I just started Rebif on Monday. Not having pain with injections, but that's because I've lost all sensation in my lower extremities. I also take Naproxen about 20 minutes before my injections. I take it right before bed so hopefully will sleep through the worse of the side effects. Muscle aches, mostly. Tonight I'm noticing some insomnia.......
This is my third "miracle MS drug". I've tried Copaxone (had to stop due to shortness of breath, chest pains), and several years on Betaseron. Went from independant ambulation, (working full time, 50 to 60 hours a week, salaried) to cane,(job loss), then walker, now 100% wheelchair use (motorized, because of increased weakness in upper extremities).
I just received the approval from the insurance company for a trial of 6 plasmapheresis treatments. I'm really hoping this just might slow things down a bit for me. I have a new granddaughter due in a couple months and I really want to hold her.
Please don't let this scare you. The percentage of people with MS ending up in wheelchairs is much smaller than most people think. I was unfortunate enough to develop a pretty progressive version of this beast. I was diagnosed 4 years ago. I'm really doing okay. I learned to say "no" and to slow down, readjust how I go about things and to accept help from others. That was the worse for me. I took care of people and things I just hate/hated having to ask for help .....
The thing that bothered me the most was when a home health nurse who came to start an IV for steroids told me "you may have been a nurse, but now you are just a patient and a Neuro patient at that." My doc wanted her to just start the IV and I would hang my own steroids, she didn't believe that a "neuro patient" should be trusted with any type of drug administration on their own. My brain in still working, it's my legs that don't work.
Anyway, thanks for listening. You'll do fine with the Rebif. Have you been in touch with MS Lifelines? They can answer questions for you and help deal with side effects. You can also get a travel kit from them. It's a little carrying case with an ice pack (to keep the drug cold) and a sharps container. It holds a weeks worth of meds so you can travel with it.
You can pm me if there is anything I can help you with. Take care:zzzzz Time for some sleep.