Quote from Dialyzin' Dar
I've been on hemo for over 8 years... I've seen many patients pass, a few of them in the treatment room with me. I was young when I started hemo (23), and it was really hard going to dialysis because everyone was so sickly. I don't know how some of them can keep going, when it seems that no matter what they do, things just keep getting worse and what little physical abilities they still have are being taken away from them bit by bit. I sometimes feel guilty for my relative good health when I look at my fellow patients-- I can leave the unit after dialysis and go home like nothing happened, but most of the other patients are exhausted after treatment and never really get to recuperate before it's time to come to dialysis again.
For the large weight-gainers, the feeling is, "I don't have too much longer to live, anyway-- why shouldn't I eat and drink what I want during the holidays, because this might be my last year on this Earth!" I understand that it's frustrating to get the weight off of a patient only to see it go right back on over the weekend, but they're not doing it just to tick you off-- they do it because they feel it's a hopeless situation. A lot of patients I've talked to at my unit are fatalistic and fully expect that their health will get worse-- unless you can change that mindset, I don't think you'll ever win the fluid/diet/treatment battle.
Hello Dar !
I thank you for your input... it is sooooooo important to have input from "the other side".
And you know what? I DO agree with you ! Points well taken.
Oh, we fuss at our dear patients, but never angrily or mean. They KNOW it is our JOB (and our HEART).. that wants to keep them well... for as long as possible. I have greatest respect for our patients, because I KNOW the sacrifices they must make in order to maintain what health they have.. and as you say, some do not have much health at all.
And yet... even our "noncompliant" patients do agree... when they do follow the fluid recommendations as well as the potasium/phosphorus issues... they truly DO begin to feel BETTER ! And if they can at least feel BETTER for what time they have, it is worth SO MUCH ! To themselves, AND to us ! Because we like to see them feeling "well".. and therefore happier.
You are so correct in the "fatalistic thinking"... I can understand that fully... with my head AND my heart.
And still... we have patients who have been on dialysis going on twenty years.. some working, and vacationing... these are the ones who do tend to be more careful with the regimen. Much depends, of course, on co-morbidities.
Again, I do thank you for your insight.. what a pleasant surprise ! :kiss