Update: Help?? 23yo son dx'd with brain tumor referred to Mayo - page 2

Update: Help?? 23yo son dx'd with brain tumor referred to Mayo My son has spent the week at Mayo - and is now on his way back home to Grand Forks for a few days. He saw Drs who ruled out MS -... Read More

  1. by   caroladybelle
    Quote from 66busdriver
    As for RNsane- You should be ashamed of yourself.
    And I think that this response was not called for, either.

    I certainly could see where the what the OP posted could be seen as asking for some info that might be an issue with TOS. And as we do not have access to seeing faces/gestures, communication is limited on the BB. Some of us have also seen situations on the BB that got blown out of proportion, because we do not have all the data that we need to say what needs to be said - or only hear one part of the story.

    If you do not care for what RNsane said, you have merely to say, that you do not feel that the OP was asking for advice but for support. Berating his/ her for his/her perception is inappropriate.
  2. by   Ashera
    Thank you carolladybelle - for your response(s) but I have to say now to everyone - Please don't let this vere off in a direction I don't need. My 'update' just posted was after a long letter one week ago - when all this was just starting - and my hurting was huge and out of control - I was and am not really asking for specific anything - just support and ideas - such as links - that might enable me to educate myself and pick and choose tidbits that might be of benefit to my son. If the above poster that quickly assumed my only reason for posting was for medical advice...had taken the time to read my original letter - they might have seen what my intention had been.

    I do not have the energy to explain myself to anyone right now - and won't do it again. I needed to feel I could write about what is happening - what did happen - what might happen - and just in being able to do so - I feel like I am not so alone. I am in Texas - my son is in North Dakota - his tx so far is in Minnesota - and possibly looking at traveling to where they do proton therapy. It's very difficult for me to know what I need to do on this very day - but I do know I must be able to be with him as he only has his young wife and brand new daughter - and they can't do it all by themselves.

    But back to my feeling 'scolded' - I'm sorry, but that was my feeling. You did not need to tell me not to be. It was a feeling. And please don't say to 66busdriver that his reaction to what was said was unappropriate. It was the way he...felt. And I am respectful of what you too felt - in response to both mine, RNsane, and 66bus... - but this is not the direction I need this to go.
    and I do not have the energy to get it back on track. I don't want to work that hard and waste my focus.

    Thanks for the info on the neurology direction. I really don't have a clue as to the many directions I might seek advice - friendship - and simply a cyber hug. And I won't apologize again for not knowing the right wording to use.
    You might have simply suggested I post under neurology, that there might be information that could be helpful.

    But please - if you don't have something you feel might help me right now - don't tell me that I'm doing or saying something wrong. There's just no rulebook I've seen on how to feel in this situation -
    again, bless all of you who have responded with kind words and ideas. You don't know what this means to me!
  3. by   SuesquatchRN
    I know how you feel, Ashera. Not about your dear son, but about not having the energy to redirect a thread that's taken on a strange life of its own when all you wanted was some sympathy.

    You're in my thoughts, as is my son. And please, keep us informed in spite of the mishugas.*

    Yiddish for craziness
  4. by   Ashera
    Quote from Suesquatch
    I know how you feel, Ashera. Not about your dear son, but about not having the energy to redirect a thread that's taken on a strange life of its own when all you wanted was some sympathy.

    You're in my thoughts, as is my son. And please, keep us informed in spite of the mishugas.*

    Yiddish for craziness
    Ah! Yiddish I should know already...Ashera (Hebrew for Blessed & Fortunate)
    Thanks!
  5. by   Spidey's mom
    Hi again - I come back to check on you and your son as often as I can. You continue to be in my prayers.

    May God bless you with the support you need.

    steph
  6. by   sassy nurse lady
    Ashera - My prayers are for your son and you during this time. I hope you get all the information you need for your son. My mom has to go in to see a surgeon for a biopsy on a lesion in her right breast next Tuesday. I am scared too, she is going the day before her 65th birthday. Please keep us posted on your son. {{{{{HUGS}}}}} :angel2:
  7. by   traumaRUs
    Ashera - just wanted to let you know that you are in my thoughts and prayers too. Please let us know how things are going - we care!
  8. by   Ashera
    Quote from sassy nurse lady
    Ashera - My prayers are for your son and you during this time. I hope you get all the information you need for your son. My mom has to go in to see a surgeon for a biopsy on a lesion in her right breast next Tuesday. I am scared too, she is going the day before her 65th birthday. Please keep us posted on your son. {{{{{HUGS}}}}} :angel2:
    Thank you for your prayers - and know mine are back with you and your mom! Please let us all know how she does...
  9. by   Kim O'Therapy
    Ashera,

    Will the military send your son to MD Anderson? Or, is that not included in his health care? You are in my prayers.

    Take a deep breath, let it out, and hang on for another day. I have found that cancer tx is a roller coaster ride. You have ups and downs. You're not in control and you're scared; however, you can't jump off the ride when you want to. Reach deep down into your soul and find the strength you never knew you had and hang on. I know you can get through this chapter of your life. Just being there and caring and offering help will mean the world to your son and his family.

    Please keep us posted.

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