A Patient's Perspective - To all of the Nurses at allnurses.com - page 2

To all of the Nurses at AllNurses.com, Of course I should start with some basic background info. I have dealt with Crohn's disease since 1989 when I was 17 years old. I've had some rough times... Read More

  1. by   Pixie.RN
    Thank you, OP, for your words. I got teary. I am a little (okay, maybe more than a little) burned out after a decade of ER + trauma nursing with the horrors of war (big reality check/perspective adjustment), and I always strive to be compassionate. It's not easy. This past week I came very close to leaving patient care completely for an informatics position, but at the last moment I decided to apply for a position that would take me only halfway from the clinical arena, and I was overjoyed to be offered that position. Your post reminds me of why I don't want to completely leave the bedside, and why I always make sure my ER patients have their callbells in hand — often it's the little things for us nurses that are the big things for the patients — a warm blanket, crushed ice, an update, a smile.

    OP, one of my close family members has Crohns as does a good friend of my family. I have seen their struggles, and I wish you continued improvement to health!
  2. by   dbabz
    This made me cry. I'm not a nurse, not even in Nursing School yet, but this motivated me to study that much harder. My son was diagnosed with Crohn's at age 11 and has not had any hospital stays (other than outpatient colonoscopy) but I am eternally grateful to the nurses who cared for and will care for him. Please know that your post gave me the energy to jump through all of the hoops I need to for admission, like Intro to Computers class (really? I'm using one right now.) Here's to good health in your future.
  3. by   sherri64
    You have been through so much and I hope that the healing process continues for you. I'm glad to know that there were nurses there to give you support and provide what you call those little things. Having also been a patient too many times, along with being a nurse, I understand where you are coming from. And it has made me a better nurse. Getting fresh ice water, a wash cloth, pain meds, and explanations are an important part of care. It means everything when you are the one in the bed. No matter how busy I got or how difficult of a shift I was having, I never forgot to remember why I was there: it was for people like you. I no longer work the floor but I still advocate for patient rights.
  4. by   kdkout
    Quote from AnonBoston
    I don't mean to toot my own horn here, but I literally cannot wrap my brain around the concept of an entitled and demeaning approach from a patient. Why would anyone want to treat their nurses with anything but respect and gratitude? You are there for us at our worst moments. Just because I am in pain and feel awful and scared, does not give me the right to treat other people like crap.

    Okay, that sounded a bit self-congratulatory...but I really don't get it. The way I see it, the more respect you show your nurses, the more aware and motivated to help you they're going to be. Not only that, but you deserve our respect. You're emptying my commode..."oh, wow, I'm really sorry, that's so gross...agghhh...thank you, that couldn't have been pleasant" And I get a smile in return, "It's okay!"

    Amazing.
    This. The reason you cant "wrap your brain around a demeaning & entitled approach from a patient" is because you are naturally a kind human being who just wants to be treated like a human being. Simple as that. You would not believe some of the abuse we nurses put up with. Honestly. You cant make up the stuff we see and deal with. Thank you so much for being kind. Your post was so insightful for me and I will treasure it. Actually, I'll probably print it out and keep it with me as a reminder that, sometimes, it really is the little things that matter.

    What you are going through sounds horrible. Horrible. Scary. Expensive....and I kept thinking of the words "cumulative grief." Chronic illness is rough! Such vulnerability. My dtr has some health issues, and I've had some of my own....none as difficult as what you are going through.....but being a patient and "on the other side" helps remind us to be better nurses.

    Thank you for your post. Best wishes for a fast recovery with years of normalcy to follow!

    Oh, and a tip - make sure you mention "FYI, I'm a really hard stick" when someone wants to draw blood or put an IV you.....no sending in nursing students or newbie phlebotomists/nurses to try on someone like you. No need to be a pin cushion unnecessarily. Sometimes this cant be prevented, but sometimes it can.

    Hugs to you
  5. by   Chaya
    Some of our patients are entitled/ have an attitude but I truly believe most are just scared, in pain and preoccupied.I can't tell you how much we appreciate you making a special effort to give us your kind words. We don't hear them often and don't really expect to, but when someone lets us know our efforts made a difference to them, we get that extra boost that helps us go in and start our shift knowing just why we are there.
  6. by   cricket0414
    What a lovely letter. I am a licensed nurse but do not practice at the moment. Instead I am a HUC in a Neuro Icu. I see all the wonderful things our nurses do. Unfortunately, a lot of our patients are not even awake as most are intubated. Families are mostly wonderful but I would hope that nurses would allow that perhaps that one entitled or nasty patient or family perhaps just cannot help themselves, whether it is from the disease itself, pain or just being fed up and frustrated. As a former nurse and unit member, I am not expecting a thank you, I just want the patients to feel better and be pain free. A thank you is very nice though.
  7. by   jessicampoplin
    Thank you so much for sharing your story. I love being a nurse and when I hear stories like yours it just reaffirms that I am doing what I feel like I was called to do in life. Bless you.
  8. by   teleRN0515
    Thank you for this. I got licensed in June of last year and started out in a critical care unit (where let's be honest.. You don't get a lot of gratitude bc most of patients are unconscious) and later moved to a telemetry floor. I felt like a failure at first but have now learned there are reasons for every situation you're put into. Mine is getting to see the smiles on the mornings I say goodbye to patients who say "go get some rest, and thanks for all you've done..."
  9. by   Hgpauline
    I am in awe of your strength. You are an inspiration to me. My mom passed away at a young age a few years back. She suffered from colon cancer, diabetes, and intestinal and stomach tumors. I am working towards nursing school because I have seen both sides. I know the feeling I get when I would drive to stay with her at the hospital. A sinking, aching pain in my gut. Fear that this may be her last day. She had wonderful nurses who helped her through the end. I stayed 16 hours at the hospital as she slowly and painlessly left this world. I remember looking to nurses to tell me this is a joke,I am a young new mom and I need her with me. I need her advice and I need her to be the grandma she always wanted to be. I wanted a nurse to tell me that if I do this or that I will get her back. They cried with me and some had to leave the room b/c they were swept away with emotion. I guess what I am saying is that I was gone and freaking out. What I needed is what those nurses gave me. ...strength and unwavering compassion. Nurses are there for the patients and the families. The nurses and I knew morphine would be necessary in order to manage her pain. I remember that the doctor did not give ok until near 2 hours later. My mom was writhing in pain. The nurses were there. Nurses were there even when a decision was not in their hands. Always there. That means more than having total medical power in my opinion. Making the most out of a dire situation. Thank you nurses for being so wonderful to patients line my beautiful mother and for helping the families. I have run into a few prenursing school students who say they would love to work with kids but then they have to deal with the parents. I think that is so unbelievably sad. A patient is more than a person in a bed...they yoo have people who love them. I have had time to heal and I want to give back the gift that was given me when I become a nurse. Thank you all!
  10. by   SmilingBluEyes
    Thank you for sharing.....it's always important to gain perspective as a nurse for me. And hugs to you.....Crohn's is debilitating. You seem to handle your troubles with such grace....
  11. by   RNtoACGNP
    Dear poster, you have really been through a lot and you are so, so strong and brave. Your post completely made my day and you reminded me of why I became a nurse and why I really do love what I do, even at this time in my life that I am feeling the burn out and exhaustion. Thank you for this, I think you are going to make a lot of nurses smile. Good luck to you.
  12. by   Limik
    Thank you for sharing your experiences with us. As both a nurse and a patient I can tell you that I am in awe of people like yourself that can go through so much and still want to reach out and help others...bc that is exactly what your words have done...helped any of us who feel like our hard work goes unnoticed, or shows us that even the small things we can do for our patients have a huge impact. Thank you for reinforcing my conviction that nursing is the place I belong. I wish nothing but good health and happy future days ahead for you. Thanks again for your words!
  13. by   AnonBoston
    Quote from dbabz
    This made me cry. I'm not a nurse, not even in Nursing School yet, but this motivated me to study that much harder. My son was diagnosed with Crohn's at age 11 and has not had any hospital stays (other than outpatient colonoscopy) but I am eternally grateful to the nurses who cared for and will care for him. Please know that your post gave me the energy to jump through all of the hoops I need to for admission, like Intro to Computers class (really? I'm using one right now.) Here's to good health in your future.
    Thank you DBabz...now you're making me a bit teary! I also wish your son good and improved health in his future, and wish you luck with your education.

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