[wilbur's mom]

Hi! Everyone,
I am a nurse with SLE. I have alot of nq1(oops, kitten on the keyboard problem...) neuro symptoms like falling, tripping, banging into walls,.... and speak openly of my Lupus in great part because I would hate to have anyone worry I had a drug or alcohol abuse problem. I teach, and limit my work hours as much as possible. I can work at home if necessary as I do alot of lesson planning on my computer. One of the first things I told my principal was "I have Lupus". The next, "I can only work part time". We are in such a crisis of not enough nurses, and an overwhelming work load. I am not defined by "my lupus', but have had to accept the reality that lupus does indeed define what I do, and literally when I do it. One big change has had to be my focus on optimum wellness. What can I do, no, what must I do today to be as well as possible tomorrow? And accept, If I do THIS, I can NOT do that. My b/p is directly connected to activity, and I am currently living on Prednisone 5mg daily. My reality? If I didn't work, my b/p is wnl. But a nurse is what I am, not what I do. And the lack of nurse instructors for RNs, LPNs and CNAs is frightening. So I want to work as long as I can, I am only 52. sue

[brian]

Hi Sue,

FYI, I moved your post to it's own thread with a new title Good Luck in finding support!

(don't ya love it when those kitties walk on the keyboard )

[Drodriguez04]

Hi I have lupus and I am about to take a cna course. I want to work part time so that my lupus won't flare. I wanted to know if working part time in a nursing home offers benefits that cover lupus (pre-exsiting conditions). If you have any words of advice please let me know. Thank you D!!!