I'm giving up on ever being painful or even close to it. I spent a whole year in and out of the hospital with kidney stones, bladder infections, etc. Finally found someone who would actually listen and give me a diagnosis-interstitial cystitis. I was so relieved...I finally knew what what wrong and now I knew what to do about it. Boy was I wrong. I was spent the past 2 years doing everything I could to stop the pain-and I really mean everything. Never given anything for pain. Finally got thrown to a pain specialist-"because I don't know what to do for you". Spent over 2 months to get in there and finally...someone listened. I got a script for 1 month of topamax. It helped some-it was loading doses. Today I went to pick up my scripts and my insurance won't cover them--and they are not narcs. So I am just giving up. I wish I knew what I did to deserve this. I feel like I have a knife in my right kidney and bladder.
All I do is scream and cry when I get home because there isn't anything else to do. I live on tylenol and motrin. I know that long term use of those aren't great but at this point I don't even care. If I had an hour of being pain free I don't even know what I would do.
OK...I'll stop venting....Thank you for listening...