If anyone has any good links or information on this disease would you drop a line? A girlfriend's little boy, who as you can imagine, has had serious problems all his little life was recently diagnosed with this disease. I've done the google thing and was wondering if there is any inside info I'm missing. Thanks, Jules
Jan 12, '07
Thank you, Siri, for your quick reply and kind thoughts. Jules
Jan 21, '07
go to ecommunities then "parents helping parents"