Fibromyalgia - page 26

What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with... Read More

  1. by   steelcityrn
    They have done studies on patients suffering in pain from fibromyalgia, and their ct scans of the brain were abnomal in comparing them to someone not in pain. This is a true dx with a insurance code.
  2. by   Miss Chybil RN
    ...Fibromyalgia is a neurologic disorder," said Russell, an associate professor of medicine in the division of immunology and rheumatology at the health science center and director of the University Clinical Research Center. The National Fibromyalgia Association estimates about 10 million Americans have fibromyalgia, defined as a chronic condition of pain in muscles, ligaments and tendons also marked by fatigue and disturbed, non-restorative sleep.

    http://www.mysanantonio.com/salife/h...a.1e7296b.html
    Also in the article:

    • People with fibromyalgia have abnormally high levels of Substance P, a neuropeptide in the spinal fluid. Too much Substance P lowers the pain threshold, partly by facilitating the responsiveness of spinal cord neurons to pain messages. The effect is that even the lightest pressure or stimulation causes pain. Lyrica, recently approved by the Food and Drug Administration for the treatment of fibromyalgia, helps because it reduces amounts of Substance P.
      *Two other substances, norepinephrine and dopamine, are at low levels in the spinal fluid of people with the disorder. These are potent modifiers of brain function, but their role is not fully understood.
      *A significant factor linked to the painful symptoms of fibromyalgia is an abnormally low level of serotonin, a neurotransmitter involved in mood, sleep, appetite and pain regulation. Women produce less serotonin than men, which may explain why more women have the condition. Among women 50 to 60 years of age, 8 percent to 10 percent suffer from fibromyalgia.
    http://www.mysanantonio.com/salife/h...a.1e7296b.html
  3. by   RN1980
    hey my mom has this fibromyalgia crap, and let me tell you it can me a sob...heck, i'd love to see her get a handicap sticker on her car cause i see first hand at some of her troubles she has.
  4. by   I love my cat!
    Quote from tammyc-lpn
    I am hearing a lot of people say they have it also, sometimes I wonder if some of them are using it as a sympathy tactic. The ones I hear complaining about it are also ones that don't work and depend on a spouse for full support. I am 45 yo attend school full time (4 days a week) and work 2 or 3 days a week depending on the week I hurt all over every day, and the stress well all of u who work and attend school know about the stress. So what are we to do. Some of these people are applying for disability.
    Personally, I don't think having this disease would be a very good sympathy "tactic" seeing there are so many people that do not believe in this disease. I think people suffering from this syndrome receive a lot more eye-rolling than sympathy, sadly.
    You are also correct that some are indeed applying for disability.
    ANYONE can apply for disability, but in order to receive it, a person will need a lot of medical documentation to back it up in addition to meeting the SSDI Governments' criteria of a disability. If an individual meets this criteria, they will be awarded disability.
    Remember, people with Fibromyalgia suffer from a number of chronic and debilitating illnesses, not just body aches and/or stress.
    Then again, look at PTSD. This is a stress disorder and any individuals dx with this receive disability. One does not need to have a physical limitation in order to qualify for SSDI. Many people get SSDI for invisible disabilities.....they look fine on the "outside", but suffer greatly from illnesses not visible for others to "judge".

    :flowersfo (<-----cute emoticon!)
  5. by   LilgirlRN
    I don't think it's up to us to say if a condition is real or not. The condition is real to the patient. As it has been said it's diagnosis de jour lately. Also as stated it seems that depression is a tag along condition with this. Most of the people that have it are female, most of them have been abused as children. They are hypervigilant, meaning they hold their muscles very tight in anticipation, maybe a fight or flight thing? I think we can all relate to overuse of our muscles, we get sore, they get tight, they may spasm. We're uncomfortable, we hurt. Imagine having your muscles feel like that everyday because you don't know how to just relax them. I have sympathy for them but they have something chronic and it shouldn't be routinely treated in the ED. Just my 2 cents
  6. by   auroranae
    In many cases those who are suffering with Fibromyalgia also have other illnesses that may or may not have been accuratley diagnosed... often rheumatoid arthritis, lupus, scleraderma and any other number of autoimmune illnesses and syndromes go hand in hand with each other and unfortunately they are not always a black and white right or wrong diagnosis and treatment.
    Sometimes it is the most frustrating thing on earth to feel awful and not even be able to understand it yourself, let explain it to others.
    Never place judgement on our co-workers or patients, you can never really know how they really feel.
    Some people can live with pain and illness and no one knows, while others cannot manage the most minimal of tasks ... everyone has different tolerances and different ways of coping.
  7. by   Miss Chybil RN
    Patients with fibromyalgia have elevated Substance P in the spinal fluid and decreased levels of serotonin which causes an increased sensitivity to pain - along with a severe sleep-disorder. The FDA has just approved non-narcotic Lyrica - a drug used to treat diabetic neuropathy, shingles and other nerve pain - for the treatment of fibromyalgia. Other drugs are also being researched.

    I'm increasingly offended by people who have neither fibromyalgia, nor medical degrees, trying to decide if the disease is "real," or not. People, do some research before you write off over 3% of the American population as simply attention, or drug, seekers.

    http://www.sciencedaily.com/releases...0601182522.htm

    If you're more interested in science than your own opinions you might find the above artice interesting.
  8. by   nurseaboveboard
    Wow, this topic always offends folks who have "it" when those of us who can't buy "it" express our feeling about "it" but here's my two cents worth. I have two female cousins actually on disability for this condition! I would love to be a mouse in the corner to see their functioning and just how disabled they really are. I personally have never seen a case that didn't involve depression and/or anxiety, which as we know, CAN be disabling, but also responds so well to treatment. However, to get permanent disability for this condiation just makes me mad. That's the plain fact, but just my opinion. You know, I can remember how difficult it was for my sister to get help when she was dying, plus, she had lost her job through no fault of her own, as the company moved. She was profoundly deaf as well. And Lyrica? What a wonderful tool this pharmaceutical mass marketing is.
  9. by   I love my cat!
    Quote from nurseaboveboard
    Wow, this topic always offends folks who have "it" when those of us who can't buy "it" express our feeling about "it" but here's my two cents worth. I have two female cousins actually on disability for this condition! I would love to be a mouse in the corner to see their functioning and just how disabled they really are. I personally have never seen a case that didn't involve depression and/or anxiety, which as we know, CAN be disabling, but also responds so well to treatment. However, to get permanent disability for this condiation just makes me mad. That's the plain fact, but just my opinion. You know, I can remember how difficult it was for my sister to get help when she was dying, plus, she had lost her job through no fault of her own, as the company moved. She was profoundly deaf as well. And Lyrica? What a wonderful tool this pharmaceutical mass marketing is.
    I am sorry your Cousins are suffering from Fibromyalgia and have to rely on Disability. Not many people can survive on the max given out ($12,000 a YEAR). The majority of people on disability get somewhere from $600-$800 a month and many do not even receive that much.
    Your Cousins must have had excellent documentation from several Physicians regarding their complaints in order to qualify for SSDI because the Government doesn't just hand out Disability because someone is "having a hard time". There has to be a level of severity of the disability. People also have to have limited assets in their name in order to qualify (I think less than $2,000 in the bank).
    I am also a little confused why you are mad that they are Permanently Disabled. It shouldn't matter what the Diagnosis is.....if the physical/psychological symptoms are interfering with their ability to do ANY type of work, they are considered Disabled. You can get Disability for all sorts of reasons, anything from anxiety to obesity. What might seem like a silly reason for someone to be getting Disability can be the same reason it cripples someone else.
    You are right about people with Fibro having anxiety/depression. Who wouldn't be depressed having chronic pain every day and who wouldn't have anxiety knowing that many people refuse to believe that pain is what they say it is? I know I would be.
    ****To add, if you truly do not believe that your cousins are disabled and that they should not be receiving Government Assistance...DOCUMENT, DOCUMENT, DOCUMENT!!! Take photos, keep a journal.
    There is a Social Security HOTLINE that you can use to report any suspected fraud. They take it very, very seriously and will investigate it.

    Good Luck!
  10. by   Miss Chybil RN
    Quote from nurseaboveboard
    Wow, this topic always offends folks who have "it" when those of us who can't buy "it" express our feeling about "it" but here's my two cents worth. I have two female cousins actually on disability for this condition! I would love to be a mouse in the corner to see their functioning and just how disabled they really are. I personally have never seen a case that didn't involve depression and/or anxiety, which as we know, CAN be disabling, but also responds so well to treatment. However, to get permanent disability for this condiation just makes me mad. That's the plain fact, but just my opinion. You know, I can remember how difficult it was for my sister to get help when she was dying, plus, she had lost her job through no fault of her own, as the company moved. She was profoundly deaf as well. And Lyrica? What a wonderful tool this pharmaceutical mass marketing is.
    Did you read the article I posted? Here is an abstract from another:


    http://www.ncbi.nlm.nih.gov/pubmed/9802912

    Fibromyalgia syndrome is a musculoskeletal pain and fatigue disorder manifested by diffuse myalgia, localized areas of tenderness, fatigue, lowered pain thresholds, and nonrestorative sleep. Evidence from multiple sources support the concept of decreased flux through the serotonin pathway in fibromyalgia patients. Serotonin substrate supplementation, via L-tryptophan or 5-hydroxytryptophan (5-HTP), has been shown to improve symptoms of depression, anxiety, insomnia and somatic pains in a variety of patient cohorts. Identification of low serum tryptophan and serotonin levels may be a simple way to identify persons who will respond well to this approach.
    PMID: 9802912 [PubMed - indexed for MEDLINE]
    Here is some information about the pregabalin (Lyrica) that I mentioned in my previous post:

    Pregabalin is used to relieve neuropathic pain (pain from damaged nerves) that can occur in your arms, hands, fingers, legs, feet, or toes if you have diabetes or in the area of your rash if you have had shingles (a painful rash that occurs after infection with herpes zoster). It is also used to treat fibromyalgia (a long-lasting condition that may cause pain, muscle stiffness and tenderness, tiredness, and difficulty falling asleep or staying asleep). Pregabalin is used with other medications to treat certain types of seizures in people with epilepsy. Pregabalin is in a class of medications called anticonvulsants. It works by decreasing the number of pain signals that are sent out by damaged nerves in the body.

    http://www.nlm.nih.gov/medlineplus/d...r/a605045.html
    Many people who have fibromyalgia are being treated with narcotics to relieve their pain. As you know, narcotics have side effects that would render most of us unable to work. The pregabalin does not have such side effects. There are others, of course, and it doesn't work for everybody. This is something for patients and their doctors to worry about.

    Anyway, you might tell your cousins to ask their doctors about it. You may give them their lives and livelihoods back. You never know...
  11. by   nurseaboveboard
    Dear I Love MY Cat...no WONDER we disagree, I'm REALLY allergic to cats! Actually though, I think cats are the most BEAUTIFUL of animals, and if I wasn't allergic, I totally would have one. I'll tell you, I have big problems with the ADA in general. As far as my cousins are concerned, I don't live near them so can't really form an accurate opinion. They certainly sound lively on the phone however! I think it's rare to have a disability that totally prevents one from doing SOME form of work. Couple this with the fact that I have known so many patients on disability during my career, and I'm telling you, so much of it is just CRAP. I have serious physical struggles myself, and actually my physician feels strongly that I absolutely would qualify for disability, suggested it to me, and offered to help me apply. Well, this made me break down allright, but not from relief, but from stubbornness! As long as I can walk, think for myself, and contribute, I WILL be doing some form of gainful employment. I want to be part of the solution, not the problem. Re others who posted after my post, I would like to see these brain substances measured on myself. And again, Lyrica? I suggest to you that women doctor more, medicate more, etc., and the pharmaceutical industry is hip to that. I'm not suggesting that people not take this medication, only that mass marketing is a huge tool and huge money maker. And this will probably put the last nail in my coffin, but I'll also suggest to you that the majority of folks that I've seen on disability could shortly come off the SS rolls by doing the following: Lose weight, exercise moderately, adopt healthier eating, stop smoking, stop drugs, stop drinking, and really look inside THEMSELVES and ask, "What can I do to improve my situation?" Oh, just one more thing, but along the same lines. Is it just my imagination, or am I seeing more and more people on carts?
    Last edit by nurseaboveboard on Jan 18, '08
  12. by   Miss Chybil RN
    Quote from nurseaboveboard
    I'll tell you, I have big problems with the ADA in general. As far as my cousins are concerned, I don't live near them so can't really form an accurate opinion. They certainly sound lively on the phone however! I think it's rare to have a disability that totally prevents one from doing SOME form of work. Couple this with the fact that I have known so many patients on disability during my career, and I'm telling you, so much of it is just CRAP. I have serious physical struggles myself, and actually my physician feels strongly that I absolutely would qualify for disability, suggested it to me, and offered to help me apply. Well, this made me break down allright, but not from relief, but from stubbornness! As long as I can walk, think for myself, and contribute, I WILL be doing some form of gainful employment. I want to be part of the solution, not the problem. Re others who posted after my post, I would like to see these brain substances measured on myself. And again, Lyrica? I suggest to you that women doctor more, medicate more, etc., and the pharmaceutical industry is hip to that. I'm not suggesting that people not take this medication, only that mass marketing is a huge tool and huge money maker. And this will probably put the last nail in my coffin, but I'll also suggest to you that the majority of folks that I've seen on disability could shortly come off the SS rolls by doing the following: Lose weight, exercise moderately, adopt healthier eating, stop smoking, stop drugs, stop drinking, and really look inside THEMSELVES and ask, "What can I do to improve my situation?" Oh, just one more thing, but along the same lines. Is it just my imagination, or am I seeing more and more people on carts?
    It does not matter whether it is your imagination, or not. You will see things as you wish and in no other way. Good luck to you.
  13. by   nursemoons14
    Quote from traumaRUs
    It does seem to be the diagnosis of the day. Here in central Illinois - we have the guru of fibromyalgia - an MD that "discovered it" and treats it agressively! I'm with the above posters - think it has more to do with depression than a true physical diagnosis.
    I hate to sound like Im judging them but as soon as I take report on an ambulance and hear "history of fibromyalgia" its almost always associated with depression, manic disorder, or some sort of mental disorder. And they are usually (and not always) the biggest whiners in the dept.

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