gosh, i feel for you. i've lived in severe pain for the last four years. had procedures done, thrown from one doc to the next, kicked out of er's for "faking it", accused of forging scripts cause my surgeon was too dumb to remember what he wrote, etc. been to docs who didn't give a rat's a** that i hurt. when to two different pain specialists, before i found one who would listen....and you know what? he doesn't accept my insurance. so i have to pay cash. finally, i got the meds that have at least made my life bearable, cause, to tell you frankly, with everything going on in my life, i was ready to end it. and i'm 28. i won't say i know what you're feeling, but i sure know how it feels to not be listened to, and to live in PAIN. pain so bad i was unable to function, do basic adl's, work, take care of my two children. i'm slowly turning it around.
i was on topomax for a month...for migraines. my neuro gave me samples, cause i had the same problem...insurance won't cover. insurance is wonderful, isn't it? i pay 300 dollars every paycheck, have to pay cash to go to half the docs i have to see, then get scripts written and the med isn't on "the list". could you get samples from someone? my pcp and my neuro both had it, and gave me enough for a month. could you try that? or maybe contact the med company for pt assistance programs?
do you take anything else for the pain that works? i hope you find some relief. if you want to chat about chronic pain, or just want someone to listen who understands pain.....feel free to pm me, i could give you my email address then if you want to chat.
take care of yourself!
duh...guess i should have told you my pain is from three herniated discs in lumbar spine, radiculopathy and now a comp fx of L3. i have osteoporosis and i am too young!
Would you like to comment?
All I do is scream and cry when I get home because there isn't anything else to do. I live on tylenol and motrin. I know that long term use of those aren't great but at this point I don't even care. If I had an hour of being pain free I don't even know what I would do. 
I am so sorry. It sounds like you have been absolutely miserable. It is unexcusable that your doctors have done nothing to bring your pain under control. Can you go to a different doctor? Pain is what the patient says it is, and they are obligated to help. Why have they refused to give you narcotics?
