CPAP: Use It And Live
The majority of patients I encounter in the ICU/CCU who have a diagnosis of sleep apnea do not use their CPAP machines. Those who DO use them seem to have better outcomes.i work in a cardiac intensive care unit; ccu and sicu together. as an icu nurse, i'm well acquainted with the correlation between untreated sleep apnea and heart disease, stroke or sudden death. and i wish i had a dollar for every patient with "obstructive sleep apnea" listed as a diagnosis on their chart and no cpap with them when they're admitted to the icu.
pauline (not her real name) came in for an mi, proceeded to have a cabg and then stroked while still in the icu. her history lists "sleep apnea." when asked if she brought her cpap, she proudly held up a respironics bag. at bedtime, we opened it up and found an ancient cpap machine and full face mask that may have fit her 100 pounds ago (did i mention that she was 5 foot 0 inches and weighed 140 kg.?) the humidifier was missing a part and the hose had toothmarks in it -- canine or feline toothmarks.
"when was the last time you used this," i asked, thinking that maybe this is her spare and her real machine is at home on her bedside table.
"oh, i don't use it," she said. "i just brought it in because the office nurse told me i ought to."
mentally slapping myself on the side of my head, i ask "why don't you use it?"
"i don't like having all that air forced into me," she says. like that ventilator you're going to be stuck with is so much more comfortable? (i'm so proud that i managed to bite my tongue before actually saying this.) sure enough, she failed her first three extubation attempts, got trached and is now in a long term care facility on a ventilator.
hermann has a heartmate ii ventricular assist device. he was readmitted not too long ago with a recurrent drive line infection. as part of the admission process, i went over his problem list with him -- and of course obstructive sleep apnea was listed. "did you bring your cpap?" i asked.
"i don't need to use it anymore," he said. "i have my heartmate now!" (for all of you nurses who haven't worked with heartmates, they're a left ventricular assist device. they're used as bridge to transplant, or even destination therapy for heart failure. blood is routed from the left ventricle through the device and is returned to the aorta.)
worse, when i read over his clinic notes, there was a note from a nurse practitioner stating something to the effect of "patient refuses to use cpap at night. instructed to use it for 2 or 3 hours during the day when he's watching tv, so he'll get at least some benefit from it." really? i doubt that the man is have sleep apnea while he's watching tv. by definition, one needs to be sleeping to have sleep apnea.
then there was the man who came in for semi-elective valve surgery. once again, obstructive sleep apnea was noted on his problem list. "did you bring your cpap?" i asked. "oh, no," exclaimed his wife. "he doesn't like it, so he never uses it." it's been five months and counting -- he's still in the icu. the hypertension he developed subsequent to the untreated sleep apnea caused left ventricular hypertrophy and then he arrested post-op . . . .
i was thrilled when last week's patient swore he used his cpap faithfully. "i don't have it with me because i didn't think i needed it in the hospital and all," he explained. "but my wife can go home and get it."
his wife went home and got the cpap. interestingly enough, neither the patient or his wife had any idea how to set it up or how the mask fittings worked. what was he using the cpap for? a paperweight? he's on his third admission for heart failure and they're talking transplant now. i wonder if some of his problems could have been avoided had he been actually using the cpap he got four years ago.
it may be my imagination, but i swear there's a correlation between showing up with your cpap and knowing how to use it and eventual outcome . . . those that bring it and use it seem to do well and transfer out of the icu promptly. those who don't bring it, bring only parts of it, can't set it up or don't even pretend to use it usually do poorly. maybe it's just that those who actually use their cpap are more compliant patients in general, and compliant patients do better, but i swear that treating sleep apnea enhances patient outcomes.
the woman i admitted today -- with obstructive sleep apnea and heart disease -- claims she "has sleep apnea, but i don't need to use a cpap. they told me i only had to use it at night, and i sleep during the day." i attempted to educate her on the correlation between sleep apnea and heart disease. "oh," she said. "i guess i could use it, but it's just so difficult. you have no idea how difficult it is, strapping that thing on your face and trying to go to sleep."
i do know how difficult it is. i strap one on every night when i go to sleep -- and in the afternoon when i take a nap, too. it's uncomfortable, unsexy, inconvenient and unnatural. it just might save your life, though.
cpap: use it and live.
Sep 16, '10Wow! You just gave me an education of the benefits of CPAP. I have had so many patients that had it ordered and never used it. It is bulky and difficult. Maybe if they had some patient teaching like yours they would think twice. I know that I will certainly try to make the case for this therapy the next time I have a patient that is noncompliant. Thanks for the mini course.Sep 16, '10It is a difficult modification to a life style(as you already know). My husband has sleep apnea, and it took me threatening to LEAVE him if he did not do a sleep study...You have no idea how many time I would stay awake at night and "WAIT" for him to take his next breath....and then "accidentally" poke at him to get him to breath again...ugghhh......the doctor finally told him to "COWBOY UP" he said, "do you want to see your son grow up...or do you want to die?" Sometimes it takes a little "Shock" teaching....to let patients know how serious a condition can become...well, now, after months of adjustment, my hubby CAN'T sleep without his CPAP and I am now able to get some sleep too!Sep 17, '10I have a CPAP and I use it every night. When I have patients and they are non-compliant, and do the "you don't know what it's like" I tell them I do, I have one, and I use it.
I had one guy ask me how often I used it. I said, "Every time I go to sleep and plan on waking up."Sep 17, '10Quote from nerdtonurse?that's a great line! wish i'd thought of it.i had one guy ask me how often i used it. i said, "every time i go to sleep and plan on waking up."
Quote from mandycmy husband has sleep apnea as well, and i can relate to lying awake at night waiting for him to take a breath. only i'd shake him and tell him to breathe. if he complained about it -- usually he didn't because he's never even remember -- i'd tell him he needed to get a sleep study. finally he said he would if i would. i did. now we have matching cpap machines! i'd never dream of going to sleep without it, but dh still "forgets" or "falls asleep on the couch" without it. with enough nagging, maybe he'll be as compliant as your hubby!it is a difficult modification to a life style(as you already know). my husband has sleep apnea, and it took me threatening to leave him if he did not do a sleep study...you have no idea how many time i would stay awake at night and "wait" for him to take his next breath....and then "accidentally" poke at him to get him to breath again...ugghhh......the doctor finally told him to "cowboy up" he said, "do you want to see your son grow up...or do you want to die?" sometimes it takes a little "shock" teaching....to let patients know how serious a condition can become...well, now, after months of adjustment, my hubby can't sleep without his cpap and i am now able to get some sleep too!Sep 17, '10Just like the American Express card ad: Don't leave home without it, my CPAP travels where ever I go, including AN headquarters.
The machine is the size of a large tissue box, found Profile lite gel masks work best and saved my life past 16 years .
Only time not worn is during power outage--- then I'm praying for the electric company's quick fix.Sep 18, '10Quote from nrskarenrni used my flexible spending account last year and bought a small travel cpap with an integrated battery pack and option to charge through my car (or marine) battery. i've had the power go out once since then, and i was so thankful! plus, last year when the blizzards kept me in the hospital for several days, i could use the battery pack and not have to sleep near an outlet; charged during the night when i was working. it was great! i could never have slept otherwise.just like the american express card ad: don't leave home without it, my cpap travels where ever i go, including an headquarters.
the machine is the size of a large tissue box, found profile lite gel masks work best and saved my life past 16 years .
only time not worn is during power outage--- then i'm praying for the electric company's quick fix.Sep 19, '10I have question for nurses that use them. Did it force you to move of your bedroom because it is noisy and keep your spouse awake?Sep 19, '10the noise made by the cpap is not even audible over the sounds of the fan i keep on for white noise. but the sounds of gasping/snorting/struggling for breath drove us to sleep in separate bedrooms until we each had our own cpap.Sep 19, '10I want you to know that because of your post and only because of your post, I am going to go unpack my darn cpap machine that has been living in the bag in which I moved it two weeks ago and set it up - and tonight when I go to bed I will strap the thing on.
Only because of you.
ThxSep 19, '10Quote from scstxrn[font="comic sans ms"]i am so glad you're going to use it!! let me know how it goes. (feel free to pm me for moral support!)i want you to know that because of your post and only because of your post, i am going to go unpack my darn cpap machine that has been living in the bag in which i moved it two weeks ago and set it up - and tonight when i go to bed i will strap the thing on.
only because of you.
thxSep 22, '10I have been on my CPAP for 8 years now, every since my sleep study showed I stopped breathing an average of 88 times an hour. That is correct, 88 times an hour. I never realized that when you woke up from sleeping at night that you were suppose to feel refreshed, not crabby, nauseated and weak. I put that puppy on and haven't looked back. I love my CPAP and haven't gone a night without it since the first night it was delivered. I took to it like a duck to water. As for the noise? My darling hubby tells me it is a lot quieter than my snoring was!Sep 22, '10After just being diagnosed with moderate positional sleep apnea (25 apneic/hypopnic episodes per hour) and saturation levels dropping to 74% two weeks ago, I faithfully use my CPAP every night. Although the first few nights were difficult (the nasal pillows were too large), I actually look forward to sleeping with it now. It isn't as uncomfortable as one thinks, as long as there are no leaks, the straps are adjusted correctly and the machine is functioning properly. With adequate weight loss, I'm sure this machine will go away with pounds lost.
If you have patients under your care who are resistant to this using device, please have a respiratory therapist or consultant visit them for proper fitting and education about their disease; it may be the difference between life or death.
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