Fibromyalgia - page 22

What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with... Read More

  1. by   KohioRn07
    I havent posted much on allnurses but this thread on Fibromyalgia caught my eye...Let me first say I was an er nurse and on my way home from work in nov 97 I was hit by a drunk driver...After a severe whip lash that herniated my c5-c6-c6c7 with cord compression and ultimate cervical fusion, 6 months after my accident I was diagnosed with Fibromyalgia..
    I was never sick a day in my life prior to my accident..Unless you have experienced fibro one should not roll there eyes so to speak at people that have it...The pain, the fatigue, the memory problems and all the other symptoms that comes with fibro is no fun....Its no fun going from doctor to doctor trying to find out whats wrong with you when you know deep in your heart you really are in pain etc...I was not asked for the diagnosis of fibromyalgia it was given to me because of the symptoms I was having..One of the only diagnosing factors the tender points I had 16 of the 18. I was never depressed prior to having my accident.. Yes i became depressed afterwards because of living in pain everyday and not being able to work anymore. I lost about 9 yrs of my life thanks to a drunk driver..
    Fibro must not be considered a waste basket diagnosis to social security disabilty.. I fought all the way thru there system and had to go in front of a judge who believed me, and I won my case...
    Thankfully after many years of pain and frustrating and having cancer 2 years ago, I have reinstated my license and am looking for a job again. I am off all my meds feeling the best I have in years. I can't say my fibro is totally gone but I don't have near the pain and fatigue I used to have. Thats the strange thing about fibro they dont know exactly what causes it and out of the blue it can be gone.......So please don't judge a person because of a diagnosis they have, because you dont know how exactly they arrived at that diagnosis.....
  2. by   zozzy777
    My mother was rear ended in a car accident more than 15 years ago and has since then been diagnosed with fibromyalgia. While the diagnosis is based strictlly on subjective information, the diagnosis is real. We have all been taught, pain is exactly what the patient says it is. Who are we as nurses, to tell a patient they are not having pain. Whether their pain is real or imagined, it is very real to them. I have seen my mother in constant pain and prior to that she was never sick and fully functionally. We tend to get jaded because we are exposed to the persons we know are drug seekers. We need to remember the patient comes first, not our opinions of the patients and their complaints.
  3. by   teeituptom
    But ER is still not the proper place for Alledged FM pts. They need a pain control doctor. ER is totally inappropiate for people with FM to go to to try to control their pain. We relieve pain. Chronic problems need a specialist. Not ER
  4. by   smiles04
    How many of you have FM or know someone that does. Truely nurses and doctors need to remember before the microscope the microbes were there we just didnt know it. Just because we have not found a cause does not mean it is not real. I have a close friend who began having restless leg and hip pain turned into leg tingling aching constantly yes she has a little disc stuff and probably some arthritis but the pain came before the crying. Ive litterally sat with her and cried with her because she hurts in bed when she wakes up she hurts during the day if she doesnt get enough rest its worse. shes been on pain meds neurontin is out she said that stuff is well forget it. she still leads a seminormal work life but changed to a sit down job. My boyfriend also has it. he has maj disc issues. I know fm also affects arms and fatigue is assoc. How can docs just say its in your head when theyve got so many in the office. Because they re to busy andprob dont care. I will say that both of these special people in my life have found massage and stretching to be fantastically helpful. When it hurts all night your exhausted in the morning and you just cant imagine making it through the day when you live with someone like that you know its real. I hope this has been humbling for some and you realize you should not judge. pain scale we all know varies per individual and that may not neccessarily be because they are a wimp and someone else isnt. maybe it truely does hurt worse than others. hope no one you know has this very troubling problem. Hope your compassion will grow.
  5. by   smiles04
    Oh about the drug seekers. Some of these patients make it through the day because of narcs no its not a end all, but if they have a better quality of life isnt that the point. yes we need other alternatives but if there arent any than what? let them suffer?
  6. by   kemrich
    It seems to me that "fibro" is the catchall phrase given to the hypochondriac who is in the MD's office q2d for every ache, pain, and "I...I don't quite know what it is, I'm just not myself today."

    The ADD/ADHD/ODD of the middle aged medical patient. What ever happend to the good ol' "theres nothing wrong with you, go outside and get soem fresh air." Instead they get a prescription for hydromorphone and a Duragesic patch.
  7. by   Jenzee
    Quote from kemrich
    It seems to me that "fibro" is the catchall phrase given to the hypochondriac who is in the MD's office q2d for every ache, pain, and "I...I don't quite know what it is, I'm just not myself today."

    The ADD/ADHD/ODD of the middle aged medical patient. What ever happend to the good ol' "theres nothing wrong with you, go outside and get soem fresh air." Instead they get a prescription for hydromorphone and a Duragesic patch.

    Even after reading all of these emails from people who suffer from "fibro", or know someone who suffers from it, you can still claim that they are hypochondriacs? That's a little insensitive, in my humble opinion.

    There are many illnesses that we now know to be diseases that years ago simply were not recognized by the medical community, let alone the public in general. I would think that depression would be a good example of this.
  8. by   Jenzee
    Quote from kemrich
    The ADD/ADHD/ODD of the middle aged medical patient. What ever happend to the good ol' "theres nothing wrong with you, go outside and get soem fresh air." Instead they get a prescription for hydromorphone and a Duragesic patch.
    I'm not sure I get what you are saying here, you do not believe in ADD/ADHD/ODD? Ever know someone personally that has been DX with any of those? I use to work with children with ADD/ADHD trust me they are real.
  9. by   LeahJet
    Quote from teeituptom
    But ER is still not the proper place for Alledged FM pts. They need a pain control doctor. ER is totally inappropiate for people with FM to go to to try to control their pain. We relieve pain. Chronic problems need a specialist. Not ER
    You are exactly right, Tom.

    I once triaged someone that said she was in "end stage Fibromyalgia".
    No joke.
  10. by   caroladybelle
    Quote from teeituptom
    But ER is still not the proper place for Alledged FM pts. They need a pain control doctor. ER is totally inappropiate for people with FM to go to to try to control their pain. We relieve pain. Chronic problems need a specialist. Not ER
    This is I believe, a major point.

    There are alot of people out there with painful medical conditions and autoimmune diseases. Some go to the their MD as scheduled, give nonmedication therapies a legitimate trial, change diet and behavior, and find that they need fewer meds to cope. These are rare vistors to the ER.

    There are also those, that will not see their MD appropriately, will not give other therapies a reasonable trial, will not change diet or behavior and give excuses as to why they "cannot" try therapies other than narcotics.

    I have had my bowel resected since 19 from another issue, and then developed ulcerative colitis 5 years later in the remainder. Yet I have I only once been hospitalized from it. I take no narcotics for it, even though the autoimmune effects from the disease attack and swell joints. I get plenty of rest, restrict from my diets foods that flare the disorder. I drink plenty of fluids, even though it is inconvenient to get up to the bathroom so often. I take regular exercise but do not overexert myself. And I do not wait for things to get severely out of control before calling my MD.

    But I deal often with those having severe abdominal pain....after getting dehydrated, eating large boxes of popcorn and other abrasive foods, not resting, overindulging in alcohol, etc. And they will be demanding morphine push..."because it doesn't work for them any other way", be allergic to everything else, and be sneaking corn chips while on their "bowel rest" diet. And every one will tell the staff, "But YOU just don't know how painful IBD can be" as they get their disability paperwork signed, and get the pain shot before going down to smoke.

    Yes, there are many people that have disorders that are painful. But some use those disorders as an excuse and there are others try to live with the disease and succeed in spite of them. The former tend to drive the ER nuts because the ER is NO PLACE to deal with chronic disorders.
  11. by   teeituptom
    Quote from Jenzee
    Even after reading all of these emails from people who suffer from "fibro", or know someone who suffers from it, you can still claim that they are hypochondriacs? That's a little insensitive, in my humble opinion.

    There are many illnesses that we now know to be diseases that years ago simply were not recognized by the medical community, let alone the public in general. I would think that depression would be a good example of this.
    I dont think its insensitive, and afterall hypochondriasis is a disease
  12. by   Yvette Acute ER RN
    I have had all over body pain since I was 18, I am now 41. I have given myself two ulcers from Motrin use, and am able to control severe attacks with ultram... This is a very sensitive issue for me as I have worked as an ER nurse for 10 years and EVERY nurse and doc I work with feels FM is a wastebasket diagnosis. So I have said NOTHING to anyone and suffer in silence. I have had the ANA test, no rheumatoid titer, and my primary at one point decided I had narcolepsy (FOR GODS SAKE) despite my assertions that the reason I kept falling asleep was because I could not sleep greater than 2 hours without waking in excruciating pain. He actually said "what you are describing sounds like fibrositis," so I looked it up. It was the old term for fibromyalgia! (My eyes are watering as I write this) So I wonder, do I have this elusive FM (even though no medical professional I associate with believes in it) or are my fingers swelling from mental suggestion? Mind you, I work like an animal and am perpetual motion (I am quite slim) and work aches are quite different from my chronic pain, and I find that this quandary I am in is very depressing. So there is a testimonial for you.

    Funny how I can write this and yet not tell a soul!
  13. by   Jenzee
    Quote from teeituptom
    I dont think its insensitive, and afterall hypochondriasis is a disease
    So you truly believe all of the people with this DX are hypochondriacs?

close