I took care of a member of a very wealthy, well known family for 13 yrs. I did travel with them several times. They always got a large hotel suite and I had my own room. They put my patient in a large central area and hired a night nurse so I could sleep. I accompanied them during the day to all their activities and was paid for it. After 40 hours, it was overtime. Many of the events had famous people there and one was even televised daily. I felt like I was Robin Leech looking on in the "Lifestyles of the Rich and Famous." They also had a limo rented w/ driver at their disposal all day, so I also was given some time off on my own since my brother lived in the town we were in, so I could walk out of the hotel and the limo would take me wherever I wanted to go. It was the experience of a lifetime!
So I say, travel when you can and enjoy. It will be especially gratifying if you know that this child can't go otherwise and the disabled so rarely are able to go to social events/activities because of agency or funding restraints.