[jadegypsy]

My 28 year old son was just diagnosed with Chronic Adult Onset Still's Disease. I know what it is, but not what his prognosis may be. Has anyone out there had any experience with Still's. I have been an OR nurse for nearly 30 years, but have never seen it before. Hope someone out there has some info, good or bad. Thanx D.

[Jules A]

Just giving you a little bump up. I hope you find some answers.

[sirI]

Hello, jadegypsy,

Check out these links on AOSD (Adult Onset Still's Disease):

International Still's Disease Foundation

Adult Still's disease - MayoClinic.com

Still's Disease


We all hope your son does well.

[P_RN]

International Still's Disease Foundation

Still's is what we used to call Juvenile Rheumatoid Arthritis. The only experience I have had is in joint replacement of mid to late teens. They usually did quite well. The fevers were the most troublesome, because you can't take NSAIDS after joint replacement.

[Jolie]

The fevers were the most troublesome, because you can't take NSAIDS after joint replacement.

Just curious as to why NSAIDS are contra-indicated after joint replacement.

[jadegypsy]

thanks for the info, biggest thing we are dealing with is kidney and liver failure, has some cardac involvement and losing vision. Very aggressive course of the disease, combo of methyltrexate and prednisone helps. At least the rash is gone, fevers rarer

[Mommy TeleRN]

I can't tell you anything but this thread caught my attention as a I had a pt on my very last day of clinical who (they think) had this disease. I felt at a loss. She was on a pulmonary floor (can't remember now..thinking she had pneumonia) but she was having very severe headaches and had become disoriented. At that point the docs weren't really sure what was going on and I remember there was a nephrology consult as they though there was kidney involvement (her BP was really high)
She was 31 and had developed it all within the past year. It was very odd for me trying to care for her as I am her same age and she is also a mom like me. i will have to read more about this because I don't really understand the etiology of this..is it an autoimmune disease then?

[bigsyis]

I don't know anything about this disease (thanks to those that posted links-they were interesting), but just wanted to wish you and your son well.