The Oley Foundation is a great resource for information related to home enteral and parenteral nutrition. They have an extensive Clinician Resource section with info guides that can be downloaded and printed, or you can order pamphlets in larger numbers as needed. Oley Foundation
I seem to find neat stuff every time I visit their site...I was looking for something that explained the differences between PEG and PEJ tubes, vs. skin-level access tubes and traditional tubes, and I think I stumbled upon the holy grail of GI teaching:
Education Materials for Home Nutrition Support Consumers
by Lisa Crosby Metzger
Parenteral and enteral nutrition (PEN) are life-sustaining therapies that can be administered in the home. They are also complex therapies, with many facets about which patients and caregivers must learn. Once home on PEN, the patient assumes much of the responsibility for day-to-day care. Although patients are trained in many aspects of home PEN management before they leave the hospital and often again upon arrival home, there is much to retain and put into practice. Many health care facilities, companies, and nonprofit organizations create home PEN patient education materials. In 1993 and 1995, directories were created to list the home nutrition support materials that were available. The 1995 directory has been updated and appended to this article. This directory was created in the spirit of the original: to encourage communication and the exchange of information between individuals and institutions. (Nutr Clin Pract. 2010;25:451-470)
This is an area of personal and professional interest, as I have recently completed a series of online CE workshops for clinicians caring for young children with Mitochondrial Cytopathies, including a section about developmental adaptations for infants and toddlers with home enteral/parenteral feeds. (The nonprofit org has not yet released the series.) In addition, I have a G tube for venting, a J tube for meds and trophic feeds, and have received home PN for the past 7 years. The only general statement I can make about enteral tubes is that it's nearly impossible to look at an external tube and know where it's going.