I've Been taking care of a cognitively normal (or above normal) medically fragile child for about 2+ years, since she was an infant. She has had SO many surgeries and issues during her first years..yet this kid is really tough!...Almost always silly, pleasant, curious with the world around her..no matter what. Before she hit 1.5-2 years she figured out how most of her equipment works by herself...down to connecting the end of the tf bag into the GT extension, opening the clamp and pressing start on the pump to make it work, for instance.
Its actually incredibly inspiring how much some of these children deal with SO much yet cope and move on, and dont even know it!...makes you scratch your head at some of the trivial things we adults whine about!
Well recently this patient was just about to attend her first day of normal-child preschool. I care for her on nights, so 430 AM rolls around and she wakes up for our routine round of morning nebulizers, coffalator and suction..and she says "I'm going on the schoolbus today" And I say to her "Wow Really! You'll like it, school is LOTS of fun!" And she says "Do you want to go too??" Awwww.
Sooo cute! And I'm thinking "Naaa Been there, done that Sarah's going home to bed!" ;0)