The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

Quote
"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

Quote
"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

Quote
"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

Quote
"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

Quote
"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

Quote
"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

Quote
"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

:heartbeatA heart breaking story so beautifully written.Sometimes I feel less as a nurse by crying so often when reading stories like this one. Thank you so much for letting us have a glance to human nature. Why do you think the daughter did what she did? Can we blame her? Maybe she's so afraid to let go because of the fear of loneliness.

Specializes in Cardiac/med/aged care/emergency.

Thankyou for sharing that with us, I wonder do family realize what they do. Love is a cruel thing sometimes.:sniff:

Specializes in CCU,ICU,DOU,MED/SUG, Recovery.

thanks for the story. it makes me think back to why i became a nurse. thanks again for sharing this story.

what a sad story,, .. it really awaken those people involved.. thanks for sharing those stories,,,:cry:

Specializes in Wilderness Medicine, ICU, Adult Ed..

Nerdtonurse, you not only did a good job caring for this woman, you have also given her a voice through your writing. What a valuable gift you have given her, and at such cost to yourself! I pray that, on the day of my death, it will be as good a nurse as you who cares for me.

Specializes in Med-Surg, Home Health.

:heartbeatI know how you feel. I went through similar episode. My husband went thru surgery @ hospital, developed ARDS, was trached, developed renal failure,was dialized. this lasted from a Feb to ist of May. I refused for him to be coded, shocked, or CPR, but after his heart stopped they gave him epi/atropine, which of course resulted in heart restarting. He had feeding tube-replaced with Peg tube developed contractures,pressure ulcers from the slighest touch, had mrsa, diarrhea constantly. I finally made a decision

to move him to patient room on floor. this was done , his o2 was connected to outlet of 10 liters. I did all of his care that night, slept with him, I held him and talked to him of our life together from when we met to now. I apologized to him for the agony I put him thru and the fact I let him go. I don't know if he comprehended but he died the next morning. I don't know if I helped or hindered my husband's care , but I live with guilt to this day and it's been 5 years. God bless you and you will be in my prayers.:redbeathe

:yeah: well described. i could imagine every scenario.
Specializes in med-surg, geriactrics, oncology, hospi.

Very sad,I teared up. Why wasn't an ethics committee meeting held?I've known of more than 1 meeting held , in regards to family that won't accept the inevitable /pts. wishes.All the doctors can sign off if interventions are fruitless.The rest of the family still could sue too for hospital disregarding the living will.This would bother me forever.

This is such a sad story and a hard reality to deal with.

Specializes in PEDIATRIC/CRITICAL CARE.

I work in a PICU and this happens here also.

I realize it's hard enough with an adult but even harder with a child.:cry:

Thank you for expressing this so beautifully.

I am having DNR tatooed on my butt!!:smokin:

Specializes in Hospice.

Dear Lord, please let the doctor that did not stand up for this patient know what this patient went through, and EXPERIENCE IT HIMSELF SOMEDAY. AMEN....

Specializes in med/surg,ortho, tele,.

Thank you nerdtonurse for for sharing this.

It touched and brought up a few tears. Something we've all had to face at some point in our nursing careers or personal lives.