Girl brain dead part deux

  1. As soon as the original thread was closed the following appeared on facebook...
    A letter from Nailah;

    It has been over a month since I have spoken about my life with Jahi to anyone outside a very small circle of family and friends. So many people have asked how we are doing and if Jahi is alive. This has and continues
    to be an unbelievably difficult time for me as a mother and for us as a family. I have withdrawn for reasons of safety and privacy and to focus on my daughter ...and my role as her mother. However, I have not been alone. I
    have been surrounded by the love, support and prayers of so many kind people. Despite what people say about my daughter being dead and how I must be ignorant not to get that, I can tell you that she is much better physically since she has left Children's Hospital and I see changes that give me hope.

    As I prayed today, I felt called to express to people that I am truly grateful for the amount of love and support my daughter Jahi McMath and I have received from people all over the world. We feel your prayer and support. Because of your unselfish generosity I was able to do what I was
    afraid I would never be able to do, move my daughter from Children's Hospital Oakland before they removed her from her ventilator and stopped her heart. This was itself a miracle. Please know that all of the support we received has been used towards helping Jahi. If I had it my way, I would say thank you to each and every person in their native language so they could understand how much I appreciate them for all their support and, most importantly, prayers. It is my belief that faith in God,
    your prayers, and the incredible kindness of good hearted medical professionals, are the main reasons my daughter is alive today. I know people are concerned and I want to make sure you know that Jahi is not suffering, she is surrounded by love. I will never let her suffer.

    On the long hard days when I'm feeling down I think about all the people who are praying for me and Jahi and I feel so much better. I want you to know that I'm praying for you as well.

    Thank you to all of the people who view my daughter as the sweet, innocent, 13 year old girl that she is and not a dead body or a corpse, I deeply appreciate that. Thank you to everyone who hasn't forgot how my daughter
    got into this situation in the first place. No one should have to go through this.

    I would like to thank all of the people who have reached out to me and shared their stories of their family members. Some have been heartbreaking, some have given me hope. All have helped me feel that I am
    not the only person who has had this struggle. Some of you have shared how you fought for your loved ones and they got better, some of you have shared your regret with not fighting more and some shared with me the incredibly difficult decisions you made to let go. I have prayed for you as you have for me. Sadly I can say I know how you feel.

    I also want to thank those who felt the need to go public with their opinions about me and my daughter, positive and even negative. It is because of you that my daughter's experience is so relevant and that people
    all over the world know who Jahi Mcmath is. What you may not know is that her name, Jahi, means one who is known by many. Hopefully my daughter can
    change some of the ways brain death is viewed in today's society. Honestly, I think she already has.

    Finally, thank you for all the love, support and prayers you give Jahi every day. I am certain that she knows you are praying for her. I feel the support from your prayer all the time. I don't think I or Jahi would be here today without you. May God bless all who have shown love and
    compassion as well as those who have expressed their contempt. All are deserving of God's grace and love. For those who believe, please, keep praying for Jahi. God can overcome all things and I believe that his will has yet to be fully revealed. I love Jahi and where there is love, there is hope.

    Nailah Winkfield , Jahi's mom
  2. Visit ktwlpn profile page

    About ktwlpn

    Joined: Aug '00; Posts: 4,688; Likes: 4,822
    L.P.N. in LTC-love working with dementia residents.....
    Specialty: med surg,homecare,hospice


  3. by   Altra
    I saw a news story with excerpts from this yesterday. <sigh>
  4. by   JustBeachyNurse
    The realists are questioning the validity of the letter as it was posted on the "keep jahi on life support" FB page (run by non-friends/family religious individuals, ie not affiliated with the family), not on the FB page created by the family "pray for jahi mc math". It's my understanding it was only sent to the non-affiliated page, clearly not written in the style or syntax of the mother. Not released by the camera starved uncle nor by the attorney.

    It reads like a farce from those trying to appease others on the second page. The only source cited by news media is "keep jahi mcmath on life support" FB page. Not one validation from the attorney or family.

    IMHO the letter has high potential to be a fake. Especially if you saw the Instagram shots of mom talking with uncle on Instagram (to Omari, complaining about weight gain on Instagram) 'yous gained the weight Jahi lost lol'.

    The photo was pulled but there are plenty of screen shots floating around in cyberspace. Plus the uncle boasting & posting on how thanks to the cnn fame he is going to be on "I (almost) got away with it "
  5. by   imintrouble
    I heard Jahi's mother speak. I don't believe for one minute this letter/post was hers.
  6. by   OrganizedChaos
    If the letter is fake it is sick that someone would pretend to be Jahi's mother in this already disturbing case. It's probably for the best the family is keeping quiet now.
  7. by   kythe
    This case gets stranger and stranger.

    I haven't posted on this topic at all, but I found myself reading the other thread in its entirety. It's rare that a single subject will interest me for 2000+ posts. But I feel like I now have a fairly comprehensive education on what brain death means and what happens to the body, how this differs from a coma, and the various ethical issues that present themselves in such a case.

    I have no critical care experience and nothing to add, but I want to thank each of you who have posted here for the wealth of knowledge you have shared.
  8. by   ♪♫ in my ♥
    Of course it's not written by Ms. McMath's mother...

    Virtually any written statement attributed to someone in such situations is written by their spin-masters, handlers, etc. The same is true for all the athletes, singers, etc who are in hot water for one reason or another.
  9. by   Christy1019
    I don't know how valid this is, but there's a new story going around on the family in denial fb page, that states Jahi's heart has stopped.
  10. by   ♪♫ in my ♥
    Quote from Christy1019
    I don't know how valid this is, but there's a new story going around on the family in denial fb page, that states Jahi's heart has stopped.
    break out the ECMO and get her on the transplant list!
  11. by   clearbrook6
    The story that her heart has stopped was refuted by the uncle on his facebook. The aunt who is an RN also commented on that page to say the story is false. While I agree that the letter in no way sounds like the mother's "voice" in her earlier public comments, it would not surprise me that there might be a PR person on the "team of professionals" that is helping the family. Perhaps such a person wrote the letter for the mom? I suppose Dr. Byrne will write another article soon, too. Awful situation.
  12. by   clearbrook6
    New article following release of report on CDPH's review of CHO following Jahi McMath matter:
    Jahi McMath: Family calls state report 'B.S.'; new medical record details emerge -

    The article includes two claims from a "watchdog" group that has spoken to a source who supposedly reviewed the medical record. First, that the code began at midnight and ended at 3:40 am, and that there are NO "nursing notes detailing the hemorrhaging episode."

    Is the claim about the nursing notes even remotely believable?
  13. by   TiffyRN
    I could believe that there might not be a specific nursing note about bleeding; it might have just been addressed as tick-marks on a flowsheet. Whether that is appropriate would depend on whether the amount of bleeding was not adequately addressed by the flowsheet (I'm assuming an ICU would use a flowsheet). I'm sure the family and the providers would disagree on the apparent severity of the bleeding prior to the code.

    Even if the family has a solid case of clear neglect I could find it completely feasible that a State survey would not find much amiss. Clear negligence can happen in even the most stellar of facilities. A clear survey (or close to it) does not preclude the possibility of negligence or malpractice. I feel sure that unless they have entered into some settlement agreement there will be a suit filed. I'm thinking they haven't as lawyer man is still chattin' up the media.
  14. by   KRVRN
    That poor kid's body must be such a mess by now if she's still on a ventilator.