[Medicine Eagle]

Please pray for my daughter Catie. She is getting worse by the day. I still am having trouble comming up with the funds to get her to AZ. where I would have a job and insurance. I awoke last night to her screaming in pain. She has dystonia of her neck muscles and her head was pulled all the way back to her neck, with the muscles in a spasm. I gave her what medication I could and applied heat, but we had to wait with her in agony until the meds kicked in. For those of you who don't know my daughter Catie. She has survived 43 brain surgeries and well over 50 total surgeries in the last 11 years.She will be 16 in November of this year. She has Spina Bifida C3-T3 mylomenigocele, hydrocephalous, slit ventricle syndrome, a ventricle-pleural shunt, epilepsy, Arnold Chiari Malformation type II for which she has had a posterior fossa decompression (removal of a 1 in. wide strip of bone in the occipital area),dystonia of the neck muscles, MR, and dyslexia. She has respritory arrested twice, once at home in my arms. I could write a book about what she has survived. She is being granted a dream.Her dream is to swim with the dolphins in Orlando,Fl. We are waiting to find out how soon she can go. They are rushing the trip as much as possible. I am afraid that she might not make it if they don't hurry. We have to drive since she can't fly, which is a good thing b/c we are going to be adopted into the CCAI, and Catie is thrilled about it she can't wait to meet Chief Thunderhawk and recive her Indian name. We can drive the 4 hours or so to Ohio, stay the night after the ceremony and the I can drive the 14 hours to Orlando from there. This way all of her dreams can come true. She needs to see the Neurosurgeon in AZ. He is the top pediatric neurosurgeon in the country. I am not sure she will make it. There are no groups to help send her there, the only way is for me to take a Travel nurse position. That way she will have insurance. She has been visited in her dreams several times by my deceased Grandmother asking her if she was ready to go to heaven or if she wants to continue to stay with us in pain. She came again last night to her after she finally relaxed and was able to sleep. Some of you may not believe that this can happen or does, but we believe her. She has told me about deceased ancestors that she never knew. At any rate she is very sick and close to dying. Please say a prayer that she at least gets her dreams. Also please pray for peace for her, and for God or the Great Spirit to ease her suffering. Sorry this post is so long. Thank you in advance for your prayers.
TiredBraveHeart

[donster]

Many, many hugs and prayers and good wishes to you and your family.

[Nursing On The Run]

Absolutely. I am praying for God to bless and protect dear Catie, and her family. You sound like a wonderful mom and I hope you post back that Catie's dreams came true....

Hugs....

[Southernurse]

What a powerful spirit your daughter has! We can all learn how to be as we should be and what we are capable of. I will pass along the deepest of love and strength I can muster, as she deserves all we can give! She basks in the love that surrounds her, on this plane and the next. To have a child who suffers is a test few find the endurance to bear. I will pray to the spirits that guide us as never before that your daughter knows happiness. Be comforted that ancestors await her . She will never roam alone. Not here, not beyond. As one parent to another I reach out to you, as you too will never walk alone.

[TheCommuter]

Here's a hug! (((HUG)))

I'll keep your daughter in my thoughts and prayers!

[Thunderwolf]

TiredBraveHeart, my heart and tears and hugs and encouragements are out to you and your daughter. What an incredible, amazing woman and mother you are....and what a wonderfully brave girl she is. And I am honored to have been graced by such a woman of strength and compassion as yourself. Yes, I will say a prayer for you both. If need be, contact Spirit Dancer, my mother, if you need to (you have her number). Also, once you are in town for the ceremony, contact her for some Sweet Grass and some Sage....tell her that it is my gift to you and your daughter. I have spoken to her and she will provide this gift gladly to you.

Peace to you, my sister

Wolfie

[prmenrs]

I'll definitely pray for your daughter and you.

[txspadequeen921]

God Bless you Sugar,,,((((Hugs to you)))) . We will be praying for your daughter...

[Medicine Eagle]

I can't thak you all enough for your kind words and prayers.She is getting worse by the day now. Last night my Mom heard her take a huge gasp of air. She thinks that Catie had stopped breathing and started again. My deceased Grandmother came again last night. Thunderwolf, you kind words brought tears to my eyes. I am nothing special. When it is your child you do what ever you have to do, because it is your child. There are no heroics, except by my daughter. She has been through so much. If I took days I could not tell you all of the times she has been tougher than I will ever be. We talked about death today and seeing her ancestors. I am still up b/c I am watching her and my 15mo son is sick cutting teeth. Runny nose, cough, fever, and diarrhea. On top of everyting I was DNR'd from the ER I was working b/c a few times I was a little late b/c of my daughter. Keep in mind that I worked 17 hours straight without eating or going to the bathroom..Also I never took a lunch break. I always more than made up y time. So now I am looking for a new job,so I can get the money to take her to Az. , and also to pay the adoption fee. Thanks again to all of you. Sometimes it is on the wings of your friends that you fly because yours are too worn out to fly alone anymore.

[sirI]

TiredBraveHeart,

Ah yaw ah duh duh huh sss gah Ay kwa Ah dah nuh doe, Ooh nay la nuh he, kaw nuh wah doe he yaw duh. Uh gee knee see ay he sss duh. Uh gee knee see ah tloh yaw sss dee. Uh gee knee see ooh dew gee guh dee.

Ah dah gay you dee Ooh nay la nuh he tee dee nay yaw. TiredBraveHeart, moh luh, A ya nuh wah doe he yaw duh knee he Catie.

(Translation): I pray to the Great Spirit, God, for healing and peace.

May your child know no pain. May your child cry no more. May your child have hope. May the love of God surround you both.

TiredBraveHeart, my sister, I wish peace for you and Catie.

Peace, my sister........

ChiChi