My son who will be 11 next month was just dx. with a small syrinx inside of his spinal cord at C-2. He walks up on his toes, cannot walk a straight line, cannot balance self with 2 feet on the ground, has spacisity behind his heels and shortened tendons, sinus arrhythmia, fatigue, extreme difficulty writing, cannot touch his nose with his finger, brief periods of dropping his head and not responding etc. Does anyone know anything about this or about the surgical procedures to shrink the syrinx? He has seen a pediatric neurologist ( a woman I work with) and is being refered to a neurosurgeon. Any info. about this rare disorder would be greatly appreciated.