Fibromyalgia - page 24

What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with... Read More

  1. by   48RVRN
    Quote from andierrn
    omg!!!! i so agree!!!! i'm sitting here reading these and thinking... my feet, calves and the back of my thighs still hurt from yesterday! and i was so tired last night i slept wrong on my right arm! do i have fm? no but i bet there are plenty of md's out there who would be happy to write me a script and label me!
    what i need to do is get off the computer and off my butt and go for a power walk and work out the kinks! but that's not everyone there are patients who have muscle aches and pains that are real and they don't need a quick label or to be judged.
    we see alot of patients in my er that are there for pain medication and when you ask for their history the first thing they list is fm. they also have run through several anti-depressants and anti-anxiety pills and "nothing seems to work any more" most of my co-workers just roll their eyes and say "drug seeker". that may be, but i try to have empathy and accept each one at face value. is the medical field feeding in to this by over diagnoising patients and just giving them the magic pill?
    i'm off for that walk now!!....
    andi errn
    i agree that there are far to many doctors that will slap a label on people!! thanks for pointing this out!

    could we just try a few less pills and a little more exercise with some of the folks that come to us? not all, certainly, but at least some???
  2. by   Miss Chybil RN
    Quote from 48RVRN
    I agree that there are far to many doctors that will slap a label on people!! Thanks for pointing this out!

    Could we just TRY a few less pills and a little more exercise with some of the folks that come to us? Not all, certainly, but at least some???
    Exercise definitely helps, but it is not the magic bullet, either. Seeing as we all need exercise, anyway, hey let's go for it! I exercise much more now than I ever did before I started having fibromyalgia symptoms. It does help, but it does not cure.

    The labeling is not just done by the doctors. So, how about we stop that first and make a concerted effort in finding out what causes this DISEASE?
  3. by   mmutk
    Speaking of Fibromyalgia,

    I was filing a evidence of Insurabilty for my work's life ins policy and there were four obvious options for higher rates, they were

    1>Do you skydive
    2>Do you scubadive regularly
    3>Do you Race cars or boats
    and
    4>Have you ever been diagnosed with Fibromyalgia


    The last one caught me off guard
  4. by   33-weeker
    Quote from RNCENCCRNNREMTP
    I love these "fashionable" diagnoses

    Fibromyalgia

    Chronic fatigue (Epstein Roseanne barr)

    Hypoglycemia (not diabetes)

    Mitral valve prolapse

    I knew I was in trouble in the ER when a young woman came in and listed ALL of these as her past history.

    Aaaaaaarrrrrrrrrrrrrrgggggggggggggghhhhhhhhhhhhh!
    As someone who was diagnosed via an 8-hour GTT with hypoglycemia, I can attest that it is REAL (not to say someone can't claim to have it who doesn't). Shall I come pass out in your unit from a BS in the basement to show you?
  5. by   teeituptom
    Quote from mmutk
    Speaking of Fibromyalgia,

    I was filing a evidence of Insurabilty for my work's life ins policy and there were four obvious options for higher rates, they were

    1>Do you skydive
    2>Do you scubadive regularly
    3>Do you Race cars or boats
    and
    4>Have you ever been diagnosed with Fibromyalgia


    The last one caught me off guard
    I can say yes to number one, no to the rest. I can understand why on all questions.
  6. by   Monica RN,BSN
    Quote from nicki2
    i have been diagnosed with fm for over 10 years.

    a. i am not a hypochondriac b. i am not depressed...i am very happy c. i do not take any pain meds. i have learned to deal with my pain. it is not the same as simple aches and pains...i wish that was all it was...but if one sits and stays in bed, wallows in self-pity...then yes they will feel greater pain and be depressed.

    i know this is old, but i am just finding this thread and i can identify with soo much that i see and read here. i have fm and a pretty severe case at that. my pressure points are very sensitive with very minimal pressure applied. the pain is real and not in any way imaginary. i do take antidepressants and i do take narcotic pain meds. the common rx for fm is oxycontin. i have oxycodone 30 mg 4 times a day. that sounds like enough to kill a horse, but it is what works well for me. i am able to manage my day well with no worries of being drowsy, no worry with driving and no worry of any chance for working impaired. my body is very used to my pain regimine and i can function well as managed. i have some very bad days where i can hardly walk and stand up straight for at least 30 min before i can be standing up properly. for those fm doubters out there.. please simply keep in mind that pain is truly subjective and you can not even begin to imagine how dibilitating fm can be.



    to those of you that have fm, i say, "get out of bed and off the couch and go to work!" it may hurt like heck, but you will feel worse if you do not move. in addition, "stay off the sleeping meds and narcotics!"


    thank you for those kind words.......
    i have been out of work for 6 weeks now... i needed that kick in the a$$ to get a job already, i do feel better when i get out and do something..



    so silybo...there are some of us with fm that have never visited an er for pain control for fm and do not plan to do so in the future. do not lump all of into the same basket. it is a real shame to read how so many nurses have lost their compassion, because of a few frequent fliers.
    well said.. i have never visited an er for pain related concerns. i agree that one cannot lump us all into one basket. each individual is their own person, with different ways of dealing with their pain physically, emotionally, chemically or whatever works for that person.

    enough said... have a good day to all
    Last edit by Monica RN,BSN on Jul 30, '07
  7. by   chewchabuckala
    I was dx w/fibromyalgia about 18 yrs. ago. Tried everything. I was hyperactive, slept well, my feet barely hit the ground, I was on a dead run all the time. It was just between job, inlaws, kids, sick spouse, sick sister, really getting deboned! Now, 18 yrs later, my husband can not hug me as it hurts so bad. I need the hugs so it's worth the pain. My rheumatologist doesn't believe in fibromyalgia. Now my dx. by testing shows vitamin deficiencies, osteoarthritis, RLS, s/p Graves Disease treated by RI 131, boy was that a mistake. Ended up with thyroidtoxicosis, throiditis, bouncing back and forth from hyperthyroid to hypothyroid. Whatever those beginning symptoms were have now progressed to vitamin D deficiency, hypothyroidism, hyperlipidemia, elevated liver enzymes, chronic pain syndrom, fascitis, chronic leukocutosisw/elevated alkaline phosphate levels. It takes me 5 days to do what I use to get done by noon on any given day. I have had so many scopes, x-ray, scans, probes, EMG, NCV, venous insufficiency, diabetes, and I bruise easily, feels like I'm walking on shards of glass when I walk, and just a few weeks ago I was dx by Neuo w/peripheral neuropathy, and will be having tests done for spinal stenosis.
    SO, Fibromyalgia may be a garbage can diagnosis, but I truely believe it is a precursor to autoimmune disease. I know I already have deterioration of my C spine, lumbar, and chronic chondrocondritis.
    I sure wish my spell checker would work! To take a motrin was about as medicated as I would ever get. I just hated taking pills, and injections came second. So, their are alot of experts on this forum.
    You tell me, am I an exception to the rule, or do they dx fibro, throw you a few pills and tell you your depressed, avoid stress, and get regular exercise instead of following up with sed rate, blood draws to check T3 levels, and dig their teeth into what the real culprit might be.
    I really don't know. All I know is that over the past nearly 20 yrs. I have just slowly become a "basket case". Now I am depressed, and I would give anything to be pain free, do the wild thing without worrying about the dismount, and still be smiling and running instead of crawling!
    If you have fibromyalgia, be aware of other S&S. What's your take?
    Chewchie
    Last edit by chewchabuckala on Aug 8, '07 : Reason: misspelling
  8. by   smiles04
    Quote from BabyRN2Be
    Veetach, if that's the case, run, not walk to your nearest physician and join the gang of the rest of us who have muscle pain after working long hours. It seems as if a doc can't find another diagnosis, they tack "fibromyalgia" on the sheet in order to get reimbursed. I know that's a harsh thing to say, but that's what I see a lot.

    I know that some people who have auto-immune disorders (SLE, RA, scleroderma) have fibromyalgia as one of the symptoms and in that case I don't feel that it's a "catch-all" dx. It's when someone comes in with some pains, who is a little down, and doc writes the whole dx as "fibromyalgia" instead of it being a symptom.

    BTW, I do fall into the group with the auto-immune disorders who have fibromyalgia as a symptom; however, I don't have any problems with depression.

    Okay okay you guys I think we are getting too broad here. No no no aching from long hours and some creaky arthritis is not what we are talking about. this lady with all the tests now thats the real deal.

    However, I DO think there is a cause. I dont know what it is but immune seems to be going in the right direction. I do know this is not oh I ache pain it is the debilitating pain that hurts so bad you cant get up and you want to. Pain meds make you sleepy and are bad for you anyway contributing to future problems and drepression you better believe Id be depressed if I hurt so bad I couldnt get out of bed or walk hardly. AND NO I dont think these people are messed up and are depressed and psychosymatic this is real.

    I also know naturapathic medicine is on the rise. Kevin trudoues book on natural cures and his web site is absolutely amazing I recommend it to everyone. Calcium and magnesium at night will help with pain because it will releave some of the muscle cramping (spasming) also is a natural sleep agent. Get you body into good shape. No one will take care of it but you. If you are overwt and eat junk and drink junk well then what do you expect to see and feel in the morning. One day I thought I want to live and be healthy I cut the sodas and the stuff with lots of preservatives. Got on a good vitamin regimin and my hair started growning I lost wt and then I started doing yoga for inner strenghth and outer strength. The stretching made me more limber and ache less. I was a 40 year old who felt like a 90 yr old. Now I feel young and 25 I do still ache but mind over matter is strong too. If your depressed definitley see a doc. I know sometimes some low dose antidepr can do wonders if you need it. Also message is wonderful. I sure hope that we as nurses encourage our patients families and doc to look further than the pill. Thats what the pharmaceutical comp want us to do so they can make more more more. And no they dont want to promote vitamins then where would they be.

    ******to the lady with all the pain and fibro ARE YOU HAPPY? IF NOT TRY LIKE HECK TO CHANGE THAT. ARE YOU UNHAPPY AND THINK YOU ARE HAPPY LOOK WITHIN. I THINK THE SX ARE REAL FOR YOU BUT YOU HAVE TO WANT TO CHANGE SOME THINGS ALL THE DOCTORS AND MEDS WILL NOT HELP YOU IF YOUR STILL UNDER LOTS OF STRESS OR ARE NOT LOVED. IT SOUNDS LIKE YOU ARE BUT JUST EVALUATE. GOOD LUCK AND GOD BLESS YOU PRAYER IS AMAZING TOO YOU PRAY AND I WILL TOO. SMILES O4
  9. by   smiles04
    Quote from Monica RN,BSN
    Well said.. I have never visited an ER for pain related concerns. I agree that one cannot lump us all into one basket. Each individual is their own person, with different ways of dealing with their pain physically, emotionally, chemically or whatever works for that person.

    enough said... have a good day to all

    man I wish us nurses would get off out duffs and create a sight to do research and accumuater research for things like this.

    I and several people I know have this its like reading my story. I must say that pain meds work and so does the antidepr. I feel that the RLS is related somehow.

    Mine first started when I got tingling in the soles of my feet then thighs mving all night twisting my ankles then I became tired. couldnt figure if it was from RLS keeping me up or fibro. I do have two disc problems. I wonder if the meds compound things too. I dont know. I HATE BEING SLEEPY AND NO GET UP AND GO BUT I CANT STAND THE PAIN OFF MEDS I WANT TO CRY AND JUST LAY DOWN. I LIKE WORKING BUT AFTER ABOUT 6 MTHS I CANT TAKE IT. IM OFF FOR A WHILE THEN I GO BACK IT SUCKS. MY EMPLYERS WANT TO KNOW WHY I HAVE HAD SEVERAL JOBS HOW CAN I TELL THEM THE TRUTH THEY WONT HIRE ME SO PT OR AGENCY WORKS WELL. I AM SEARCHING FOR MORE NATURAL CURES HOPING THEIR BETTER THAN THIS HELL. ANY ADVISE.

    Im so glad the pain meds work but what about tolerance. I mean you may really think your okay on those high doses but are you really or have you just not had anything bad happen yet. scarry. I mean I understand both sides you know.

    Well take care all.
  10. by   smiles04
    Quote from smiles04
    man I wish us nurses would get off out duffs and create a sight to do research and accumuater research for things like this.

    I and several people I know have this its like reading my story. I must say that pain meds work and so does the antidepr. I feel that the RLS is related somehow.

    Mine first started when I got tingling in the soles of my feet then thighs mving all night twisting my ankles then I became tired. couldnt figure if it was from RLS keeping me up or fibro. I do have two disc problems. I wonder if the meds compound things too. I dont know. I HATE BEING SLEEPY AND NO GET UP AND GO BUT I CANT STAND THE PAIN OFF MEDS I WANT TO CRY AND JUST LAY DOWN. I LIKE WORKING BUT AFTER ABOUT 6 MTHS I CANT TAKE IT. IM OFF FOR A WHILE THEN I GO BACK IT SUCKS. MY EMPLYERS WANT TO KNOW WHY I HAVE HAD SEVERAL JOBS HOW CAN I TELL THEM THE TRUTH THEY WONT HIRE ME SO PT OR AGENCY WORKS WELL. I AM SEARCHING FOR MORE NATURAL CURES HOPING THEIR BETTER THAN THIS HELL. ANY ADVISE.

    Im so glad the pain meds work but what about tolerance. I mean you may really think your okay on those high doses but are you really or have you just not had anything bad happen yet. scarry. I mean I understand both sides you know.

    Well take care all.
    Sorry about the typos am on a small keyboard
  11. by   TallBlondie
    There also seems to be a correlation between the # of "allergies" a patient has and a diagnosis of fibro.
  12. by   smiles04
    Quote from TallBlondie
    There also seems to be a correlation between the # of "allergies" a patient has and a diagnosis of fibro.
    Ive heard that too. How bout stress. I mean big time stuff like divors abuse etc. everyone I know who has it has gone thru some maj stuff what about you other fibros out there did you have lots of stress prior?
  13. by   chewchabuckala
    Long term, chronic stress will do one of two things, in my opinion, kill you or make you wish you were dead! Yes, some stress is good, it will bring out your competetive edge, gets you to thinking, etc. But uncontrollable high types of stressors, unrelenting, over time, oh my.
    Examples, look at POW'S, PTSD, Trauma victims. You don't have to have suffered through those types of duress, but I will always believe that long term stress is the root cause of alot of debilitating illnesses.
    Understanding that should prompt the doc's to do blood draws and dig into a patients complaint of fibro, chronic pain, and chronic fatigue.
    If you have these symptoms at 35, and you just keep on going down the same road, kids, spouse, work, in-laws, family, neighbors, etc......
    then when you turn 50, your a physical wreck.....with varifiable diagnosis that you really do have something wrong with you, look at all the years that pasted. A new mother is expected to be tired, if your mother has alzhiemers your the care taker, yeah, your expected to be stressed out, but what about when you remove the stressors and the problems just continue to progress to viable disabilities, mobility issues, and your labeled as a "person who just wants drugs" by the medical community? I think it's time to change our thinking. Maybe this person has to have these meds just to have some quality of life? Usually if they present in the ER or an office setting, you have a chart so look in it and see what you find under referrals, radiology reports, x-rays, past medical history.......I think some if not most health individuals just don't see you for what you were, only what illness has done to make you what you are today. I believe it's called communication and compassion.

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