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  #1  
Old Mar 21, 2005, 03:07 PM
Registered User
Join Date: Mar 2005
Tube feeding controversy

What's everybody thinking about the potential impact of the Florida case on our jobs? Stopping a tube feeding is fairly routine for hospice; do you think the new national attention will change that in any way?

I hope that if nothing else it raises awareness of the importance of having living wills or DPOA's in place before the need for them arises.

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  #2  
Old Mar 21, 2005, 03:33 PM
VivaLasViejas's Avatar
AARPSoon2B
Join Date: Sep 2002

I hope so, too, penguinurse! However, the Schiavo case is not about someone in the process of dying (although she undoubtedly would have years ago if her feeding tube had never been inserted). She is severely brain-damaged, but otherwise healthy.........but I won't go into my personal opinions about that here.

Unfortunately, Americans tend to have the attention span of a flashcube; after this is over, we'll probably go back to our old way of blissfully ignoring the remote possibility that, someday, we MIGHT die. It's sad; our culture is still so hung up on youth, and so afraid of decline and death, yet it's a reality for each and every one of us. Sure, we'll continue to have those urgent but hushed midnight heart-to-hearts with our spouses after an acquaintance dies from cancer, or our parents will raise the subject after one or the other experiences a bout of chest pain, but when we land in the hospital with a sudden illness, will we actually fill out and sign that advance-directive form we're given along with our admission paperwork? Will we sit down with our adult children and talk honestly about what we want if we become incapacitated and can no longer make our own decisions?

I doubt it, but if this tragic story forces even a handful of Americans to fill out advance directives, make a living will, or go see their attorneys about designating a POA, then perhaps Terri Schiavo and the people who have come to care about her in these past months will not have suffered in vain.

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  #3  
Old Mar 21, 2005, 03:52 PM
Spidey's mom's Avatar
SAHM wannabe
Join Date: Dec 2002

On another thread about this, the subject was brought up about mixing Hospice with this case. And the negative outcome that could be for the Hospice movement.

Terri is not about Hospice. She is not terminally ill. She is simply brain-damaged.

Good post Marla.

steph

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  #4  
Old Mar 21, 2005, 04:11 PM
VivaLasViejas's Avatar
AARPSoon2B
Join Date: Sep 2002

Thanks, Steph. It's kind of funny, how I usually look at the gray areas in almost all areas of life, but in this case, what can and cannot be done is black and white in my mind. You can allow nature to take its course when someone suffers a terminal event, like Terri Schiavo did back in 1990 when her heart stopped due to an electrolyte imbalance. What you CAN'T do is unring the bell........she's been fed through a tube for 15 years, and other than being brain-damaged, she is healthy and sound. Removing the tube now is a deliberate act with the sole intention of causing Terri's death, and the last time I checked, that was a crime.

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  #5  
Old Mar 21, 2005, 04:14 PM
VivaLasViejas's Avatar
AARPSoon2B
Join Date: Sep 2002

Oops.........I wasn't going to go into my personal opinions on this thread. Sorry.

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  #6  
Old Mar 21, 2005, 04:19 PM
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Join Date: Mar 2005
Penguinurse

This ruling will set a precident for future cases. No attacks intended on hospice. To use a cliche, some of my best friends are hospice workers, but I so one instance of hospice taking over a patient that we had, placed her on Roxanol, stopped feeding her, and she died in two weeks, This was the family's decision...they wanted her out of the way. She had no major illnesses that would indicate the need for hospice. I brought the situation up to my supervisor and the state was called in for evaluation. What do you think? They found no reason for hospice not to be involved and assist her to her death.
I worked with the woman and I knew her conditons. None the less, I am not working at the particular place.
I am all for hospice and I feel that Terri should have been evaluated long before this.
Thanx,
Seinna



Originally Posted by Penguinurse
What's everybody thinking about the potential impact of the Florida case on our jobs? Stopping a tube feeding is fairly routine for hospice; do you think the new national attention will change that in any way?

I hope that if nothing else it raises awareness of the importance of having living wills or DPOA's in place before the need for them arises.

Top
  #7  
Old Mar 21, 2005, 04:31 PM
Registered User
Join Date: Mar 2005
mjlrn97

I am a 57 y. o. nurse. I think that personal opinions was what got the attention of the government in the first place. Why did hey wait so lonf beforee they decided to make this ruling?
I have htree adult children. I have told them my wishes if I were in certain states. About three months ago, I was admitted to the hospital with possible CHF. When I signed all the "proper" forms, I was told by one of the nurse in ICU that it was not up to me but the doctor.
As you have seen in my responses, I am adamant about life and other issues. I have seen so many changes in nursing that I can barely stand to hear about new laws.
I love my job! I will be carried out of the building when I die because I love what I do. Always speak your opinion along with facts if need be, how else will we make the future a better place for all?
Seinna48



Originally Posted by mjlrn97
I hope so, too, penguinurse! However, the Schiavo case is not about someone in the process of dying (although she undoubtedly would have years ago if her feeding tube had never been inserted). She is severely brain-damaged, but otherwise healthy.........but I won't go into my personal opinions about that here.

Unfortunately, Americans tend to have the attention span of a flashcube; after this is over, we'll probably go back to our old way of blissfully ignoring the remote possibility that, someday, we MIGHT die. It's sad; our culture is still so hung up on youth, and so afraid of decline and death, yet it's a reality for each and every one of us. Sure, we'll continue to have those urgent but hushed midnight heart-to-hearts with our spouses after an acquaintance dies from cancer, or our parents will raise the subject after one or the other experiences a bout of chest pain, but when we land in the hospital with a sudden illness, will we actually fill out and sign that advance-directive form we're given along with our admission paperwork? Will we sit down with our adult children and talk honestly about what we want if we become incapacitated and can no longer make our own decisions?

I doubt it, but if this tragic story forces even a handful of Americans to fill out advance directives, make a living will, or go see their attorneys about designating a POA, then perhaps Terri Schiavo and the people who have come to care about her in these past months will not have suffered in vain.

Top
  #8  
Old Mar 21, 2005, 04:38 PM
Registered User
Join Date: Mar 2005
mjlrn97

Can you say brain-damage is healthy and sound? I don't think any of us would want to be in her position. I remember a movie in which Robert Deniro came back after a period of time. The things that he went through to get to justa functional state were horrible, yet he was able to walk, talk (with a slur), and do many of the things that we (I) may be able to handle.
I am not afraid of old age ( I am already there) I am afraid of living to see the way the future is going.
It is not 2008, it's 1984!
Seinna48


Originally Posted by mjlrn97
Thanks, Steph. It's kind of funny, how I usually look at the gray areas in almost all areas of life, but in this case, what can and cannot be done is black and white in my mind. You can allow nature to take its course when someone suffers a terminal event, like Terri Schiavo did back in 1990 when her heart stopped due to an electrolyte imbalance. What you CAN'T do is unring the bell........she's been fed through a tube for 15 years, and other than being brain-damaged, she is healthy and sound. Removing the tube now is a deliberate act with the sole intention of causing Terri's death, and the last time I checked, that was a crime.

Top
  #9  
Old Mar 21, 2005, 04:52 PM
VivaLasViejas's Avatar
AARPSoon2B
Join Date: Sep 2002

Originally Posted by seinna48
Can you say brain-damage is healthy and sound? I don't think any of us would want to be in her position. I remember a movie in which Robert Deniro came back after a period of time. The things that he went through to get to justa functional state were horrible, yet he was able to walk, talk (with a slur), and do many of the things that we (I) may be able to handle.
I am not afraid of old age ( I am already there) I am afraid of living to see the way the future is going.
It is not 2008, it's 1984!
Seinna48
What I meant was, her BODY is healthy and sound.......and it will probably take her many days to dehydrate to death.

I'm with you, however, on the frightening possibilities that await us down the road if the current administration stays the course and continues to chip away at our constitutional protections. While I believe intervention was necessary in this particular case, I agree that it could set a terrible precedent for the future. That's why I can't wait till 2008, so we can get some saner minds in power before the USA as we know it is gone forever.

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  #10  
Old Mar 25, 2005, 08:13 AM
OneThunder (Female)
Registered User
Join Date: Sep 2001

Originally Posted by Penguinurse
What's everybody thinking about the potential impact of the Florida case on our jobs? Stopping a tube feeding is fairly routine for hospice; do you think the new national attention will change that in any way?

I hope that if nothing else it raises awareness of the importance of having living wills or DPOA's in place before the need for them arises.

stopping a feeding tube is NOT routine in hospice, at least not the hospice that I work for. We are about comfort and symptom control. Tube feedings are "cut back" if the digestive system does not handle the amount of feeding that is going into the body, (thus causing vomiting, bloating or other painful symptoms) and discontinued as the digestive system shuts down . Remember, we are about COMFORT CARE.

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