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The PEG tube



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  #1  
Old Mar 10, 2008, 11:33 PM
Registered User
Join Date: Mar 2008
The PEG tube

Hello, I was wondering how much is known about metabolic disorders in young kids these days.

I'm not that old myself, 16, but recently my neice has been diagnosed with a mystery illness, so far the doctors and specialists of Royal Brisbane Childrens Hospital are thinking its Mitochondrial Disease, but then again thats undiagnosed, her eye are fine?

She is 16 months old and jsut starting to jub up again after being fed via nasel gastric tube for the past few months.

Tomorrow she's getting a PEG inserted and because of her lack in sugars and something she is going to be a very risky patient.

Can anyone please give me a bit of information about what the think it might be? Or more information on PEG's?
It'd be muchly appriciated.

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  #2  
Old Mar 11, 2008, 09:25 PM
earle58's Avatar
Registered Nut
Join Date: Apr 2000
Re: The PEG tube

here's a link to the United Mitochondrial Disease Foundation.

www.umdf.org/site/c.dnJEKLNqFoG/b.3041929/

mitochondria disease doesn't necessarily involve the eyes.
it can affect one organ, or many.
the link i provided, will answer all your questions.

give your niece a hug for me?

best of everything.

leslie

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