recent colonoscopy experience - page 8

I had my first colonoscopy last Friday. I am 46 and my mother has had two surgeries for colon CA, so I felt pretty good about being so responsible. I went to every website I could find and... Read More

  1. Visit  curleysue profile page
    0
    Hi all-
    I just had a colonoscopy and endoscopy yesterday due to my hemoglobin and hematocrit falling rapidly for reasons that we don't know. So my doc said he wanted to find out if I was bleeding from an ulcer or other spots in my GI tract. Because of my chronic pain and daily use of narcotics for it, I am very tolerant to versed and demerol. SO the procedure was done in the OR where I was given 10 of versed at first and then followed by propofol. I don't remember a thing. I just remember waking up in recovery room. It was very easy and I had an awsome anesthesiologist!

    However I am a different case. I don't think they do it with propofol in the OR too many times. BUt everything turned out okay. They didn't find any bleeding what so ever. Which I was rather disapointed about. I wish they found a source of my low hemaglobin but now I have to have a CT scan and possible exploritory laporotomy?!! I am getting two units of blood tomarrow cause I am so low. They tested my iron levels and so forth and everything was normal. SO we have no idea where my bleeding is coming from. I am really scared! I don't know what it is?!

    Anyways, just thought I would share my experience. Take care. Amy
  2. Visit  spaniel profile page
    0
    Cannot thank you enough CurleySue,for your reply. Despite your own troubles, you are taking the time out to tell us of what I think really might be a good option for some of us who tolerate the colonoscopy poorly. I also would want the Propofol only with an anesthesiologsit or CRNA available.
    Please keep us posted on your health. Thoughts and prayers with you.
  3. Visit  curleysue profile page
    0
    Spaniel--
    You welcome for the post. Actually I think propofol is an excellent drug to use for scope procedures cause it has a short half life and patients who are on a lot of pain meds for chronic pain are usually tolerant to versed or other drugs given.

    My first endoscopy was done in a procedure room with the surgeon and a nurse. They kept giving me 5mg Versed increments and I would still say "i am still awake". All in all they ended up giving me 25mg versed!! Enough to kill a person if I wasn't so tolerant. That surgeon said it was really important for me the next procedure I had done to tell the doctors that experience and request to have it done in the OR with propofol.

    I think in some hospitals nursing are getting delegated to give propofol or at least they are trying to convince the hospital that they can give it safely. As long as oxygen equipment is nearby and so forth.

    All I can say is propofol is a wonderful medication! Puts you out right away!

    Oh by the way my CBC levels have dropped even more after yesterday's infusion. I am super scared! Where am I bleeding? My doctor suggested that there is a small chance that my body has stopped making blood cells?! How can that be? I am so confused and worried. This morning I was so so pale and so weak is was horrible. Maybe there is something wrong with my bone marrow?

    Take care, Culeysue.
  4. Visit  theplugger profile page
    0
    Hi,
    I'm a retired RN who has had only a few personal healthcare experiences, most of them very positive. For example, when I needed a rhc and pulmonary angio I was full of anxiety only to find that the procedure was not nearly as horrid as my mind had made it out to be. For years I've been urged to have a screening colonoscopy just because I'm 65. At age 60 I was on coumadin for multiple pe's which had caused pulmonary hypertension, so when the subject of screening colonoscopy came up the surgeon recommended a barium enema instead since I was on coumadin at that time. I have since been pronounced free of pe's and ph so now decided I should go along with my physician's urging to have the screening colonoscopy, especially after my husband had one a few months ago which revealed some pre-cancerous polyps which were removed. He went through the prep and the procedure quite well saying "it wasn't so bad", so this allayed my anxiety considerably. I figured the prep would be the worst part (remembering the horrendous barium enema prep), and even though it was different, it didn't let me down. I was on clears the day before (this was fine), then 3T phosphosoda in 4 oz 7-Up followed by 12 oz clears at 12:30pm. That's when the fun began. I even worked at crocheting on an afghan while seated on the throne for a couple hours. The resulting discharge of cautic liquid scalded my butt raw. I could barely stand the pain of cleaning up between expulsions! A nurse called me around 5pm asking how the prep was going. When I told her of my woes, she recommended Tucks and vaseline to sooth the pain. We had no Tucks. I only wish that recommendation had been included in the colon prep instructions so I would have been prepared, but I did have some vaseline and it did help considerably. The next dose of 3T phosphosoda was ingested at 6:30pm sending me back to the throne, but I was so exhausted by 8pm that I had to lie down. Six pads, a couple soiled towels and 3 pairs of underwear later I finally was able to get a little sleep. Luckily my procedure was scheduled for 12:45pm so I was able to get up and enjoy my (black) decaf before the npo at 8:45a, congratulating myself on surviving the prep and now looking forward to getting on with it, getting it over with. From here on I was feeling like I was "home free"...they would give me conscious sedation, I would still be awake enough to watch the screen during the scope. I guess they gave me some Versed or something, but it didn't cause any amnesia nor did it ease the severe pain! I was in such agony three or four different times that I was ready to climb off that table, and all the while the nurse kept assuring me "you're doing just fine". I was NOT doing fine, I have a pretty high pain threshhold and this was nearly above and beyond my tolerance!! It didn't last long, perhaps 15 minutes, and the pain subsided immediately at the end of the procedure. When I returned to the recovery area the nurse observed "gee, you're not sleepy at all, you're really wide awake". Very astute observance. In retrospect I wonder if I didn't get enough Versed (or whatever), and if the doctor didn't just shove that scope along too fast. Maybe he had not had lunch yet? At any rate, I'm glad the scope came out clean so I don't need another colonoscopy for 10 more years, because I don't think I could go through that again very soon. Maybe in 10 years they'll have better methods so I won't have to suffer so.
    The reason I'm posting this here is because I felt the need to vent, to tell of my experience, but I wouldn't/won't pass my experience on to my friends and loved ones so as not to scare them because everyone else's experience has been much more positive and less painful.
  5. Visit  ibnrn profile page
    0
    Quote from theplugger
    Hi,
    I'm a retired RN who has had only a few personal healthcare experiences, most of them very positive. For example, when I needed a rhc and pulmonary angio I was full of anxiety only to find that the procedure was not nearly as horrid as my mind had made it out to be. For years I've been urged to have a screening colonoscopy just because I'm 65. At age 60 I was on coumadin for multiple pe's which had caused pulmonary hypertension, so when the subject of screening colonoscopy came up the surgeon recommended a barium enema instead since I was on coumadin at that time. I have since been pronounced free of pe's and ph so now decided I should go along with my physician's urging to have the screening colonoscopy, especially after my husband had one a few months ago which revealed some pre-cancerous polyps which were removed. He went through the prep and the procedure quite well saying "it wasn't so bad", so this allayed my anxiety considerably. I figured the prep would be the worst part (remembering the horrendous barium enema prep), and even though it was different, it didn't let me down. I was on clears the day before (this was fine), then 3T phosphosoda in 4 oz 7-Up followed by 12 oz clears at 12:30pm. That's when the fun began. I even worked at crocheting on an afghan while seated on the throne for a couple hours. The resulting discharge of cautic liquid scalded my butt raw. I could barely stand the pain of cleaning up between expulsions! A nurse called me around 5pm asking how the prep was going. When I told her of my woes, she recommended Tucks and vaseline to sooth the pain. We had no Tucks. I only wish that recommendation had been included in the colon prep instructions so I would have been prepared, but I did have some vaseline and it did help considerably. The next dose of 3T phosphosoda was ingested at 6:30pm sending me back to the throne, but I was so exhausted by 8pm that I had to lie down. Six pads, a couple soiled towels and 3 pairs of underwear later I finally was able to get a little sleep. Luckily my procedure was scheduled for 12:45pm so I was able to get up and enjoy my (black) decaf before the npo at 8:45a, congratulating myself on surviving the prep and now looking forward to getting on with it, getting it over with. From here on I was feeling like I was "home free"...they would give me conscious sedation, I would still be awake enough to watch the screen during the scope. I guess they gave me some Versed or something, but it didn't cause any amnesia nor did it ease the severe pain! I was in such agony three or four different times that I was ready to climb off that table, and all the while the nurse kept assuring me "you're doing just fine". I was NOT doing fine, I have a pretty high pain threshhold and this was nearly above and beyond my tolerance!! It didn't last long, perhaps 15 minutes, and the pain subsided immediately at the end of the procedure. When I returned to the recovery area the nurse observed "gee, you're not sleepy at all, you're really wide awake". Very astute observance. In retrospect I wonder if I didn't get enough Versed (or whatever), and if the doctor didn't just shove that scope along too fast. Maybe he had not had lunch yet? At any rate, I'm glad the scope came out clean so I don't need another colonoscopy for 10 more years, because I don't think I could go through that again very soon. Maybe in 10 years they'll have better methods so I won't have to suffer so.
    The reason I'm posting this here is because I felt the need to vent, to tell of my experience, but I wouldn't/won't pass my experience on to my friends and loved ones so as not to scare them because everyone else's experience has been much more positive and less painful.
    This is the reason I HATE my job. I am a "moderate sedation" nurse, and at times I have to sit back and watch patients tortured by physicians who do not understand how to use the medications. Versed is not an analgesic. You probably needed more of it, first of all, and also needed an opiate such as Demerol or Fentanyl for pain relief. The doctors seem to think that Versed is always an amnestic; however, if the patient does not get enough, they remember the whole procedure. It does no good to have a patient writhing and bearing down hard when the scope is being advanced.
    It takes even more time to do the scope. I have seen patients crying, and I'm asking the doctor to give them more medication and the doctor refuses. The biggest culprits are the surgeons. I work with one of them who starts poking the scope in before I even get the medication in the IV. I feel like asking them if they start to cut before the patient is anesthetized in the OR. Patients need to feel the effect of the medication before the procedure is started; otherwise, it's hard to "catch up" with the Versed and pain medication.
    I would advise you to contact your hospital's QI or risk management person and complain! Nobody should have to put up with that.
  6. Visit  VivaLasViejas profile page
    0
    OMG........I just can't wait to NOT do this. :stone

    I've put so many people through the bowel prep (whoever named that stuff "GoLytely" must've had a warped sense of humor) that I've never really urged the over-50 members of my family to get a colonoscopy done, even though I know the statistics about colon cancer. Nor am I planning on having the procedure done on myself at any time in the foreseeable future, even though I've had some GI trouble in the past and will be 50 well before this decade is over. It's just like the dentist: I'll go when I have an actual problem that I can't stand anymore.......that's how badly I DON'T want to deal with this

    You'd think, in the 21st century, that we'd have more humane ways of diagnosing such things.......meanwhile, if I or anybody I care about needs to have this test, I'll be advocating for Propofol! That's what they gave me for my last laser lithotripsy, and I not only didn't get verbal incontinence like I do with Versed, I didn't wake up sick to my stomach either. It's good stuff.........now, if they could just do something about that damned bowel prep.........
  7. Visit  theplugger profile page
    0
    It's been over a week since my traumatic experience and I've done much reflecting on it and on the responces. So now I'd like to add more feelings about my colonoscopy experience and about how I (still) feel about colonscopy in general.
    First of all, my main complaint was with the callous treatment I received from one arrogant doc who chose to show absolutely no regard for the patient's comfort or feelings. To me, that's the bottom line which I incorporated into a letter of complaint mailed to the clinics involved.
    Since my husband's screening colonoscopy of a few months ago during which, with no symptoms of any kind, they discovered and removed 2 pre-cancerous polyps, I felt more of an urgency that I wanted to have one as well to set my mind at ease, get it over with. I had a cousin who lost a very long and agonizing battle with colon cancer, and definitely did not want to go that path since it can easily be detected early enough for cure.
    Thank you for your ears and sympathies , and down with heartless sadistic docs :angryfire !!
    As for the bowel prep, once in any lifetime is surely enough!!



    Quote from mjlrn97
    OMG........I just can't wait to NOT do this. :stone

    I've put so many people through the bowel prep (whoever named that stuff "GoLytely" must've had a warped sense of humor) that I've never really urged the over-50 members of my family to get a colonoscopy done, even though I know the statistics about colon cancer. Nor am I planning on having the procedure done on myself at any time in the foreseeable future, even though I've had some GI trouble in the past and will be 50 well before this decade is over. It's just like the dentist: I'll go when I have an actual problem that I can't stand anymore.......that's how badly I DON'T want to deal with this

    You'd think, in the 21st century, that we'd have more humane ways of diagnosing such things.......meanwhile, if I or anybody I care about needs to have this test, I'll be advocating for Propofol! That's what they gave me for my last laser lithotripsy, and I not only didn't get verbal incontinence like I do with Versed, I didn't wake up sick to my stomach either. It's good stuff.........now, if they could just do something about that damned bowel prep.........
  8. Visit  spaniel profile page
    0
    Yep- this is why I asked about the virtual colonoscopy .
  9. Visit  caroladybelle profile page
    0
    Quote from spaniel
    Yep- this is why I asked about the virtual colonoscopy .
    Unfortunately, virtual colonoscopy is not an option for many of us, since biopsies cannot be done that way.

    Due to medical history, I get scoped every two years and biopsies must be done.
  10. Visit  theplugger profile page
    0
    Quote from caroladybelle
    Unfortunately, virtual colonoscopy is not an option for many of us, since biopsies cannot be done that way.

    Due to medical history, I get scoped every two years and biopsies must be done.

    True about it not always being an option, and it also doesn't bypass that "worst" part, THE PREP, which is still a necessary evil with the virtual colonoscopy.

    I don't recommend the virtual to my friends, but I do recommend they do not just take their chances with "anyone" as I did, but that they check around and find a kind, caring and compassionate physician to do the job. That's what I feel I learned from my bad experience.
  11. Visit  suzy253 profile page
    0
    I've had two colonoscopies before in the past--the 1st time showing polyps which were removed & biopsies. I now have to go q3 yrs. I remembering waking up both times during the procedure but only briefly.

    The worst bit for me was the prep. Now if I can just convince my sister to go!
  12. Visit  CrohnieToo profile page
    0
    For those of you who have encountered pain during colonoscopy, you really should read the two abstracts I've given the URL for below. Then get the full articles and give them to your gastro!!!! I first gave my gastro the abstracts and then later, to reinforce my message, the full articles. Her scoping skills have improved dramatically and she is slicker than snot on a doorknob maneuvering that scope thru my colon now.

    I no longer have a bruised feeling in my abdomen for several days after a scope, I do not have sedation or anesthesia for my scope. I have just 25 mg Demerol and, if the vagus nerve gets in a twit at the transverse colon/hepatic flexure area, a little Phenergan to stop the resulting dry heaving. My gastro does use a pediatric scope and frankly, altho I haven't convinced her of it, I think the peds scope is more likely to cause the vagus nerve twit than if she used the adult scope due to the peds scope being more flexible and thus more likely to loop back on itself.

    Since our hospital's outpatient endo department equipment doesn't have the capability of producing a video tape of the procedure my gastro has agreed to my bringing my video cam in and videotaping the monitor during the procedure. For those of you who would really like to watch but really doesn't want to endure any discomfort from the procedure this is the ideal solution.

    A Study of Pain During Colonoscopy

    <http://www.e-health-questions.info/html/board/index.php/action=displaythread&forum=boweldisorders&id=12&re alm=default>

    Why Colonoscopy Is More Difficult In Women

    <http://www.e-health-questions.info/html/board/index.php/action=displaythread&forum=boweldisorders&id=13&re alm=default>

    From the Journal of The Royal College of Surgeons of Edinburgh, here's an article by a "teaching colonoscopist" that details the whole procedure, including some of the things that can go wrong. It's called, How I do it, by A. LESLIE and R.J.C. STEELE, University Department of Surgery and Molecular Oncology, Ninewells Hospital, Dundee DD1 9SY, U.K.

    <http://www.rcsed.ac.uk/journal/vol47_2/4720010.html>
  13. Visit  mshultz profile page
    0
    Quote from CrohnieToo
    For those of you who have encountered pain during colonoscopy, you really should read the two abstracts I've given the URL for below. Then get the full articles and give them to your gastro!!!! I first gave my gastro the abstracts and then later, to reinforce my message, the full articles. Her scoping skills have improved dramatically and she is slicker than snot on a doorknob maneuvering that scope thru my colon now.

    I no longer have a bruised feeling in my abdomen for several days after a scope, I do not have sedation or anesthesia for my scope. I have just 25 mg Demerol and, if the vagus nerve gets in a twit at the transverse colon/hepatic flexure area, a little Phenergan to stop the resulting dry heaving. My gastro does use a pediatric scope and frankly, altho I haven't convinced her of it, I think the peds scope is more likely to cause the vagus nerve twit than if she used the adult scope due to the peds scope being more flexible and thus more likely to loop back on itself.

    Since our hospital's outpatient endo department equipment doesn't have the capability of producing a video tape of the procedure my gastro has agreed to my bringing my video cam in and videotaping the monitor during the procedure. For those of you who would really like to watch but really doesn't want to endure any discomfort from the procedure this is the ideal solution.

    A Study of Pain During Colonoscopy

    http://www.e-health-questions.info/h...&realm=default

    Why Colonoscopy Is More Difficult In Women

    http://www.e-health-questions.info/h...&realm=default

    From the Journal of The Royal College of Surgeons of Edinburgh, here's an article by a "teaching colonoscopist" that details the whole procedure, including some of the things that can go wrong. It's called, How I do it, by A. LESLIE and R.J.C. STEELE, University Department of Surgery and Molecular Oncology, Ninewells Hospital, Dundee DD1 9SY, U.K.

    http://www.rcsed.ac.uk/journal/vol47_2/4720010.html
    CrohnieToo:

    I am in absolute awe of your communication skills with your gastroenterologist! The "How I do it" article seems to have a lot of good advice. His scope appears to be better than what was used on me, which had an eyepiece and was probably not variable stiffness. I doubt that my doctor ever backed out the scope to reduce looping. If this had occurred, I should have noticed a reduction in pain. I was glad to see that suctioning out the excess fluid and gas is a recommended technique. Although my doctor did this, many apparently do not.

    My main concern now, is that in retrospect, no one provided me with adequate information, even when I expressed concerns that should have indicated the need for additional information. Informed Consent was never discussed with me. In my letter to the doctor, I requested the same sedation as I had for the EGD, which was 2 mg Versed and 50 mg Demerol. If the doctor had told me the initial dosage for the colonoscopy would be 1 mg Versed and 50 mg Demerol, then I would have had the nerve to just request more Demerol later on, since I still wanted to remember. I only found out about this after I requested my records from the hospital.

    Especially troubling to me now is that when the nurse who was assisting the doctor came out to get me, she asked me to remove my glasses. I explained that I had written to the doctor about wanting to watch the procedure, but had not yet heard his answer. She showed no expression at this reply; just indicated I could keep my glasses, but warned they could get bent. A month later, I realized she had to have known in advance, since she injected a portion of both syringes without checking with the doctor about the dosage.

    My concern for the future is that even after telling everyone I want to be an informed patient; that I want all of the information to which I am entitled, it will still be an uphill battle to get the necessary information. Perhaps the best approach would be to say up front that while the treatment of my bad GI bleed was perfect, we need to work on patient information and scope technique. This gives everyone another chance, and I can always go elsewhere if this approach is not well-received.

    Michael E. Shultz
    mshultz@valkyrie.net

    "Outside of a dog, a book is man's best friend. Inside of a dog, it's too dark to read."
    Groucho Marx

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