Re: Cutting off benefits!!!!
Hi Jolie,
I have been out of work since 2003, developed autoimmune diseases-Ra, ankylosing spondylitis and of course fibromyalgia goes with all these disorders seems like. My doc says fibromyalgia will eventually be listed as autoimmune though there are groups of nurses on here who dispute this. but, until you have it, I also did not know much about it, but have I learned fast. You have to walk in someone else's shoes a bit and then you understand!!!!
I take Remicade iv every 6 weeks, methotrexate SQ weekly to keep my immune system normal.
Disability was the route I took. But the conditions of my job cetainly added to the stress of life. I can remember leaving work 2 different times with nose bleeds so bad I had to go to Er on the way to my car and also had lots of surgeries in late 90's early 2000 all with no one finding out what the heck was going on with me. My PTO was never for a fun vacation, always illness!! Some of my patients were in better condition than I was.
So, I have been blessed to have what I have had, I was just upset that my life insurance was cut, where can you get life insurance if you are on disability and I have had 2 days to think about it and lucklily my health insurance and meds will still be covered at employee rates, so why am I complaining? I think I just needed to vent badly and today have had some chest tightness and I know it is from all the stress of what is happening and no way to control it. you know we are all control freaks to some degree!!! We have to be when we are at work, or we work hard to maintain some degree of control and sanity!!!
I have struggled to find a new normal for me the past 5-6 years and have tried a volunteer choir 2 times and each time it is to much. My 4 children,husband and 6 grandchildren get what energy I have and a couple of friends who have stuck by me. believe me, when you have a chronic illness, not to many understand your limitations and it also scares them that it could be them someday!!
thanks for your interest and your reply!!! I love this board. i can come on here and feel like a nurse for awhile again.
68RN
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