Sorry guys, I have to vent so this may be a little lenghty... Approx. week and a half ago went to see my PCP for painful joints (since X-mas), hair falling out, intolerance to cold, irritable and weird rash on my face (not the butterfly rash that goes along with Lupas) and extreme fatigue. Right away doc orders two blood tests(ANA and sed rate) and says there is possibility i may have Lupas. I anxiously wait over four days for the results and I"M the one who had to call the office for the results!!:angryfire Anyway, the medical assistant tells me that ANA came back positive but sed rate was negative. Then tells me the Doc wants me to have another ANA, c-reactive protein and a anti-DNA antibody test. Had those done very next day and waited 6DAYS for those results and I'm the one who had to call for them AGAIN!!!:angryfire I ask her(the MA) why did no one call me before this with the results, that I have been on edge all these days waiting. She says that they had the results days ago but that Doc wrote on the lab OK, so this MA said she didn't think she had to call me. Appareantly, they only call if the doc tells them to. I kinda went off on her and said that regardless of whether or not my tests were ok that I felt it was common courtesy to call me and let me know what was going on especially since she seen me in the office a short time ago and knew how worked up I was at the possibility of having Lu[pas. Ok here comes the part where I wanted to reach through the phone and ring her neck... The MA rudely informs me that she doesn't have time to call everyone with normal lab results, however the klincher was my second ANA was still positive, but everything else came back negative. I question her as to why my ANA is still positve and she says she has no idea but that if I am that worried, she will leave note for Doc to call me in the am.
Can anyone please let me know if I am overreacting to this??? If I would have never called them, I wouldn't even know that my ANA is still positive!!! And does anyone know what could possibly be causing me to be positive??
Thanks so much in advance, and again I apologize for the length.
Mar 30, '05
My dad had an MD who refused to hear more than one symptom at a time... If you had been seeing this doc OP you would have had to make 6 visits, one for each symptom you listed above... My dad made an appt for his night sweats (Oh you're using too many blankets) on the way out he made his next appt where he then wanted to talk about his SOB (oh it's your asthma) then another appt to discuss his growing fatigue (not so much time at the gym Bob...) then the next for...
After several of these appts the doctor's nurse made a comment to him "Bob, I think you're a hypochondriac!" Long story short less than a year later after being dx'd for mesothelioma (initiated by a complimentary CT scan from roaming attorneys while at work) he gathered all the follow up material from the hospital's subsequent scans and showed up in the doctors office, dropped all the material in front of said nurse and replied "Still think I'm a hypochondriac NOW?!" One week later he was informed he was terminal.
You absolutely have to take your healthcare into your own hands, make those calls (if they have a habit of not calling you then call them every day until you get your answers), go to a new PCP if you're not satisfied with the care you're receiving, and question, question, question everything you're told. You have to fight for your own health because the honest truth is that no one cares about it as much as you do.
Last edit by mariedoreen on Mar 30, '05