Symptoms of end-stage Parkinson's? When should hospice step in? - page 2

Hi there, I work at an ALF and I have a resident who has pretty severe Parkinson's. 87 years old, has had pneumonia twice in the past 3 months, 95 lbs soaking wet, can't do any of her ADL's besides... Read More

  1. by   tyvin
    It is more than likely she has DLB or PDD. If her Parkinson's is diagnosed and kosher she should go for another assessment to establish one or the other which could put her in a more eligible state when the time comes for hospice. Does she have a neurologist?

    What is her Diagnosis for the aricept? It appears from your description and the length of time she's had the disease that she has more going than the Parkinsons. I know that aricept is prescribed to parkinson's patients, but to really nail it down that it's helping cognition, you need a more refined Dx.

    Who does the medication reviews? Side effects from aricept are many, including drowsiness and weight loss. Is the benefit from the medication outweighing the side effects...

    I can't understand why people who should be in LTC stay in ALFs. I know it sounds much nicer to be in an ALF, but doesn't that make the resident ineligible for more services?

    Someone who knows their stuff about his could you please fill me in...

    As for her husband, there is always legal action if his decisions are in fact, not to the benefit of his wife, and in fact causing harm.

    Thank you,
  2. by   SickofLBD
    My mom was diagnosed with Parkinson's disease at Cleveland clinic in August of 2004. She had been falling for sometime & was being treated for some muscle disease. She was diagnosed with the kind that her brain did not trigger her left side to move. More of the stiffness kind than the tremors. In Nov. 2014 my dad past from Alzheimer's where my mother had been the primary caregiver. Exactly one week after his services were over (11/14/14) she started hallucinating. After spending a week at hospice facility to regulate her medications we were told she is in the final stages. She walked with her walker into the ambulance to go. Today, she barely speaks, eats soft foods, can't walk, ,incontinence, barely opens eyes, & her legs move nonstop without being sedated with phenobarbital. Is this the end,how long does have, or is it because she is not on the right meds? She takes Stalevo primarily, phenobarbital for sedation a stool softener, anxiety medicine for agitation& generic for nexium. What can I do as her primary care giver? We have her at home. Afraid I am not doing enough
  3. by   SickofLBD
    My mom was diagnosed with Parkinson's disease at Cleveland clinic in August of 2004. She had been falling for sometime & was being treated for some muscle disease. She was diagnosed with the kind that her brain did not trigger her left side to move. More of the stiffness kind than the tremors. In Nov. 2014 my dad past from Alzheimer's where my mother had been the primary caregiver. Exactly one week after his services were over (11/14/14) she started hallucinating. After doctoring with neurologist & psychiatrist her health has deteriorated over the last year and 11 months. Two weeks ago she spent a week at hospice facility to regulate her medications we were told she is in the final stages. She walked with her walker into the ambulance to go. Today, she barely speaks, eats soft foods, can't walk, ,incontinence, barely opens eyes, & her legs move nonstop without being sedated with phenobarbital. Is this the end,how long does have, or is it because she is not on the right meds? She takes Stalevo primarily, phenobarbital for sedation a stool softener, anxiety medicine for agitation& generic for nexium. What can I do as her primary care giver? We have her at home. Afraid I am not doing enough help!!!

close