My name is Miriam Wagner Long and I work with The NephCure Foundation whose mission is to finding the cause and cure for Nephrotic Syndrome and Focal Segmental Glumerosclerosis (FSGS).
Part of our awareness efforts encompasses educating patients and their families. Patients and families that are dealing with Nephrotic Syndrome and FSGS are invited to ask questions of researchers and healthcare professionals, hear about the latest information on research advances and treatments, and meet others to share support and create local support groups.
The FREE seminar will be held on Saturday May 14, 2005 at the Homewood Suites Hotel in Washington, DC from 10 am to 12 pm. I would like to extend an invitation to you and ask you to encourage the appropriate families to join NephCure. Please find the invitation flier attached to this email. Also, I would like to know if you are interested in speaking to attendees to share your wisdom and expertise?
Please contact me at mlong@NephCure.org
or call our toll-free number 1-866 NephCure ext. 10.