[angel4gramma]

Im sorry you are going through this. I have dealt with migraines for many years. I get 10-15 a month. Some are not as painful as others. I have been lead to believe by my NP and neurologist I can only get 9 Imitrex a month due to possible severe side effects although neither can tell me what. They both give me samples when I run out and don't have a problem with it although their staff act like they are paying for it and try to tell me they are out of samples until I ask to speak with the Dr then they find some "way in the back"

[elthia]

[quote=NeuroICURN;2405744]Not to get too nosy here....but have you had a CT (to check for any bleeding or tumor), and/or a CTA (CT Angio) done?? If not, and your symptoms are this severe, you NEED to have that checked. Many people don't often have a warning to the fact that they have a brain aneurysm....but those that do, it's often migraine headaches. Also, the migraine headaches beforehand can be a warning that it's going to rupture.
QUOTE]

I've had a CT done of the head and of both eyes, just because I sometimes lose vision in my R eye. I've been worked up for CVA at the ED. I haven't had a CTA or MRI done yet though. My grandfather and greatuncle died from ruptured brain aneurysms, but I'm told it's not genetic. The severe migraines are. it's believed stress is just really exacerbating the migraines. My father had migraines that would last for weeks also, my sister's more lucky, her longest was 2 -3 days.

Interestingly enough, I had small script of zofran po, just for breakthrough n/v. I took one a little bit ago, not only did it help with the n/v, but my pain went from 8/10 down to 4/10, from stabbing to throbbing. This is so much more bearable. I need to ask my neurologist for more. I wonder, is it the fact it's a serotonin antogonist? Thank goodness oral zofran has gone generic.

[CRNI-ICU20]

Oh I am soooo sorry for you....
My son gets these sometimes, and he even gets them so bad that he gets field cuts, or words will invert....he becomes disoriented and will sometimes not know familiarity....it goes away in an hours or so....he's been tested for all the TIA stuff, etc...it's just severe migraine like yours....
Have you been tested for environmental triggers? ie, air quality, sprays, etc..? Some places, hospitals, used harsh chemicals that linger in the air, or on surfaces and have been known to trigger severe migraine headaches in people....
I hope and pray you can get relief...and NO, you weren't seeking drugs...you were seeking relief....
blessings, crni

[Emmanuel Goldstein]

Originally Posted by CRNI-ICU20

Have you been tested for environmental triggers? ie, air quality, sprays, etc..? Some places, hospitals, used harsh chemicals that linger in the air, or on surfaces and have been known to trigger severe migraine headaches in people....

Excellent point. Our unit secretary got them from the stuff that was being used to clean the hallway carpets.

[sharona97]

I really hope you can get a better handle on these nasty migraines. I sufferred for a long time (10 Years) with migraine HA's. Once I stopped Premarin my HA's went away.

I believe hormones can be one of the factors that could contribute. Do you have a family history of migraines? My Aunt who lived on a farm would have my Uncle give her injections of whatever the Doc had ordered. (Don't know what it was). She also had to use a heavy narcotic because of the N @ V named Stadol. It is a nasal spray that stopped her N @ V, gave relief from the migraine, and she also used Ibuprofen to help fight the residual pain.

I hope your Doc has taken some diagnostic tests, MRI?????..........

There is always a second opinion........

Hugs

[Kimbalou]

I just recently read a study that said they are finding out people who have migraines like this sometimes also have a patent foramen ovale.There was a woman who had the hole fixed and she no longer had migraines! I'm sure this doesn't apply to everyone, but you could certainly mention you want to look into this possibility! Sometimes it isn't diagnosed until you are an adult..usually this is something people are born with.

[Kimbalou]

[quote=elthia;2406237]

Originally Posted by NeuroICURN

Not to get too nosy here....but have you had a CT (to check for any bleeding or tumor), and/or a CTA (CT Angio) done?? If not, and your symptoms are this severe, you NEED to have that checked. Many people don't often have a warning to the fact that they have a brain aneurysm....but those that do, it's often migraine headaches. Also, the migraine headaches beforehand can be a warning that it's going to rupture.
QUOTE]

I've had a CT done of the head and of both eyes, just because I sometimes lose vision in my R eye. I've been worked up for CVA at the ED. I haven't had a CTA or MRI done yet though. My grandfather and greatuncle died from ruptured brain aneurysms, but I'm told it's not genetic. The severe migraines are. it's believed stress is just really exacerbating the migraines. My father had migraines that would last for weeks also, my sister's more lucky, her longest was 2 -3 days.

Interestingly enough, I had small script of zofran po, just for breakthrough n/v. I took one a little bit ago, not only did it help with the n/v, but my pain went from 8/10 down to 4/10, from stabbing to throbbing. This is so much more bearable. I need to ask my neurologist for more. I wonder, is it the fact it's a serotonin antogonist? Thank goodness oral zofran has gone generic.

Everyone here who suffers from migraines: google patent foramen ovale and migraines and you will see these studies liking the 2 problems. Hope I've helped some!

[P_RN]

My pharmacy insurance is through Medco and they interpret just about the same as yours. However, my doc has been successful in making appeals for a couple of expensive drugs. When you have such a history as yours, you are the exception not the rule and you deserve to be considered for an override.

[sharona97]

Originally Posted by nursingis4me

Advil does not help with the type of migraines the OP has described--they are not typical headaches!

Ibuprofen has been used successfully in patients for RESIDUAL pain, no the migraine itself.

[elthia]

Just got discharged from the hospital today. Was admitted by my neurologist for status migraine with intractable n/v. Given IV hydration, DHE, decadron, reglan, klonopin, upped the topamax again. Got MRI/MRA done. No aneuryisms, do have so microvascular changes in the brain??? Neuro says about 14% of the population have these changes, especially migraineurs. If I keep going into status migraine this frequently we're going to have to do a lumbar puncture to measure my CSF pressure. If my CSF pressure is to high, then we will have to change meds again. I was wrong, my admission weight was 12 pounds lighter than what I weighed in the clinic 2 weeks ago. I forgot to weigh myself at discharge to see if the hydration put some weight back on, . Also had follow up EKG, just cause I keep having chest pain when I vomit, EKG was good. It just feels so good to be able to walk outside during the daytime without feeling like someone is stabbing icepicks through my R eye, to be able to concentrate well enough to drive a stick shift, to eat without puking my brains out. Honestly, I could live with the headache, it's all the other crap that happens with the migraine that I can't stand.