Re: I feel stupid! Someone plz answer my peds GI question
I think your question was quite clear, but I guess you weren't able to read between the lines. The biggest thing is how much of their bowel is left. The more the better. And as children grow, their parts grow, so it is possible to live without a G-tube eventually. But there are thousands of children living "normal" lives who are fed by G-tube. TPN isn't a great choice for long term, so if they can be moved away from it that's best. It's really hard on the liver in the long term and a condition called TPN cholestasis (their bile doesn't flow out of the liver and causes scarring that leads to cirrhosis) can develop. That leads to a need for a multi-visceral transplant - liver and small bowel, but they usually will transplant the whole GI tract en bloc... fewer complications and better outcomes. Our hospital does multi-visceral transplants for kids, but they're pretty rare.
The ability to swallow food isn't something we're born with, exactly. Babies will suck and swallow right after birth, but if they don't have that chance, they will lose the ability to feed orally fairly quickly. It's possible to get that back later but it's a lot of work and isn't always a success. There are windows of opportunity as a baby develops where they learn the oro-motor skills to move food from the front of the mouth to the back and then swallow it. Watch a baby eating cereal for the first dozen times and you'll see a LOT of that cereal being pushed back out of the mouth, not so much because of the taste but because of something called tongue-thrust, which is a component of sucking. Older children who have never fed orally will have this same reflex, which will have to be overcome to get them taking food by mouth. Not impossible, just a lot of work... as long as their swallowing is normal so they aren't at risk for aspiration. Feeding orally should not be made into an unpleasant experience to be endured; so much of our pleasure in life is related to food, so we have to prevent aversion from developing. Children who are cognitively age-appropriate but require tubefeeds should be included at the table during meals for the social aspect.
If you're asking for percentages on how many short-bowel children eventually obtain all their nutrition from oral feeds, I can't give you that. There are just too many variables.
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