Originally Posted by Bill Levinson
Do patients who stop eating and drinking on their own notice hunger or thirst?
Hi Bill. I know this has been addressed already, but I'm adding my two cents anyway! Most people think that withholding nutrition and hydration is abhorent, and morally different from withholding other forms of therapy, because they see these as basic care, akin to pressure care for example.
I believe this is because they imagine what it would be like for them to have food and water withheld - they imagine being hungrier than they've ever been, thirstier than they can imagine, and to do that to someone who is dying seems barbaric.
The reality, though, is different. Elderly people often lose their appetites in the months before they die, regardless of other factors. This is so much the case that weight loss over the age of seventy is closely correlated with increased mortality. As Leslie points out, endorphin release contributes to a lack of hunger.
Similarly, the sensation of thirst is rarely present, and where it is can be alleviated by effective mouth care. In some conditions (particularly ascites and oedema), patients who have artificial hydration withheld become more comfortable, as the fluid is reabsorbed.
I have cared for many dying patients who have had neither artificial hydration or nutrition. None of those who were conscious reported hunger, all those who reported thirst were comfortable after mouth care and/or a few sips of water (less than 30ml is almost always sufficient).
Inserting an IV or subcutaneous butterfly for fluid is uncomfortable (limits movement, may be irritating, can extravasate) and not without risk. While that risk is no higher than it is for non-terminal patients, I don't think the risks in this case outweigh whatever the benefit is supposed to be.
If we decide to administer fluids this opens up other questions. First, what is the purpose? Oftentimes doctors on my unit order 24/24 hydration, which is insufficient to meet the patient's needs, so the purpose is not therapeutic. If we run sufficient fluid to meet patient needs, do we also have an obligation to make sure we're administering the right fluids? After all, nothing but normal saline could lead to the patient become hypernatremic. If we take bloods are we then obliged to correct any abnormal values?
I was recently unwell with a (nothing like terminal) chest infection. Not only did I not eat anything more than a handful of food a day (the most I managed was four strawberries in a twelve hour period), I was wholly disinterested in food. Not nauseated, just disinterested. Prior to this experience, I couldn't understand why some of my patients just can't be bothered eating anything.