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Dad Fights Hospital to Keep Baby on Life Support



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No. 50
Old Nov 02, 2009, 08:03 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Heartswideopen: I think you are the smart one, hehehe. I guess this is such a heated issue (I am on the opposing side from health care professionals. I am a minority. ) it cant be argued professionally. Both sides feel very strongly and feel they are advocating for the patient.
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No. 51
from annmariern
Old Nov 02, 2009, 08:16 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
As I said rotting alive. Her skin was ulcerating and she has an abdominal abcess, that was why her daughter finally let her go; she was there when the nurse did the dressing and pressed on her abdomen, the abcess burst, and so disgusted by the sight of it, she finally let her mother go; In answer to your comments, been a nurse for 24 years and have taken care of all manner of people and no I don't care what they have in the bank. I didn't become a nurse to do accounting. But if you think for a minute that in the long run it doesn't matter then you are blind. I had a conversation this week with a cardiologist who gets paid $9 to see a pt; he estimated it cost $150 an hour to run his office; ergo he wont take medicaid pts. Healthcare has to benefit the majority not the minority.
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No. 52
from wacberry
Old Nov 02, 2009, 08:21 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Re: Dad Fights Hospital to Keep Baby on Life Support
I was not aware of this. How disgusting! I think the government should just stay out of health care. It is murder to kill a baby when the parents dont want them taken off life support and Heaven

It becomes the governments business if and when tax money is paying for the care!! Unless you are private pay or insurance pay only you can expect the government to start interfearing a lot more in the future.
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No. 53
from annmariern
Old Nov 02, 2009, 08:28 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by wacberry View Post
Re: Dad Fights Hospital to Keep Baby on Life Support
I was not aware of this. How disgusting! I think the government should just stay out of health care. It is murder to kill a baby when the parents dont want them taken off life support and Heaven

It becomes the governments business if and when tax money is paying for the care!! Unless you are private pay or insurance pay only you can expect the government to start interfearing a lot more in the future.
Just the same as insurance companies are doing right now.
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No. 54
from Hushdawg
Old Nov 02, 2009, 10:19 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by oramar View Post
It is not murder to turn off machines and let a death that nature intended to take place. It is not killing someone to refuse treatment and allow nature to take it course.

Quoted For Emphasis

We've seen so many court cases in the media on this issue, rarely one for someone so small.

We've seen Right To Death cases and Right To Life cases back and forth and as a society we buy into the media sensationalism of it all and forget that the life support is an artificial form of existence.
To use it as part of a treatment or as a stand-by for the body to repair itself is one thing, but to force a body to stay alive that will never (under medical opinion based on all the evidence) be able to live on its own can be a very cruel thing.

The child cannot speak for itself so the doctors must make the determinations based on reason, logic and medical knowledge.

The issue here is that the mother and father disagree on the course of action. According to what I am reading the father has no evidence except emotion.

While it is sad to lose a life before it really began, we have to accept reality.

My wife is pregnant now and whenever I read these kinds of stories I really try to put myself in that place for the Hard Choices.
We've talked about it and we've agreed that if the child is suffering and is a terminal case that we will surrender to the will of God and allow the baby to die with dignity and make the most of every moment we have.

I hope the father decides to do this and spends more time at his child's side and less in a courthouse.
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No. 55
from el_peon
Old Nov 03, 2009, 08:27 AM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by caroladybelle View Post
And we know that everything medical on Wikipedia, is well researched and accurate.

On the other hand, data from the Mayo Clinic indicates that there can be great variation in the treatability of the disorder and that some forms are fatal. It also indicates more serious issues in those that manifest the symptoms of the disorder earlier in life - I would say since birth indicates very early onset.

It also indicates that there are forms that have no drug treatment.

The other problem is the phrase "treatable". Virtually EVERYTHING is treatable. That does not mean curable, nor tolerable, nor maintaining good quality of life. Pancreatic cancer is treatable (but frequently not curable) with surgery/chemo, however frequently those "treatments" make actually risk shortening life, and frequently involving worsening quality of life. Is it worth lengthening one's life by a few days, if those days are marked by nonstop vomiting, being attached to IVs, NG tubes, or feeling acutely ill?

We do not receive the severity of the child's disease, whether it is presynaptic, or synaptic....all we know is when it has onset. That onset in early childhood (at birth) indicates that it is probably more severe, but again we do not know. We also know that child is unable to leave the hospital. As such, we cannot judge. But I would expect that the MDs in this DO have data on the longterm prognosis, and feel that they are better to judge than those of us, especially when relying on Wikipedia as a source of knowledge.

It is also interesting that the parents cannot come to agreement.
Not so interesting that the parents cant agree. They're not together anymore, so obviously they couldnt agree on many levels. I just hope this isnt a power struggle between the parents without a genuine concern for the welfare of the child.
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No. 56
from el_peon
Old Nov 03, 2009, 08:40 AM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by izeofblu1973 View Post
was it his misery or yours? since you said it was hell to care for him when there was no hope and he was eating up taxpayers money.
I think sometimes the patient's misery IS ours. Not because theyre hard to take care of, but because we have hearts and souls. Its the nature of our business to put our whole selves into taking care of our patients. Sometimes it is just absolutely horrible for US to watch a patient suffer. And it should be. There should never come a day that it just doesnt bother you anymore. Yes, we put up walls to protect ourselves, or i'm sure we'd all go nuts. But it should never become easy to watch.

It is also misery to watch families have to decide what's best for their loved one. Grief gets in the way of what most would call good judgement. No one wants the job of making the decision to allow someone's life to end. Especially if the family is split. No one wants to be the one that "let them kill momma" Its a heavy burden to be left with that decision.

As far as who pays for what...i dont care. I still get paid regardless.
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No. 57
from tewdles
Old Nov 03, 2009, 09:14 AM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by Vito Andolini View Post
To me, there's plenty of doubt. I'm not sure why you think it would be easier to have the child at home. That will mean workers forever in and out of the house, no true privacy, parents will have to care for him if workers don't show up - nothing joyful or better about that, in my mind, but I guess each case is unique.

I cannot imagine that quality of life is generally improved in a hospital rather than in a home. The fact that there are workers in and out is irrelevant to the quality of life of the child...that happens anyway. The fact that there is no true privacy is irrelevant to the quality of life of the child...that is true in the hospital as well. Parents having to hire folks is part of the situation...they are currently "hiring" the hospital staff to provide for his ongoing care. Whether or not the environment is joyful is completely within the control of the parent(s). Trust me, the vast majority of kids would rather be in a home environment than a hospital environment if given a choice.
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No. 58
Old Nov 03, 2009, 12:19 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by izeofblu1973 View Post
This is the great health care system? Why would a court be deciding (or doctors) to take baby off life support? A doctor would NEVER be able to decide in the U.S. even if they had no health insurance and couldn't pay the bill.
It happens in Texas. The Texas Advance Directives Act lets hospitals withdraw life support if they think care is futile, even if family members object. Cases have been in the news several times, and they always seem to involve people without insurance.

Dying Toddler Brings Futile Care Bill to Forefront

Case Puts Texas Futile-Treatment Law Under a Microscope


Texas Advance Directives Act (Wikipedia)

No Life Support for You
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No. 59
Old Nov 03, 2009, 12:28 PM

Default Re: Dad Fights Hospital to Keep Baby on Life Support
Originally Posted by wacberry View Post
Re: Dad Fights Hospital to Keep Baby on Life Support
\

It becomes the governments business if and when tax money is paying for the care!! Unless you are private pay or insurance pay only you can expect the government to start interfearing a lot more in the future.
Do you think the government is not already paying for this? I highly doubt this man's insurance has paid for a year of life support, not when we hear of people being dropped for FRACTIONS of what this child's care costs.
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