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fringe.nurse fringe.nurse (New Member) New Member

Dysautonomia... POTS and IST

Disabilities   (848 Views 6 Comments)
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I am interested in hearing the experiences of other nurses who have a form of dysautonomia whether it be postural tachycardia syndrome or inappropriate sinus tachycardia. Also interested in hearing about experiences with patients or people in your life who struggle with this disability. I am a 26 y/o male and a floor nurse in a LTC/Rehab facility. On any given day at work i'd say my average HR is 115-130 and BP sometimes on the lower end of normal 110/60. I take metoprolol ER and avoid caffeine at work but sometimes I am unable to tolerate work and fear I will pass out a work. The other day a resident vagaled out on the toilet, it was a heavier resident and two of us assisted them back to bed and elevated their legs. Afterwards my HR was rapid, I was SOB, feeling disoriented, everything was starting to go gray so I left the room immediately and sat down at the nurses station. I am concerned about how this might affect my practice, luckily I was not responsible for this resident and by the time I left another nurse was present. I am on my feet most of the shift and have good and bad days. I am doing everything I can to do my job and am always successful in completing med pass, treatments, charting etc. This is my first nursing job and I just feel like it is a matter of time before it starts to impact my job performance if I have a bad day or am forced to over exert myself. Do you disclose to employer incase anything does happen? I also have an anxiety disorder so I am reluctant to come out about my disability because it took so long to be believed or to get a diagnoses because of my hx of anxiety. If you suffer with this or know of someone who does i'm very interested in hearing your experience, what works for you, and feedback.

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Yes, I  too would like to know of other people's experiences. I am currently battling with POTS and just don't know what to do.

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I can't speak to this issue personally but my hubby has POTS.  He's ridiculously tall and it really does a number on him. I feel like the extra height makes his syncope that much worse.  

I'm curious, why metoprolol? 

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Metoprolol is what my cardiologist recommended but I am switching to propranolol because I have read POTS patients have better success with it. I am also tall. biski19 I understand it can be very defeating to have to deal with this and to be seemingly healthy it is easy to be written off by providers as not a serious issue since it is not life threatening. The disability that comes with POTS is said to be comparable to living with CHF or COPD. I recently suggested to my primary to have my aldosterone levels tested along with serum and urine electrolytes. My aldosterone levels were undetectable and my random serum sodium was very high at like 230 mmol/L which was written off as time of day and possibly diet but i'm gonna follow up with an endocrinologist. I was wondering if it could be an issue with regulating water and electrolytes. It sucks to be hopeful for something to be wrong but often dealing with a vague misunderstood diagnosis having answers can be relieving.

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