CPAP: Use It And Live - page 2

i work in a cardiac intensive care unit; ccu and sicu together. as an icu nurse, i'm well acquainted with the correlation between untreated sleep apnea and heart disease, stroke or sudden death. ... Read More

  1. Visit  pwp1289 profile page
    1
    my husband( x 10 years) and I ( x 6 mos) both have c-pap machines--I used the 'nasal pillow' instead of a mask--the first thing we look at when we travel is---"where are the elec outlets?"--- we always carry an extension cord or 2 with us( we learned our lesson)--will be looking into the travel size with battery pack
    cherryames1949 likes this.
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  3. Visit  Ruby Vee profile page
    0
    Quote from pwp1289
    my husband( x 10 years) and i ( x 6 mos) both have c-pap machines--i used the 'nasal pillow' instead of a mask--the first thing we look at when we travel is---"where are the elec outlets?"--- we always carry an extension cord or 2 with us( we learned our lesson)--will be looking into the travel size with battery pack
    extension cords are a great idea. what else do you travel with?
  4. Visit  diane227 profile page
    1
    You got me to thinking. I have a horrible sleep problem and I wake up with a sore throat from snoring. About two years ago I had a sleep study and the doctor told me that I was on the border of needing a CPAP. This story is a wake up call. I might reconsider getting one. Does it help you sleep better? Do you wake up less? I NEVER feel fully rested, ever.
    Kooky Korky likes this.
  5. Visit  pwp1289 profile page
    1
    I would always get very tired after work and my husband often found me asleep sitting at the kitchen table! ! NO more--I no longer have that great letdown in the afternoon--and I do wake up less. And now that I'm sleeping better so is my husband--as he no longer waits for me to start breathing again------ please go have a sleep study done, I should have listened to my husband sooner....
    cherryames1949 likes this.
  6. Visit  Ruby Vee profile page
    0
    Quote from diane227
    you got me to thinking. i have a horrible sleep problem and i wake up with a sore throat from snoring. about two years ago i had a sleep study and the doctor told me that i was on the border of needing a cpap. this story is a wake up call. i might reconsider getting one. does it help you sleep better? do you wake up less? i never feel fully rested, ever.
    please get another sleep study. i sleep much better with my cpap -- i don't wake up as often and i feel more rested. my husband sleeps better because he doesn't have to listen to me gasp and snort and wake up panicked because i can't breathe. go for us -- and let us know how you do!
  7. Visit  zbb13 profile page
    2
    My husband gasped and choked and kept me awake with his incredibly loud snoring for years. I convinced him to get tested, and we found he has major sleep apnea. He now has a nasal pillow CPAP. When the tubes get moved around a little, the noise is quite loud, but otherwise it is a soft whisper, and it sure beats the snoring and waiting for him to breathe again.

    By the way, Hubby had a heart attack a few years ago, when in his early forties. He has a large neck, and the ENT said his apnea is in the dangerous range (same as football players with 18 inch or wider necks who have issues with sleep apnea). I have to remind him to wear the CPAP constantly, but I am so glad he has it. He seems to have more energy during the day, too. In the past, he would fall asleep the moment he had a chance to be still for a moment (like one time when we were driving on the expressway). CPAP truly saves lives!
    RetRN77 and cherryames1949 like this.
  8. Visit  pavanneh profile page
    1
    Well....ashamed to say...I have not been using my machine. Partly because of the flu I have had and the coughing at night is hugely annoying with the mask. But, it is getting better so I am going to start uing it again. And I am a RespiratoryTherapist so I know better. But it is very uncomfortable to use and I feel like I am suffocating sometimes. But....I have been able to keep it on most nights. Thanks for the great post and incentive to keep using it. No matter what.
    cherryames1949 likes this.
  9. Visit  pwp1289 profile page
    0
    I am using a 'nasal pillow' with my cpap and find it comfortable--see what your pulmonologist suggests--there are many many types of masks for you to choose from--there is even a site for masks that have a return policy( for a fee of course) but in any case ---continue using your cpap
  10. Visit  Ruby Vee profile page
    2
    Quote from pavanneh
    well....ashamed to say...i have not been using my machine. partly because of the flu i have had and the coughing at night is hugely annoying with the mask. but, it is getting better so i am going to start uing it again. and i am a respiratorytherapist so i know better. but it is very uncomfortable to use and i feel like i am suffocating sometimes. but....i have been able to keep it on most nights. thanks for the great post and incentive to keep using it. no matter what.
    the flu is an issue. some people get full face masks for when their noses are stuffed up, but for the most part i've found that once i put the mask on, it "blasts through" the stuffiness. coughing is challenging -- but if you paste your tongue up against the back of your upper front teeth on the roof of your mouth, you can cough without the air from your pap going straight out your mouth. cpaptalk.com is a wealth of information about living with cpap and making it more comfortable.

    http://cpaptalk.com
    blueheaven and cherryames1949 like this.
  11. Visit  bradleau profile page
    2
    I struggled for over 3 months to get used to my CPAP. I am hard headed about a lot of things, and would not let this beat me. My biggest problem was getting treated for the nasal congestion that I had. No full face masks back in the early 90's. So if I was not able to breath thru my nose, the CPAP did not do any good. But now all that is controlled, I am on my 3rd or 4th machine, the insurance company allows more than one mask/ gear replacement a year. I panic if told I can not use my machine. Love it, took it to Europe, too. And Camping...I have one that is just for that use.
    I was diagnosed in 1990 after falling asleep one too many times on the interstate...only an 8 hr shift worked and I did not feel sleepy or tired. Until the car horns started blaring, I did not know I was drifting over 4+ lanes of traffic. No, I did not know what my problem was, but I had a good internist that directed me to the ONLY sleep clinic in town. Now there are several sleep clinics.
    I have been on a vent since then due to complications from another surgery that led to infection and surgery in my lungs. A vent and a trach are NOT fun. Just on a CPAP now. Had to have O2 for awhile, once I got home. LOVE MY CPAP.
    Last edit by bradleau on Oct 7, '10 : Reason: clarification
    cherryames1949 and Ruby Vee like this.
  12. Visit  noahsmama profile page
    1
    Ok, Ok already -- I'll start using mine again! I hate the **** thing, but you're right -- heart failure and/or being on a ventilator would suck even more. I KNOW this, but each night somehow it's easier to leave the darned thing off -- or "try" for 30 minutes and then pull it off. I've managed to get used to it before, so I can get used to it again! (got my current one recently and haven't gained/lost weight so I'm sure it still fits -- just don't want to use it).

    And I'll try even harder to lose weight in the hopes that then I won't need the darned thing at all! (but recognizing that weight loss may or may not make my sleep apnea go away).

    Thanks for a great post!
    Last edit by dianah on Oct 12, '10 : Reason: Terms of Service
    cherryames1949 likes this.
  13. Visit  meggzluv profile page
    0
    I have sleep apnea as well. COMPLEX/MIXED sleep apnea to be specific! For those of you who don't know, that means a combination of obstructive and central. Had sinus surgery back in 2005 that supposedly [according to sleep doc and sleep study] brought my originally purely obstructive SA down to a level that didn't require treatment. In 2009, I begged them to give me a repeat sleep study b/c I felt like the sleep apnea was back. The docs poo-poo'ed me and said no no no, it's just season, it's winter and you're extra tired from the lack of sunlight. Well, I insisted and they finally ordered the study. SURE ENOUGH, results said now that my sleep apnea had gone untreated for years (due to my deviated septum returning to it's pre-op position etc), I had severe complex SA. Awesome. Now I wear a non-vented nasal pillow-only CPAP and it is one of my best friends To the original poster--yes, I definitely believe CPAP compliance directly relates to cardiac outcomes, etc. Low levels of oxygen for 8 hours [or however long you sleep] and the lack of restful sleep that so many body systems require to recuperate every night is soooo detrimental to everyone's health, whether they have apparent cardiac issues or not.
    big kudos on writing this and big kudos to the other nurses who use their ownnn CPAPs faithfully!! To those of you who don't, I swearrrr your life will improve tenfold or more!!! You are more rested, pleasant, clear-thinking etc.
  14. Visit  emilynicole87 profile page
    3
    Thank you so much for this post! I work in a Sub-acute facility that only admits Ventilator Dependent Respiratory Failure patients. I see way to many patients that have obstructive sleep apnea with or without obesity who were non-compliant with their CPAPs and other regimens. Needless to say, they end up in my unit with VDRF and a laundry list of co-morbidities, sometimes with an inability to ever wean off their trach or vent. Strapping on that CPAP every night is a cake walk compared to a life on permanent Trach/Ventilator Therapy! Kudos for continuing to educate and intervene with your patients before it's too late

    RetRN77, NRSKarenRN, and blueheaven like this.


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