Fibromyalgia - page 13
What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with... Read More
Apr 11, '04Quote from teeituptomSo would 8 out of 10 possible WOWSAs be good?...or bad?Dont give them any Ideas
ask pt How did your Dilaudid work
"WOWSA WOWSA WOWSA WOWSA WOWSA WOWSA WOWSA WOWSA"
tHAT WOULD BE AN 8 ON A 10 FOR THE WOWSA SCALE
hee hee hee
Apr 12, '04Quote from RNin92I guess that would depend on whetehr your the pt or the nurseSo would 8 out of 10 possible WOWSAs be good?...or bad?
hee hee hee
Good for the pt
poor nurse has to listen to them
after the dilaudid they always want a sandwich and some coffee
Apr 12, '04Quote from teeituptomand a smoke...don't forget the smoke!!I guess that would depend on whetehr your the pt or the nurse
Good for the pt
poor nurse has to listen to them
after the dilaudid they always want a sandwich and some coffee
Apr 12, '04Today's medical science (whoops, medicine is not a science; it uses the sciences) tends to deny or disregard entire domains of reality. Medicine is so far behind the true sciences that it would not recognize the existence of the cell phone except for the fact that a cell phone can be held in one's hands. So, because "modern" medicine can't get a handle on certain conditions, some of you tend to fall right in step with this ancient form of medicine?
Apr 12, '04Quote from veetach******************************************What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with "fibromyalgia" and the numbers are getting larger and larger.
I even had a patient tell me that fibromyalgia patients were predisposed to trigeminal neuralgia.
As a RN of 26 years who has had Fibromyalgia since 1986 (back when "it was an all in your head thing"), I can tell you that...yes it is sometimes used as a "catch all"; by those who are not knowledgeable about the condition. It's a lot easier for some MD's to give you this Dx than searching for other maladies when the presenting symptoms are seen as profuse and vague.
It is a very real condition, and is one that most physicians are not familiar with...I have been able to inform patients on this syndrome to a much greater extent than MD's...because it is a part of my life.
It is depressing to be in pain and fatigued all the time, but...clinical depression is neither a cause of, nor a result of, FMS.
The best thing I can tell you is to search out information about this disorder and use it to educate and inform both patients and doctors with whom you have contact with.
The second best thing I can tell you is to pray that neither you nor any one you know and love comes down with this...it is very difficult to live with.
But speaking for myself, I now am under the care of a knowledgeable Rheumatologist and we have formed a treatment plan for me, that has enabled me to work at least on an "agency" basis.
Being that I have had this malady for going on 18 years, I have been through the fire and the flames of both learning about and managing this condition.
The CDC is continually doing research on this, when monies allow, and several things have been found out recently about this disorder.
That those who have it have: changes in Scec scans, have different sleep study results, have a higher percentage of substance P in their spinal fluid (relates to pain sensitivity and compares to that of cancer patients), have narrow cervical spines when compared to the normal C-spine studies, these are just a few I can pull up off the top of my head...there are many others.
Some people compare it to being linked with the CFIDS, but I can't correlate them precisely together. Although they do have similarities, they also have differences. If you have CFIDS you are more likely to have an easier time getting SSI benefits than with FMS, but that is also changing.
I hope to be able to continue to work, but at this time am recovering from my third cervical spine surgery and my second lumbar spinal surgery. I believe my beginnings with FMS started back in 1985 after my first motorcycle accident that resulted in a neck injury, and it has been thought that FMS can begin after a time of trama...physical or emotional.
There is still SO much that needs to be learned about this condition.
My best advice would be to follow the recent pain guidelines...if a patient states they are hurting, give them the benefit of the doubt, because you can't feel what they feel, each of us exhibits pain in a different way (pertaining to environment, culture, etc.), and sometimes they need someone to just listen.
Many patients with this syndrome look "normal" and that can cause others to disbelieve the complaints...but there are many Dx and illnesses which look normal to start with.
We will continue to learn more about this disorder in the coming years, until then...just offer the old standby...TLC.
Apr 20, '04I must throw my hat into the ring of believers. Fibromyalgia Syndrome (FMS) is a very real disease and I have had it for about three years now. It is often associated with other auto-immune diseases (of which I have SLE). I've been reading through parts of this thread and at first it angered me; then I read replys from some sensible people and felt better.
I am not a hypochondriac or a drug seeker (I was given a scrip for Oxycontin and I tore it up). While I do have clinical depression, which came first? Ah, the old chicken and egg theory that someone mentioned. The pain of FMS is like no other I've ever experienced. Imagine your entire body feeling like you were beaten severely with a baseball bat (or worse). The bones don't hurt, but every muscle (even those you don't even know you have) hurts. Sometimes just the weight of a sheet covering me is too excruciating to bear. Despite being exhausted to the core, I have difficulty falling asleep and then staying asleep, as every movement causes pain. Of course it's not like this every day (thank God), but some days can be this way. As for just getting out of bed and carrying on, I do this most days. I have a day every now and then when it's all I can do to physically open my eyes, as using those muscles hurts too much. Most days, I just carry on and grin and bear it, but I am never without pain.
I think that the reason we're hearing about FMS more now is that physicians have been undereducated about it. As one poster said, it was only "discovered" in the 80's. Not a lot has been taught in med school about it and it was generally thought about just like many posters here do.....it's in your head, you're a hypochondriac, you're crazy, you're making it up, or you're a drug-seeker. More is being taught now and more is out there in medical journals, so more docs are recognizing it and treating it as it should be.
Why did I rip up the Oxycontin scrip?? Because it had been tried before and it didn't do a thing. I avoid narcs like the plaque, but gave in one time, being desperate for some relief. I got none from the Tylox they gave me.
I urge any "disbelievers" to open your minds. Research FMS on the web, learn about it, and give it's suffers the same compassion you give to sufferers of other diseases. Please!
Apr 20, '04Quote from NannaNurseBoy oh boy....I'm not sure if I should even comment. I'm almost embarassed to admit I suffer from FM.......have for about 15 yrs now. Depressed?? Sometimes I am. If you can't imagine moderate to severe pain 24 hours a day, then you don't know what 'we' go through. You get really sick and tired of hurting all the time. You know how you hurt when you feel sick?? How your skin even hurts just to touch it??
Please don't judge those of us with FM as people who are babies or can't handle 'alittle pain'. We are everywhere and all we are asking is that people TRY to understand we just want some relief. Those of us who are nurses should be the most understanding. Please don't ROLL YOUR EYES when you see FM as a dx....
I also agree that the ER is just that......emergency room. I worked in ER years ago and we would have the same people come in night after night. It would be nice to have a special screening room for all those who are not in immediate need of care.
I thought I had a pinched nerve or something in my shoulders and neck until other things started happening. I had some positive tests, that I won't go in to, but a rheumatologist diagnosed me with FMS 8 years ago. I have never been to the ER for pain, I have never taken anything stronger than ibuprofen or a GOodys powder :roll (All Hail the power of the GOODY), but I know others who have to ....it is not a weakness, everyone is an individual and react to things differently, or are affected differently...I hope if I ever have to face the embarrassment of going to the ER for my pain, that I have a nurse who is kind and understanding....not as some of the posts here. I also agree, the ER is for emergencies....but what's trival to us who are used to it, is an emergency or a downright disaster to others... we just go on......
Apr 21, '04Hello, again;
After Teeituptom wrote about a scale of WOWSA, I backed off this thread for awhile to think about things. Pain is a very SUBJECTIVE sign...there
are some of us out there who are Stoics or Amazons, and more power to those
who are!!! Although, it is my thought that you all are destined for wheelchairs
sooner than the rest of us!! And that was a J-O-K-E.
FMS...I wonder if there is a link between FMS and Staphyloccoccus Aureus,
as well as Osteomyelitis?? Or could the nasty that causes osteomyelitis be
one of those DORMANT buggers? Tell y'all what...I'll go look!!!
FIRST thing I learned as an EMT was this particular lesson in
LIFE from an instructor...there is no such thing as "normal" or "average".
The SECOND thing I learned was BE PREPARED. The THIRD thing I learned
was that in all things have an open mind. You tell me that you hurt, I'm gonna believe, DESPITE everyone else's opinion. For they are NOT you, and sometimes(if not MOST of the time) it is hard to clarify just HOW much pain
a patient is experiencing.
FOURTH RULE: BELIEVE YOUR PATIENT, unless you suspect otherwise. THEN
check it out, but give the patient the benefit of the doubt.
Life, my dears, is not easy. Neither is living life with pain, and it matters NOT ONE WHIT what sort of pain is being suffered...what comes to the fore is, ultimately, the quality of life is being marred. I don't have an answer, but I
have LOTS of questions, and THAT IMHO keeps me alive, if not vital. I'm only spouting cause I can't speak for the rest of the colleagues on this thread...
May 28, '04I was diagnosed with fibromyalgia 9 years ago after 5 years of pain, chronic tiredness, feeling like I had the flu all the time. The many different doctors that I saw or were referred to during those first 5 years made me feel like many of you "oh, so caring nurses" are making me feel again as I read these posts. Comments like, 'I know it's not funny, but....', 'just a fashionable disease', 'why did fibromyalgia just come about in the late 80's?', ' just drug seekers', 'hypochondriacs' ,'whiners', 'we all have aches and pains, get over it', etc. I went to a fibromyalgia seminar a few years ago, the speaker was wonderful and asked us this question...... Did any of you know that before the discovery and diagnosis of MS, the patients complaining of those type of symptoms were told it was all in their heads, to quit whining and complaining, and just get up and get over it. I truely hope that I will never have to be in the care of some nurses that have posted here.
May 28, '04This disease in is the New England Journal of Medicine.It is a real disease and people are suffering with it. The biggest enemy of those suffering are ignorant people who blurt out opinions they have heard from one another instead of doing their own investigation, and correcting the wrong.Imagine if people said M.S. was fake? You do realize that there are those people who have M.S. without having positive lab results.So lets be more sensitive to those suffering.
May 28, '04Quote from spiritusi want bill back!!! [/quote]i could go on and on...but who cares....not many of the er nurses on this thread.
you can have him, we don't want him.
May 29, '04Quote from SRbear__________________________________________________ ______________I was diagnosed with fibromyalgia 9 years ago after 5 years of pain, chronic tiredness, feeling like I had the flu all the time. The many different doctors that I saw or were referred to during those first 5 years made me feel like many of you "oh, so caring nurses" are making me feel again as I read these posts. Comments like, 'I know it's not funny, but....', 'just a fashionable disease', 'why did fibromyalgia just come about in the late 80's?', ' just drug seekers', 'hypochondriacs' ,'whiners', 'we all have aches and pains, get over it', etc. I went to a fibromyalgia seminar a few years ago, the speaker was wonderful and asked us this question...... Did any of you know that before the discovery and diagnosis of MS, the patients complaining of those type of symptoms were told it was all in their heads, to quit whining and complaining, and just get up and get over it. I truely hope that I will never have to be in the care of some nurses that have posted here.
Hon, I'm not sure why you sent your derogatory reply to me...read MY post at #162...I've had Fibromyalgia for 26 years...I KNOW IT'S REAL...God Bless, Pam