Re: Multiple Sclerosis

Hello,
You

Re: Multiple Sclerosis

Hello, you will be in my prayers, I had my second MRI on 10/10/08 i'm coming up on my 1 year anniversary of my dx. Since then I have completed my BSN, started a new job that I love and plan to go back to school to get my MSN. Some days I get ****** because I can't do all I want, but I'm not gonna let this beat me. I had symtoms for years but put it off as being clumsy, since I had been my whole life?? The falling, the dancing vibrating feet, the numbness in my lips when I would have a drink; crazy things that were over looked. Of course when you mention it to someone they thing you're a hypochondriac( I'm sure that's not how you spell this). But I'm glad I know what's wrong with me now, so we can fix it. I beleive a cure is right around the corner. Keep your head up, take your time, everything will be fine. As for the kids laughing when you mix things up, mine do the same thing and we just all laugh about it now, at first, it was a little scary for them, but now they help me when I need help, and everything is business as usual. Good luck and God Bless.

Re: Multiple Sclerosis

Thank you, I am just a bit overwhelmed. I keep thinking that I am fine, then I stumble a bit, then I wonder if I am stumbling because I am paying too close attention to it. I am so hopeful that I will be able to go back to work soon, and that the doctor I see will not make me get a spinal tap!!! (wishful thinking i know) Thanks so much for your prayers. I know that no matter what God has this. I have been praying over the last 4 months that if there was a way for me to be home on weekends with my boys, please provide it. ( I work every weekend) But this was not quite what I was thinking!

Re: Multiple Sclerosis

Originally Posted by Residentmaid

Thank you, I am just a bit overwhelmed. I keep thinking that I am fine, then I stumble a bit, then I wonder if I am stumbling because I am paying too close attention to it. I am so hopeful that I will be able to go back to work soon, and that the doctor I see will not make me get a spinal tap!!! (wishful thinking i know) Thanks so much for your prayers. I know that no matter what God has this. I have been praying over the last 4 months that if there was a way for me to be home on weekends with my boys, please provide it. ( I work every weekend) But this was not quite what I was thinking!

I always feel guilty in that there are many things that MS has rendered me scared to do. My children are 13, 5 and 3, so they are pretty young. I try to do as much as I can on my own, which seems to anger my 13 year old. I have explained to him that I would like for him to let me do as much as I can on my own. As a child my self, Iknow that no child wants to see their mother as a dependant, but I feel that that is what I have become. I am now on disability, don't make as much money as used to and feel like a failure because I can not do as much for my children as I used to. I am an MSN and can't really find anything that is not too physical for me. My walking is terrible most of the times and I am now getting a wheelchair to be able to do things for myself and my children. At the same time, I am now able to spend more time being mommy, as I am home every evening and weekends now. I guess in some ways MS has been a curse and a blessing.

Re: Multiple Sclerosis

Hi everyone, I haven't posted here in awhile. I've had MS since 1991 and have had many struggles but went to school in 2004 for registered nurse and have been licensed for 1 1/2 yrs.

-What I've learned is that fast paced, hectic nursing isn't for me and WILL make me sick it's just a matter of time. Therefore, those arenas are for others who can handle such environments. I do home health nursing- It's my pace and I have one pt. at a time. Not saying you don't have any hectic days, but not like floor nursing. Your worst day in home care is still better than your best day of floor nursing!

-Stay in tune to your body and mind and how you're feeling. If what your doing is too much on a daily basis and sucking the life out of you, then it's time to rethink your area of nursing, not give it up just change arenas......that is my best advice honestly. I had to change several times to learn my lesson and my limits- so I'm trying to help someone else out there who thinks that if they can't do floor nursing then their out of the game....nope, just find a different arena for your skills.

Re: Multiple Sclerosis

Originally Posted by Residentmaid

and that the doctor I see will not make me get a spinal tap!!! (wishful thinking i know)

Hi,
I don't know your particular situation but a spinal tap is often not necessary to get a diagnosis of MS. I know you are overwhelmed right now but please do your own research also. Hang in there.

Re: Multiple Sclerosis

Hi all, I just wanted to tell you all a few things about my situation and see what you thought. 1st of all, my memory short and long term has gotten ridiculosis, I can't remember things with my children in them or sometimes I get lost/confused and can't remember where Im going and had my L3l4 back surgery august 2007 and i just had my C3-C6 disks replaced in a cervical fusion last week, i have been having pain in both of my hips, back, knees, back upper and lower and i actually had the balls of my feet hurt so bad when I got up in the morning, you would have thought I ran a marathon when I was inactive. I also was dropping things with my right hand and had numbness/tingling from my right shoulder all the way to the tips of my fingers but since I had my fusion, my arm feels better and I dont have the numbness/tingling in my arm...but my dr said she is going to see about getting me a brain mri or refer me to see a specialist about having my pain maybe its the chronic fatique syndrome? I have 5 kids and am 37...i havent been working for almost 3 months because of how bad i feel...people just look at me like Im crazy... what do you all think? thank you for your time.

Re: Multiple Sclerosis

Originally Posted by tiak41

Hi all, I just wanted to tell you all a few things about my situation and see what you thought. 1st of all, my memory short and long term has gotten ridiculosis, I can't remember things with my children in them or sometimes I get lost/confused and can't remember where Im going and had my L3l4 back surgery august 2007 and i just had my C3-C6 disks replaced in a cervical fusion last week, i have been having pain in both of my hips, back, knees, back upper and lower and i actually had the balls of my feet hurt so bad when I got up in the morning, you would have thought I ran a marathon when I was inactive. I also was dropping things with my right hand and had numbness/tingling from my right shoulder all the way to the tips of my fingers but since I had my fusion, my arm feels better and I dont have the numbness/tingling in my arm...but my dr said she is going to see about getting me a brain mri or refer me to see a specialist about having my pain maybe its the chronic fatique syndrome? I have 5 kids and am 37...i havent been working for almost 3 months because of how bad i feel...people just look at me like Im crazy... what do you all think? thank you for your time.

Hi,
I'm so sorry you are having all these problems but it could be anything and of course we can't offer a diagnosis. Let us know what your MRI shows and hang in there.

Re: Multiple Sclerosis

Originally Posted by tiak41

Hi all, I just wanted to tell you all a few things about my situation and see what you thought. 1st of all, my memory short and long term has gotten ridiculosis, I can't remember things with my children in them or sometimes I get lost/confused and can't remember where Im going and had my L3l4 back surgery august 2007 and i just had my C3-C6 disks replaced in a cervical fusion last week, i have been having pain in both of my hips, back, knees, back upper and lower and i actually had the balls of my feet hurt so bad when I got up in the morning, you would have thought I ran a marathon when I was inactive. I also was dropping things with my right hand and had numbness/tingling from my right shoulder all the way to the tips of my fingers but since I had my fusion, my arm feels better and I dont have the numbness/tingling in my arm...but my dr said she is going to see about getting me a brain mri or refer me to see a specialist about having my pain maybe its the chronic fatique syndrome? I have 5 kids and am 37...i havent been working for almost 3 months because of how bad i feel...people just look at me like Im crazy... what do you all think? thank you for your time.

You need that MRI and a good neurologist. Even when I had demyelination/lesions on MRI, symptoms and a positive spinal tap my neuro STILL tried to rule out all other possibilities and had me see another MS neuro specialist for a second opinion before stating YES you for sure have MS.

Re: Multiple Sclerosis

Hello, I am still in Limbo here. I tried to start PT today, but they can't do anything until we know what this is. I have a neuro appt next monday now. But I have been having the worst pain. Especially at night. My legs and arms burn and ache so bad. My legs feel like they are frost bitten, even when the rest of me is hot. Is it normal to have symptoms increase throughout the day. I start every morning off thinking maybe today will be okay, and they the burning starts creeping up my legs. they up my arms. Tloday my left eye hurts, full of pressure. and it is a bit fuzzy.(not as clear in left as right) It is so subtle at this point that it makes me wonder if it is a figment of my imaginatin. Also I seem to have double vision, like my eyes are two seperate entities. The Pt guy says I should use a cane. but that will bring on more questions. Which will bring on more expert opinions about what is going on. ( I apparently have either a severe sinus infection, diabetes, fibro malgia or Chronic fatique syndrome.)I just don't want to explain this to everyone, especially when I don't know what it is. They did do a MRi of the brain without contrast, and didn't find any plaques. While I am very glad about that. I still have all of theser horrable symptmes. (ONe of which is the inability to type. or typing different words that I am thinking) This came on all over a few weeks, is this normal. or does MS come on slowly?
Thanks again for all of your advice.
Sharon