Re: Funny/happy NICU moments needed
We just had our annual reunion picnic this past weekend. It's always so much fun seeing everybody come back, bigger and healthier and happier than when they left the unit.
Last fall, I took care of a baby who was diagnosed with Treacher-Collins Syndrome. His parents are both originally from China, and when he was born, their initial reactions were to give him up for adoption. In their culture, what they have known their entire lives, is that if you're not perfect, than you will never be accepted in society. They had not known that he would have Treacher-Collins before he was born.
He did pretty well from the get-go. He needed an oral airway, and had a pretty significant cleft palate, and no external ears, but other than that - he was totally normal baby.
The first few weeks, his parents never came to visit, and only called a handful of times. They maintained that they wanted to keep him, but just didn't know if he would ever be accepted by their families and whatnot...
They held off giving him up completely until after his first surgery (mandibular distraction), because they said they wouldn't be able to live with themselves if something had happened. Afterwards, they started visiting and getting to know him, and love him.
Long story short... he ended up going home with his parents :-)
They were eager to learn how to NG feed him at home, and began coming in every day to learn everything that they would need to know. After he went home, they would e-mail us with updates, and we would hear from speech and PT/OT how well he was doing in his follow-up appointments!
I totally didn't expect them to show up at the picnic this weekend, but they did! He looks amazing!!! It was sooooooooo good to see how well his parents were doing with him. They were even in contact with a few families back in China who also have children with similar issues. They have been encouraging them to come to the states, because here "anything is possible".
I love my job!
Nursing News