had been c/o severe abdominal pain for over aweek, and this guy just wanted to put me on steroids. Thank g-d I didn't (can you imagine trying to mask the pain of pancreatitis...!?!) Anyhow, if he had LISTENED to my symptoms in th first place it would have spare me 2 ER visits and a helluva medical bill(s). By the way he just never saw me in his office or ran any labs (which in retrospect I should have demanded) for more than one year.

I am NOT suing or anything, I just had it w/ him and am going for a second opinion. I asked for a copy or fax of my comnplete file. The office faxed me a release blah, blah...They then faxed me practically NADA. A couple of labs from 3 yrs ago, no progress notes, no records of any treatment, history or medications. I call back and the office manager says "We don't release progress notes, those belong to the doctor." Well, I just said that doesn't sound right to me and I'd call back. O.K, I did my homework. I am in California where according to the Cal Medial Board, I have a LEGAL right to have a copy of my complete record within 15 days of asking in writing(the consent does this). If they don't comply, the board will make them give them over. I even sent a fax offering to pay for copy fees.

What should I do next? I don't want to lose my cool, but I want my copy so I can get on with it. What do you think?

So sorry this was so long!!!

Sharann, everyone has said it much better than I could, but know that we care!! Sorry you are having such a rough time:o hope you find a great and caring doc that cares! :)

Hope you are doing at least a little better today, keep us updated.

WOW...hope you are feeling better soon; docs can really be a piece of work sometimes.

Shay: Most excellent advice!

Specializes in Community Health Nurse.
Originally posted by sharann

I am sorry up front if this gets long.

Quick history here. I am an RN as well as a patient of a GI doc. Well, he has been treating me for almost 3 yrs and I am worse now than I was when I started "treatment". I have Ulcerative Colitis, bad but not life threatning (yet). So, after some complications from my last round of meds I developed an actual life threatning complication (pancreatitis w/ some strange liver involvement and splenomegaly).So, I had been c/o severe abdominal pain for over aweek, and this guy just wanted to put me on steroids. Thank g-d I didn't (can you imagine trying to mask the pain of pancreatitis...!?!) Anyhow, if he had LISTENED to my symptoms in th first place it would have spare me 2 ER visits and a helluva medical bill(s). By the way he just never saw me in his office or ran any labs (which in retrospect I should have demanded) for more than one year.

I am NOT suing or anything, I just had it w/ him and am going for a second opinion. I asked for a copy or fax of my comnplete file. The office faxed me a release blah, blah...They then faxed me practically NADA. A couple of labs from 3 yrs ago, no progress notes, no records of any treatment, history or medications. I call back and the office manager says "We don't release progress notes, those belong to the doctor." Well, I just said that doesn't sound right to me and I'd call back. O.K, I did my homework. I am in California where according to the Cal Medial Board, I have a LEGAL right to have a copy of my complete record within 15 days of asking in writing(the consent does this). If they don't comply, the board will make them give them over. I even sent a fax offering to pay for copy fees.

What should I do next? I don't want to lose my cool, but I want my copy so I can get on with it. What do you think?

So sorry this was so long!!!

What you should do??? Stop being so damn nice, and get yourself a lawyer to fight your battle for you. Sue the man, and don't blink when you go cash that check! Your lawyer sure won't. :chuckle I'm sooooooo sick and tired of docs getting away with stuff like this with patients. As a nurse, if for nothing more than the principal of the entire situation...make an example out of that doctor so practices such as this can STOP! If that doctor and his staff treat you this way, just imagine how many others are being treated the same way...or worse. :eek:

Well, dang....thanks for the compliments, y'all!! I'm 1/2 b!tch, you know....;)

Sharann, honey, I hope you're doing better. Do keep us posted.

UPDATE:

I GOT MY FILE!!!!!

I sent a copy of the California Medical Boards law to them along with a not that asked when I should pick up my chart. Well, today they called me and asked where they should fax me my chart!

Whew. Glad THAT battle is over. Now, hopefully I can get a good second opinion at the end of the month, and maybe start feeling half human again.

By the way, the guy wrote all kinds of bogus stuff in my chart, like "pt refuses this med...". Liar. He never even offered that med.

Thank you all for the good cheer. If anyone else here also has Ulcerative Colitis, please let me know what has helped you. I have wondered if it will just stay like this forever, or keep getting worse as it has over the last couple years.

Have you tried Cortifoam? Seems it relieves symptoms with minimal side effects. What med were you on when developed the scary complication of pancreatitis?

Specializes in LTC, ER, ICU,.

i just wanted you to know, you are in my thoughts and prayers.

Thanks Disher and thanks Stephany.

I was on Asacol a med in the 5ASA class (aminosalyciclic acis)

It's related to Rowasa, Pentasa . Generic=mesalamine.

Hope that you are feeling better, and wish you the best of luck in you endevor to get your records. Be strong and unrelenting until you get what you want.

Yes I am familiar with Asacol (a family member used it before starting on Cortifoam) very unfortunate that you had pancreatitis and elevated liver enzymes, since this is a rare adverse event I hope Procter & Gamble was notified.

If you are looking for a non perscription idea to sooth and re-establish normal flora in the bowel you might want to talk to your GI about Bio-K plus (fermented milk with acidophilus) it is available at health food stores. Warning if you have lactose intolerance Bio-K might aggravate instead of help.

Originally posted by sharann

UPDATE:

I GOT MY FILE!!!!!

I sent a copy of the California Medical Boards law to them along with a not that asked when I should pick up my chart. Well, today they called me and asked where they should fax me my chart!

Whew. Glad THAT battle is over. Now, hopefully I can get a good second opinion at the end of the month, and maybe start feeling half human again.

By the way, the guy wrote all kinds of bogus stuff in my chart, like "pt refuses this med...". Liar. He never even offered that med.

Thank you all for the good cheer. If anyone else here also has Ulcerative Colitis, please let me know what has helped you. I have wondered if it will just stay like this forever, or keep getting worse as it has over the last couple years.

This Dr actually LIED in your chart!?!? :eek: We learned in nursing school that this is the most unforgivable sin of all. How do people get away with this stuff? :confused:

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