any info on tracheal malasia would be loved..

Sorry I cant help much. My son was born with tracheal malacia. All I know is that it is relatively rare. The rings in the trachea failed to develope properly. My son had to be taken to Cincinnatti childrens hosp for surgical intervention. I dont even remember what it was called. But the dr's name if I recall correctly was Dr Cotton. They may have a web site with some info on this. Wish I could help more.

Tracheomalacia can be associated with BPD (bronchopulmonary dysplasia). It may be caused by prolonged intubation or barotrauma. Basically tracheomalacia means a weakness of the trachea. These kids/babies may have an audible stridor. Always be assessing for respiratory distess (nasal flaring, retractions, etc..) These kids are at risk for airway collapse due to the area of malacia. Also be sure that this kiddo is nowhere near anyone who is sick because what may be a cold to you and I will put this kiddo in the hospital quickly. Is this kid on any sort of respiratory support?

I don't know of any specific web sites, but you could just type in tracheomalacia under subject and there should be lots of info. for you on the web.

I have been taking care of a baby that was born with bronchio malacia. He was born at 24 weeks and weighed 1 pound and 1 ounce. I don't know if this is the same thing the little girl you are taking care of has or not. I have not been able to find much out about this bronchio malacia either and would really like to. The little baby boy stayed in the hospital for the first 8 months of his life and then was discharged because medicaid would not pay for him to be in the hospital any longer but would pay for him to have nursing care at home. I work for a private duty company that specializes in cases with CPAPs and Ventilators in the home environment. This little boy is on a CPAP and oxygen and has a trachea. I take care of him during the night so the mother can sleep and she has a day nurse while she works. This little fellow has done miracuosly, he is one year old now and is up to the average weight of a one year old. He needs alot of suctioning but is being weaned slowly from the CPAP hoping he will be able to survive without it. I don't know if I can help or not but if you have a specific question, I will try to answer it from what I know or try to find the answer for you. What type of symptoms does she have?

Here are some websites-I hope that they are of some help to you.

http://www.emedicine.com/med/topic2976.htm

http://www.bcm.tmc.edu/oto/grand/72993.html

http://www2.medsch.wisc.edu/childrenshosp/parents_of_preemies/bpd.html

http://www2.lungusa.org/diseases/bpdfac.html

Good luck.

Cheryl

Originally posted by nicudaynurse

Tracheomalacia can be associated with BPD (bronchopulmonary dysplasia). It may be caused by prolonged intubation or barotrauma. Basically tracheomalacia means a weakness of the trachea. These kids/babies may have an audible stridor. Always be assessing for respiratory distess (nasal flaring, retractions, etc..) These kids are at risk for airway collapse due to the area of malacia. Also be sure that this kiddo is nowhere near anyone who is sick because what may be a cold to you and I will put this kiddo in the hospital quickly. Is this kid on any sort of respiratory support?

I don't know of any specific web sites, but you could just type in tracheomalacia under subject and there should be lots of info. for you on the web.

Great explanation

I work at Cincinnati Children's Hospital in the ENT unit. I see a lot of tracheomalacia. Definately Dr. Cotton is the best person to see for this problem. We get kids on our floor from all over the world much less the country due to Dr. Cotton's experience.

http://www.cincinnatichildrens.org/default.htm

This is children's website which can help you get in touch with Dr. Cotton if needed. He is the BEST in the ENT business for kids.

I THINK THE EASIEST WAY TO DESCRIBE TM IS TO THINK OF A PIECE OF COOKED PASTA, LIKE ZITI. IT IS LIMP, ODES NOT HOLD ITS' SHAPE, AND IF IT PROGRESSES, TO LARYNGEOMALACIA, IT COLLAPSES ONTO ITSELF. I HAVE A CLIENT IN HHC THAT USES A MAPLESON BAG (LIKE THE BLACK BAGS USED IN THE OR FOR ANESTHESIA IN THE DARK AGES), THE ADVANTAGE IS A GAUGE THAT YOU CAN WATCH SO AS NOT TO BLOW THE LUNG W/ TOO MUCH PRESSURE. GOOD LUCK:cool:

My daughter had tracheomalacia from birth til about 7 months of age. She was full term and luckily, we never needed any interventions.

From what I have found, it's under-developed and soft. That's what causes the noise- the vibration of the soft tissue when breathing.

It's scary, though!