It shouldn't have happened this way....

Specialties Hospice

Published

Okay, so I work part time with hospice. I like it. It's a nice break from feeling like I'm torturing souls their last days on earth up in ICU because their family of freeloaders are all living off their granddad's check....

Get a call from the hospital, one of our inpatients has died. It was expected, the poor woman was eat up with cancer, and threw a massive CVA from it. After being admitted for the CVA, family agreed to hospice. Pt has expressive aphasia....but I had her as a patient in ICU, and she recognized me when I came into the room, because she started crying and trying to talk. Did the PRN visit, adjusted a few meds, held her hand and talked to her. She kept throwing CVAs over the weekend and finally she died this morning.

I walk into the room, and I swear I wanted to go back out and choke the living daylights out of someone. Her BP had plummeted at 4am....and nobody called the family, nobody'd even called us. She's dead in the bed, and you can tell she was trying to crawl out of the bed, and her callbell was in the chair beside the bed...out of her reach. She was reaching over the rail, her eyes were still open and she was looking at the door. That woman was trying to call for help, for someone to hold her hand while she died, call her family, something, and the callbell was out of reach. She was stone cold, and rigor had set in. She'd been dead for hours.

I just closed the door, sat down by the bed and held her hand. I'd made all of our promises to her...we'd do everything we could to keep her from hurting, keep her from being scared, we'd be there when she needed us. Nothing happened on that floor last night -- no codes, nothing exciting that would explain why nobody checked on a dying hospice patient for hours -- nobody called her husband or children so they could come and be with her.

She died in the dark, alone.

What the heck is wrong with people?:crying2:

Specializes in ICU, Telemetry.

The patient was not in ICU, they were on the tele floor, MD's call on that one.

And I've had hospice patients in the ICU at this hospital, just to have the 1:2 ratio (those folks usually have money, pull, or politics). I've done my share of terminal extubations, etc., usually with the lung ca folks, the "shortness of breath" in the ER that turns out to be mets'd cancer, or the MI that's so catastrophic that the person's on 8 different drips; when the family decides to stop treatment, they often don't live long enough to get upstairs, much less home, unfortunately. I'd love it if all my hospice folks could pass at home, that's the goal.

Most of the time, the inpatient hospice is for the folks who live alone, since we don't do 24 hour home staffing -- if you have a sudden event (like this person), you either pass in the hospital or are sent to a local nursing home if you live more than a few days.

The hospital I used to work in wouldn't even keep a DNR in the ICU, much less a hospice pt -- you were made a DNR, you were immediately sent to the stepdown, even if it meant you died in the hallway or elevator.

In this case, the patient had been looking after her husband (Alzheimer's, lots of different comorbidities, we've had them both as patients); the children had to come in from out of state, and by the time they arrived, it was obvious the pt wasn't going to live but a few days. The husband was in no state to look after anyone, the adult kids were dealing with suddenly finding out how bad off their dad was and the fact that their mom was dying.

We're a small rural county, about 30,000 folks, if you count the livestock. Most of the kids grow up and move away, and we get a lot of elderly who are in this situation (nobody realizing how bad things were getting until something happens to the caregiver in the situation). Most of the time, we do a good job, and most of the nurses are good with the DNRs and hospice patients. In this case, they didn't, and I'm worried (like others have said) that this will be swept under the rug, explained away, and nothing done (until it happens to a patient that the powers that be actually care about...).

What our county really needs is an actual standalone hospice, so that the folks like this who either can't go home because there's no one there to be the caregiver can have a place of beauty and peace to spend their last hours. With the aging baby boomers and the fact that we don't have the multigenerational families under 1 roof like we used to, I'm afraid I'm going to see this situation more and more....

i can't believe that a professional nurse or cna, or whoever it was who took that 4 am bp didn't take action when they saw how it had plummeted. This is total negligence, as far as i can tell by what you have told us here. None of this had to happen the way it did. It is sad beyond words. One of our jobs in hospice is to let people die the way that they want to inasmuch as that is possible. Someone took that opportunity away from your hospice and, much more importantly, from that poor woman.

shame on all who were involved in turning a blind eye to this situation!!!

my hospice boss is out of town, but we will be discussing it the minute she gets back. While our hospice is affiliated with the hospital, when i'm working as a hospice nurse, i'm not supposed to put on my hospital employee hat -- i can access the write up area because i work in icu, not because i work in hospice. Believe me, i will be discussing this with my boss, and she's not gonna be happy with these folks...

It just breaks my heart. I called the family, and it was expected, but i just feel horrible for the patient. The family doesn't know the circumstances of the death.

Note to self: Never, ever let mom or dad be a patient at my hospital...

no one should ever die alone!

I am so sorry - there arent words for this, All I can do is take your story and bring it to my staff as a lesson for us all. I have long since learned that what goes on by you , goes on (or could) by me.

I hope in her memory, no one else has to die seeking comfort.

Thanks for sharing

Just imagine ALL the MANY others that have gone through the same thing, and nothing done about it!!

Specializes in Medsurg/ICU, Mental Health, Home Health.
no one should ever die alone!

Hey, does any other hospital have a program in which volunteers come and sit with dying patients? We do, and it's awesome. For whatever reason, sometimes families are unable to have a person in a patient's room at all times, and these volunteers come. They put on nice music, hold the patient's hand, read Scripture (if desired).

What a fantastic idea! Having volunteers sit by dying patients. As for reading scriptures? Well I think that the family needs to ok as the beliefs of the patient need to be kept. So, one could read even poetry. If this dying patient was a member of some church, that would be the way to do it.

Specializes in Medsurg/ICU, Mental Health, Home Health.
What a fantastic idea! Having volunteers sit by dying patients. As for reading scriptures? Well I think that the family needs to ok as the beliefs of the patient need to be kept. So, one could read even poetry. If this dying patient was a member of some church, that would be the way to do it.

Yeah, I didn't mean to imply that Scripture is read to everyone. A patient's religious preference, or lack thereof, is noted on his or her face sheet.

Specializes in Hospice, ONC, Tele, Med Surg, Endo/Output.
This just makes me sick to my stomach, Nerd. :scrying:

I've never been a hospice nurse, but I've worked so extensively with hospice over my years in long-term care that I've become fairly knowledgeable about caring for terminal patients. At my assisted living facility, dying residents are checked visually every 15-30 minutes when they're close to passing. We don't want them to die alone if we can possibly help it; if family can't be present, usually one of the caregivers or I will go in and sit with the resident until someone from hospice comes in, or until it's all over. In the meantime, they're medicated appropriately for any s/sx discomfort, repositioned, linens changed, whatever they need.....there's really no excuse to do any less.

So, if this kind of care can be handled by four caregivers, two medication aides, and one RN in a facility with 90 residents, why can't a hospital manage better? That is just inadequate medical care no matter how you slice it, and I hope the OP prevails in changing her hospital's handling of terminal patients. It's shameful, and heads need to roll.

In our hospice when a patient is imminent in an assisted living facility, RCFE, or home, we automatically put the pt on continuous care so they and their families are not alone, and so our hospice LVNs can assist with giving roxanol, lorazepam, and support the family. And each day an RN must visit the pt to collaborate with the LVN and the MD and make sure the patient is still eligible for CC. For the pt's in skilled nursing facilities we do daily nursing visits--called general inpatient, and we ask the nursing home staff to check the pt at least every hou,r and we try to warn the family to stay nearby, that their loved on is going to die soon. Communication with all participating parties is the key to a good death for the patient.

Specializes in ICU, Telemetry.

For those waiting for a update...

Well, it went boss to boss, and they tried the "oh, we didn't know..." know what? That you should call the family when a patient is about to die, regardless if they're hospice, a DNR, or a Full Code? Isn't that like nursing 101?

Didn't phase my boss. She said, "oh, I see, so you have a educational deficiency in your floor nurses.....so we'll just schedule all for a mandatory in-service, and it's going to be part of the new hire orientation so nobody will have this excuse -- er, have this lack of knowledge in the future, and we'll have everybody go thru a competency assessment as a part of the yearly assessment." Made the floor manager about poop out of her ears, since now there's no way to weasel out of it, and it's going to smack her budget for the training time. They may not care about the patient, but touching her budget, that got her attention.

The CNA and nurse on duty at the time both said "she never said," and "I told her and she didn't do anything" -- thru the grapevine, I heard there was a write up of both of them, which, honestly, is more than I expected from this floor (they think they can out nurse the Nightengale).

Specializes in med-surg, geriactrics, oncology, hospi.

Where I work, the pt. is already in hospital, usually for an extended period. Then when it's time for discharge or the pt. condition is decided to be terminal, some can stay & become "hospice".Family first agrees to it & the pt. must meet whatever criteria necessary after a consult c hospice staff. The same nurses do the care which is minimal & meet the families' needs & requests. The actual hospice nurse is employed somewhere else & rounds once a day. Our hospital uses the same hospice facility on all pts. I guess they contract c them for a period. This is FYI, not saying I agree c it. As mentioned earlier, I believe hospice SHOULD still be @ home-that's why it was created. Family want to participate in last days care but want the extra help & assurance that a hospice nurse in the home provides. The family can stay, eat, sleep near the pt. s worry of rules, intrusions, privacy, etc. At home it is as the pt. & family want. In hospital, not so. I have felt like I intruded on private family moments when the pt. was near death & hospice on our floor.Sometimes there are lots of family issues going on that are none of our business.

Specializes in med-surg, geriactrics, oncology, hospi.

I'm going to add, it is obvious that this is done very differently in differant states, etc. I appreciate everyones input regarding their experiences. Some posting here are getting rude."Incorrect?" I wrote what I've seen. The main importance should be the pts. needs.

Specializes in LTC, Sub-Acute, Hopsice.

I am not understanding why doing General Impatient in a hospital seems to be unheard of by most of you. If a patient is hospice appropriate, in a hospital and has uncontrolled symptoms, part of the Medicare Hospice Benefits is GIP. We don't do a lot of it in my hospice, but we do have a few each year. The patient usually is seen by the hospital's palliative team and the palliative doctor writes an order for a hospice evaluation. Once we say the patient is hospice appropriate for their diagnosis (using the same guidelines we use for home care hospice), they are then admitted to our hospice. In the hospital we do this in, they are actually "discharged" from the hospital and we drive the care. The hospital staff cares for them, administers the drugs and treatments as they would if they weren't on hospice. An RN and other team members visit daily and call the docs etc for orders for meds, and whatever is needed. The nurse at the hospital still has to take the orders from the doc as they cannot take "orders" from us.

Our goal is almost always to have the symptoms controlled and the patient discharges asap as WE are paying the hospital for the care. Discharge can be to home, to a nursing home or in rare cases they remain in the hospital til the end. BUT, in order for the patient to remain in the hospital, they have to have uncontrolled symptoms requiring increasing amounts of medications and interventions to keep them comfortable.

This is not a "state" rule, but part of the Medicare benefit.

And what happened to this poor soul? I have seen almost the same thing happen in the hospital we do GIP in. Even though they usually move the patient to the same floor when they are placed on GIP, the staff on that floor still seem to have a hard time understanding why we use the meds at the dosages we do and how a 30 minute wait can make the difference between comfort and hell to the patient.

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