I have to jump in here, as a parent of 2 micro-preemies, I have to say that they are the light of our lives. YES it is very hard to raise a disbaled child and 1 with a severe learning disability, but I would not want it any other way.
They called us in shortly after her PDA ligation and told us she was not going to make it through the night, she was extremely sick, there was no way that we were going to let her go that easy. we called in our priest, called my inlaws to bring us pillows and blankets and we spent the night at the hospital by her side praying and praying all night. In the morning a miracle happened, she slowly started to recover, and then it was uphill from there. See miracles do happen, and when you are emotionally attcahed you see that.
I know clients who have had severly disabled children (not preemie) and were asked to let go, they never gave up, they were told they wwould never sit up or stand or walk, THEY PROVED THEM WRONG!!!!! Enough love and faith will get you through, no matter what the outcome, yes some people may not be able to handle that, but god works in mysterious ways, we are chosen for a reason.
thanks for listening