In Bed with Dying Patient

Sometimes, a family member's behavior is so clouded by the grief and shock of a loss that we must be courageous enough to practice outside the box. Nurses Announcements Archive Article

My patient had been ejected from his car after hitting black ice. His prognosis for any recovery was a hairs-breath above zero. We knew he would never again walk this earth.

The family was large and streamed in and out of the room. All were polite and respectful. The wife dutifully provided explanations and "stability" for the large family and the throng of visitors.

From the periphery, I observed her. She kept her emotions in check, only occasionally tearing up. It almost seemed she were "hostessing" the "event". But her slow-motion movements belied a simmering grief that needed to be processed.

Having worked in ICU for ten years, I knew there was nothing humanly possible to change his course. I knew soon his heart--the heart that beat for so many years in unison with the woman--would stop, and the body that warmed her would grow cold, and the soul that united them and breathed life into her, would slip away.

The family and friends were "there" for the wife but they seemed unaware of the need I saw simmering just beneath her expression. And as the people kept calling I could sense a growing need within her. She began seeking my approval about letting anyone else in. I told her these would be the last. There was something we needed to do. The final visitors let the others who had gathered in the waiting room know that visitations would now cease.

I led the woman into the room. I rearranged the mechanical lines of life support and gently pulled the husband over to one side of the bed. I let down the rail.

"You need to lie beside him," I said.

She looked at me with utter astonishment. It was as if I had just told her I could bring transport her back to the day before when her husband was home and alive and this place never existed. Her tears streamed down her cheeks. She cried and cried as I helped her in beside him.

I assured her she would not be disturbed by anyone, for any reason. She could emerge from the room when she was ready and could stay as long as she needed. I would guard against any disturbance.

I covered her with a blanket and put chairs against the bed as a reminder to her that the railings were down. I handed her the call bell and closed the door and curtains behind me.

Some weeks later I received a letter from her. She had difficulty describing the torrent of emotions that enveloped her while she lay with her husband that final afternoon of his life. But she said that being able to fully embrace him provided her comfort and peace that would warm her for the rest of her life.

It's so simple, yet too often we lose focus on what really matters.

Have the courage to let your humanity lead the way.

Specializes in Med/Surg; ER; ICU.

That was beautiful - thank you. I agree with you that it often seems that the grieving person must feel like they are "hosting an event." My brother-in-law died of a glioblastoma 5 years ago, at home in his bedroom, but in a hospital bed. His wife was so busy entertaining the masses of people who came by that I don't think she ever had time to hold him one last time. The moment that touched me the most was when I walked upstairs when I thought no one else was there, and saw his 10 year old daughter kneeling beside the bed with her head on his chest. I turned around and left them alone but have always wondered if I should have helped her to sit on the bed, or sit and talk with her. I think I lost a moment there that she could have remembered forever.

Specializes in RN, BSN, CHDN.

This is a very powerful article and when I read it I am reminded why I became a nurse.

Specializes in med surg, oncology, outpt and hospice.

That is a wonderful story. Sometimes we forget how we can m,ake an impact on peoples lives either our patients or their families. :w00t:

Specializes in being a Credible Source.

That was a great article. Thank you for writing it.

My dad just passed away 2 weeks ago after a long bout with a variety of ailments including dementia. The last few years of his life had not been good to him and had been very hard on my step-mom. The last few months had been particularly hard as dad's behavior had become so uncontrolled that he had, of necessity, become house bound and her along with him.

She took wonderful care of him through those many dark months but it did take a toll on her and she built up a lot of resentment toward him because of some of things that he said and did.

The last night of his life, though, restored her soft-hearted, loving feelings for him. With all of us grown kids in attendance and taking turns sitting with him, she climbed into bed with him. Finally at about 11 pm she fell asleep. This was the first time in many months that they'd slept in the same bed. With the two of them sleeping together in the bed, the rest of us gathered in the living room while we each went in and spent time holding his hand. Finally at about 4 am his breathing changed dramatically and we knew that his last minutes were upon him. We awakened my step-mom and she laid there with him, holding him as his soul slipped away.

That last night sleeping together was such an incredibly restorative event for my step-mom.

Thank you, interleukin, for being so perceptive as to care so well for your patient and his wife.

You are a fabulous nurse.

Specializes in Alzheimer's, Geriatrics, Chem. Dep..
Have the courage to let your humanity lead the way.

Beautiful, thank you so much and what a gift of compassion you have.

Specializes in Mixed Level-1 ICU.

Thank you, dear colleagues. You are most kind and I am honored to be among a group of nurses like yourselves.

Specializes in Med/Surg/Ortho/HH/Radiology-Now Retired.

Bless you!

Thank you for sharing this with us.

nurses like us are what give hope for the future of the profession and humanity as a whole.

I'm retired now, but am always glad I 'bucked' the system many times to ensure my dying patient passed with someone there to love and care. Even if, on many occasions, it was just me.

Specializes in correctional, psych, ICU, CCU, ER.

I only wish that I had the chance to do this for my husband as he died. Your patient's wife was lucky to have had you there. You are an exceptional nurse. I wish there were more like you. Thank you.

It is this compassion that I saw during my stay in the hospital after removal of a malignant tumor, that I was inspired to become a nurse. This is what nursing is all about and its so great to see those who truly understand this and practice that mentality every day . Nurses have such impact on the patient and a grieving family, and I thank you all for being so wonderful. Lets spread this attitude. I hope to never have to see someone go through such a difficult time alone, whether be the patient or family. So tragic some people don't have any family or friends for support as they are ill or dying. All I remember during my stay at the hospital is laughing with the nurses, who came to see me with such bright smiles! I don't remember I was there battling cancer. I remember what amazing people I was blessed to provide me care. Thank you all for your love and having a heart for the people you care for. I strive to be like all of you. 2 yrs. away!

Specializes in critical Care/ICU-traveler.

Amazing story and idea.

If it were my spouse, I would want the same.

Thank you for the story.

Specializes in ER and Hospice.

This was really a wonderful article. I'm so glad you were brave enough to 'think outside the box' and give this family what they needed.

Specializes in ICU, SDU, OR, RR, Ortho, Hospice RN.

Thank you for such a great article.

Your compassion as a caring nurse shone through and left this woman with beautiful memories.