Re: ICU stay before death common in the U.S. Originally Posted by stressgal
I think a portion of the issue lies with unclear code status and lack of understanding by family members when placed in these difficult decision making situations. Add to that living in a litigious society where healthcare professionals must cover their tails by performing all available tests and procedures regardless of the outcome. Working in an ICU I have witnessed many families basically giving their loved ones a "million dollar funeral". End of life care is a difficult and uncomfortable subject. I do feel as if the article posted above was a bit scewed to present this issue being caused by the current healthcare system rather than presenting it as a multifaceted problem.
emphasis added by tewdles
That healthcare professionals consider death, dying, and end of life care a difficult and uncomfortable topic of discussion and patient education is, unfortunately, a large part of the problem in the USA. It is clear that physicians often have a difficult time speaking with their long term, chronically ill patients about the next step...how they desire to live out their remaining days or weeks or months. In the absence of those honest discussions medical interventions escalate as the health of the individual declines. The patient and family is often only doing what they believe their physician thinks is best for them...they have that level of trust for their doctor. When you read the multitude of posts on this site alone about DNR discussions it becomes clear that nurses feel completely un-empowered to have these discussions with patients and families without the implicit direction of the physician or the management of the hospital. The result is more or less an entire society of people who are essentially uprepared for the inevitable...death and dying. We see the aftermath of this avoidance behavior in the hospital and in the ICUs on daily basis.
It saddens me when I have a conversation, as a hospice nurse, with a patient who has terminal ______, you fill in the blank, and the family tells me that I am the first person who has spoken with them about death or dying. I wonder how someone can have a terminal illness, especially one which is chronic in nature...say COPD, and no MD, no nurse, no health professional has ever talked with them about dying. I am not advocating stealing peoples hope, I am advocating for being honest with people so that they can make informed and honest decisions. We can do better and I for one am confident that we will.
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