Whats the deal with Michigan

U.S.A. Michigan

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I have been surfing for a week trying to find LTC facilities in michigan who specialize in Huntington's Chorea patients. So far U of M Neuro. Dept is all I can find. However there are many listed in Ohio. I'm having troubles with a resident and need help. Any advise will do. Thanks.

I saw a lot of illnesses in clinicals, but HD is the one that still haunts me. Some day's the memory of that gal just pops into my head. To my knowledge, we don't have any LTC facilities that specialize in that disease in my state. I know this particular resident had spent time in another LTC facility before moving to the one I was doing clinicals at. I'm sure the move was because of the amount of time she required and all the meds. I'm surprised that there are facilities that specialize in it considering the rarity of the disease.

Thanks Todd,

We have about 5 HD residents in our facility of varying ages. From 21 - 60 something years old and all with varying degrees of the disease. They truly could be one on one care. We can't really restrict/restrain them, and they move about the place freely bumping into everyone and everything. After 1/2 hour they will go lay in bed just to stop moving but even that does not help. We have had to replace a few walls this last few weeks. Can you believe it. The sad thing is that they are mentally intact and know whats happening to them. It is vary hard for all involved to deal with.

If anyone is still viewing this site. Is there a better place to post it?

I wanted to reply to your post. I am a nurse and married to a victim of huntingtons disease. My husband is 45 in a behavoral nursing home in tennessee. There are several homes just for huntingtons PTs..........in NY, Fl and connectic I believe. I considered transfering him but our insurance will not pay out of state.

I noticed the post on replaceing walls.........yep my sheet rock still shows the signs of his falls. But the physical movements like a fish.....often called a dance.......you can deal with. It is what it does to the brain.......the late mid stage is terrible, there is no reasonsing, a dematuring, a mind still there but unabel to back down.......yet he tells me when to change the oil and what kind of tires to buy.

My gentle kind husband has turned into a nurses night mare. Just last week another resident turned the tv off, he slugged this guy 2 times in the face.

no family history of the disease when we first tried to figure out what was wrong.........now we do. Never labled huntingtons but the movements are talked about from older family memebers.

Get info at HDSA.org

I think or............ huntingtons society of america.

There are nation wide networks, my close friends are now in our internet support group for caregivers, there are meetings all over the usa, also center of excellance at many major hospitals.......these often have social workers who will send someone to speak to your staff. I have done this.

When i have hd patients......i sit and talk to them, maybe read to them if they are far along.........see they understand cant express...and yes cause of my hubby I cry when I leave. Another life destroyed.......so often they are alone because of the illness they have ran off all friends and most of there family. The dedicated remain.

I go, take him candy, and talk......I am dedicated to his care the man I love is gone. .......his shell remains.

I am a married widdow.....

diane in tennessee

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