Weaning off NG Tube - Help!

He needs a consult with a speech therapist or an occupational therapist experienced in treating infants with feeding disorders.
The trach in and of itself would not cause the difficulties you describe. Many medically fragile infants become averse to oral feedings for a variety of reasons:

1. If he was a preemie, he may never have had the chance to develop his suck/swallow/breathing coordination, as term babies learn this by practicing in utero. Therefore he may lack the coordination necessary to feed without choking and gagging himself.

2. If he required mechanical ventilation and/or frequent oral/nasal suctioning early in life, he may have learned to associate oral stimulation with painful or unpleasant sensations. Ditto the ng tube.

3. His heart defect may have caused him to become exhausted by the effort of oral feedings, another unpleasant association. If his heart defect is still uncorrected, full oral feedings may be unrealistic for him.

A good, experienced therapist can make suggestions on how to overcome some of these obstacles.

If reflux continues to be a problem despite the new medication, then he may need a surgical evaluation for a possible gastric tube placement and fundoplication. The poor guy can't be expected to tolerate pain every time he eats! It sounds like the gi doc might be on the right track, but someone needs to nudge him onto action on behalf of this poor baby!

Good luck to you and your little patient. Let us know how he's doing.

I don't remember the last time I encountered a kid who didn't or doesn't have a feeding problem. I have 14 kids aged 3 mo to 18 yrs on my caseload, 9 with trachs, all but 1 with a feeding tube.

I have not seen lack of coordination in suck/swallow/breathe be a problem in trached kids (they don't have to coordinate it).

I agree this little guy needs some major major involvement with a SLP...believe it or not babies forget how to eat. Getting them to be able to involves a lot of oral desensitizing and stimulation exercises. Gagging/retching/vomiting pretty common when initiating oral feedings, unfortunately the negative experience of it can quickly lead to a serious oral adversion when that happens to a kid it will starve its self before it will willingly take anything by mouth. A good oral stim program, followed religiously can make rapid progress toward oral feeding in a young baby.

If you can't get a referral to a SLP send me a PM and I will email you the exercises/techniques we are using (all the SLPs working with our kids are following the same basic programs). If there is one in your area I would also recommend a referal to a Shriners (clients can self refer). If your kido is involved with a "Major Medical Center" because of his heart defect I would also suggest a referal to the feeding clinic AND a developemental Pediatritian.

What operating system are you using ? (Windows 95? 98? Mac?)

Will be easiest for me to scan them in and email them as an attachment...need to know your OS so I know which computer to use.

-nancy

Great.

I will raid the stuff from the office tomorrow and scan it. The referal process may take a bit so you guys can get a head start on some of it.

This reply is off- topic - but I did not get any replies from my post. I am looking for anything related to Peds homecare - such as clinical outcomes, policies, etc.
Any help would be appreicated.

Hi there,
Just wondering if those stimulation exercises you mentioned are still available as trying to wean a 7month old off an NG tube at he moment without much success. Thanks!

Hi, I was also wondering if those oral stimulation exercises are available, as would like to move a 11month old with no dx yet but who has been on an NG since 3 months onto more solids. Would really appreciate your help!