Cancer in a 5 y/o

  1. Ok all~
    I need help with a difficult situation here. I just found out that my best friends 5 y/o daughter has cancer. The Dr did a MRI of her upper leg and it was found today. My friend was too frazzled to really be able to tell me what type we were looking at fighting against, but she told me it is either...

    #1~ Has "tychoma"(I think) in the word. It happens when the childs ligaments and connective tissue do not grow properly.
    or
    #2~ _________sarcoma, which is in the muscles.

    They are going to a major childrens hospital tomorrow and I suppose, to run more tests.
    I want to find information for her....Can any of you figure out what we are dealing with here?
    Thanks a million everyone....

    Please pray. This little girl is 5 y/o. Hasn't even had a chance to go to school.
    My best friend is a wreck....
    Thank you again every body.....
    Last edit by GPatty on Mar 21, '05
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  2. 9 Comments

  3. by   alliecouture
    I am not a nurse yet, and can not offer any insight, but this little girl and her family are in my thoughts and prayers. My heart goes out to her. Situations like this are what makes me want to be a nurse. I would do anything I possibly could to help this little girl. For now, all I can offer is prayer.
  4. by   NRSKarenRN
    think that osteosarcoma is the type of cancer your talking about. here's some more info from kidsfirst.org webiste + others.recent studies have reported that survival rates between 60% to 80% are possible for osteosarcoma that hasn't metastasized, depending on the success of chemotherapy.

    childhood cancer is relatively rare, affecting only about 14 of every 100,000 american children annually. among all age groups, the most common childhood cancers are leukemia, lymphoma, and brain cancer. as children enter their teen years, there is also an increase in the incidence of osteosarcoma (bone cancer).

    osteogenic sarcoma (osteosarcoma) is a bone forming cancer.
    it is the most frequent type of bone tumour and is most common between the ages of 15 to 25. over 90% of tumours are located in the metaphysis (the growing ends of the bone), the most common sites are the bones around the knee which account for 80% of cases.
    http://www.cancerindex.org/ccw/guide2o.htm

    childhood cancer: osteosarcoma

    osteosarcoma faq - cancerindex


    once they get definitive diagnosis, be glad to point you in the right direction.
  5. by   GPatty
    Ok. She called me...
    It is either
    #1~ Sacral Coccygealteratoma
    or
    #2~ Rhabdomyoma
    Dr's will determine which at the Children's Hospital. Hopefully, we'll hear some news tomorrow.

    PS: Thanks NRSKaren....I appreciate your help...
    and alliecouture....we can use all the prayers we can get at this point! Thank you.
  6. by   ProfRN4
    Quote from Julielpn
    It is either
    #1~ Sacral Coccygealteratoma
    or
    #2~ Rhabdomyoma
    I'm so sorry to hear this about your friends child. I've never heard of the first. The second, yes. I believe it's rather rare (not that statistics make a difference when it hits home). Can't even recall anyone with it. Where are they going for treatment?
  7. by   GPatty
    Riley Hospital in Indianapolis
  8. by   NRSKarenRN
    isn't google great?

    sacral coccygealteratoma
    benign tumors
    http://www.aans.org/education/journa...03/15-2-14.pdf

    rhabdomyoma:
    http://www.maxillofacialcenter.com/b...abdomyoma.html
    http://www.thedoctorsdoctor.com/dise...habdomyoma.htm

    familiar with rhabdomoyma and tuberous sclerous mentioned here as my niece has this rare disorder.

    wishing a full diagnosis soon so treatment can begin.
  9. by   TheCommuter
    :angel2: If it's within the child's leg, it's likely some type of sarcoma. I hope everything turns out well for this kid. :angel2:
  10. by   GPatty
    My friend got this much out when she was trying to read me the report from the Dr.
    The mass is from her L sacrum to L paraspinal musculature (something to that effect) and is in her spinal canal from L-4/L-5 throughout her sacrum.
    She also said something about inguinal lymphnodes >1cm, but I didn't catch all that very well....
    Thanks for your well wishes...it's greatly appreciated.
  11. by   NurseRachy
    oh my gosh - that is terrible news! I'm so sorry to hear about that Julie. I'm keeping you both in my best wishes. Positive thinking ((((((((((Julielpn)))))))))))
    Rachel

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