Washington Redskins Cheerleader Suffers Dystonia From Flu Shot

Nurses COVID

Published

at 26 years old, desiree jennings was the picture of health. she's a washington redskins cheerleader and an avid runner. her life changed forever on august 23 when she says she got a seasonal flu shot at a local grocery store.

"i was training for a half marathon then," said jennings, crying. "it just all went so fast."

ten days after receiving the shot, she came down with the flu. after that, her health spiraled downwards. she started passing out and had to be hospitalized twice.

"we went to an urgent care place and they wouldn't even let her get out of my truck because she was seizing in the back so bad, so they called an ambulance immediately," says her husband, brendan jennings.

doctors at fairfax inova and johns hopkins diagnosed her with a rare neurological disorder called dystonia. they think it was caused by a severe reaction to the flu shot.

http://www.theautismnews.com/2009/10/15/jenny-mccarthy-jim-carrey-reach-out-to-desiree-jennings/ great must see video

our six year old daughter was diagnosed with a mild form of dystonia but it took almost 2 years and 2 pediatric neurologists to get the correct diagnosis. her symptoms began shortly after receiving her 6 month vaccinations but at that age it was so difficult to figure out what was going on with her. she was initially misdiagnosed with seizures and when we questioned the link to her vaccinations our concerns were brushed aside. finally, a pediatric neurologist that had recently come from johns hopkins kennedy krieger institute to our area was able to make the diagnosis of dystonia.

vaccinations are very safe for most people and we've had both of our children fully immunized but people also need to remember that there are some serious side effects as well. personally, that is one of the reasons why i and my family will not be getting the swine flu vaccination. we've all been taking vitamin d supplements-read the literature on all the new studies coming out about vitamin d and immune support and how doctors are using it and vitc to actually treat their patients that come down with the swine flu.

Lacie, the source you cite makes nutritional supplements, i.e. vitamins. That's like linking to Merck for unbiased evidence about Vioxx.

Specializes in jack of all trades.

Just happen to be the link I had readily available. There is significant research currently going on in medical facilities involving this same information. I was only providing something to consider jeez. If you would like to check out actually medical archives I'm sure they can be found.

http://www.scientificamerican.com/blog/60-second-science/post.cfm?id=vitamin-d-deficiency-linked-to-more-2009-02-23

http://insciences.org/article.php?article_id=2668

Scientific American isnt selling supplements so maybe they would be worth considering a read along with the universities listed in the second article. Many conditions are finding Vit D can help in either treatment or prevention. Use in renal patients has also gradually brought this to light that it can be effective in other conditions. I was only suggestiong that alternatives can be considered as the orginal poster has suggested. I think our society is too quick to look to the pharmaceutical companies for solutions rather than some of the natural things that can be directly linked to nutritional and other non-pharmaceutical means. I didnt expect to be attacked for one link. Thank you.

You weren't attacked, your source was questioned. There is a huge difference.

Specializes in Telemetry, Ortho, Resp, Float Pool.

Thanks Laci for the links and the info. As you and I have both mentioned, there are articles being written every day about major research that is going on about Vit D. I only really got seriously interested in it because my husband has asthma and allergies and absolutely did not want the flu shot or the swine flu shot this year so he started looking into ways to boost his immune system to protect himself. He began researching Vitamin D and so did I. We actually have been taking supplements for over 2 months now and just got our blood work results back from getting our levels checked.

Everyone seems to want to pick apart everything that is written here as when I mentioned earlier about handwashing and taking vitamin supplements as a defense-someone then when on to post how the flu is spread. I think that as professional nurses we all know the transmission route of the flu and it is more than a little insulting and demeaning to be treated as though I don't that. I work respiratory in the hospital and deal with patients in respiratory isolation so I understand the concept of droplet precaution and transmission. Why is everyone so critical of someone else that has a "different" opinion or viewpoint on this website? That's why I have only ever posted a few times. I am all for having open discourse and disagreement but people seem so negative and critical-not 'questioning'. There is a big difference.

That same person then went on to insinuate that I'm trying to keep health care providers from getting vaccinated by using "anecdotal evidence of unproven preventive measures..."Wow! That's an insult to anyone reading these posts that you don't have the intellect to do your own research and use your own nursing judgment(I've seen enough of that so far from my one and only thread) to come to your own conclusions about whether or not to get the flu vaccine. I don't believe I told anyone not to get the flu shot.

At the risk of being ripped apart yet again, I've posted 3 links as well for anyone that wants to check them out but there is so much more out there......

"Vitamin D for Treatment and Prevention of Infectious Diseases: A Systematic Review of Randomized Controlled Trials" http://www.medscape.com/viewarticle/707434 (free registration required. Karen)

http://www.vitamindcouncil.org/newsletter/h1n1-flu-and-vitamin-d.shtml

http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=529704

Specializes in OB, HH, ADMIN, IC, ED, QI.

whenever i see a link added to a statement of (possible) fact, i consider its source. if the organisation that promotes the concept indicated, will gain financially from making it look good, i discount the whole thing!!

the "research" to which the linked article describes, cites no numbers of people involved, dosage used/recommended, or other credible information, no verifiable identifiers, and it was stated therein, that it has been ongoing for over a year (according to the newsletter of an american nutrition business); and the agency is not one listed in canadian telephone books (i called friends in most big cities there, to check), or associated with the department of public health in any province, said one classmate of mine, in public health there.

please avoid sharing misleading/questionable resources. it muddies the field. :icon_roll getting angry, feeling torn apart and making vindictive comments just makes it worse. let's keep this discussion on an even keel.

Specializes in being a Credible Source.
read the literature on all the new studies coming out about Vitamin D and immune support and how doctors are using it and VitC to actually treat their patients that come down with the swine flu.
I'd love to. Could you provide the references?
Specializes in being a Credible Source.

The medscape link says "page not found" and the Cambridge link doesn't even provide an abstract.

Please, if this is for real, can you provide some real info. I'm not being sarcastic, I'm being earnest.

Specializes in Telemetry, Ortho, Resp, Float Pool.

here is the caimbridge link(with abstract included). if you click on the link it takes you directly there.

review article

[color=#336699]epidemic influenza and vitamin d

j. j. cannell a1c1, r. vieth a2, j. c. umhau a3, m. f. holick a4, w. b. grant a5, s. madronich a6, c. f. garland a7 and e. giovannucci a8

a1 atascadero state hospital, 10333 el camino real, atascadero, ca, usa

a2 mount sinai hospital, pathology and laboratory medicine, department of medicine, toronto, ontario, canada

a3 laboratory of clinical and translational studies, national institute on alcohol abuse and alcoholism, national institutes of health, bethesda, md

a4 departments of medicine and physiology, boston university school of medicine, boston, ma, usa

a5 sunarc, san francisco, ca, usa

a6 atmospheric chemistry division, national center for atmospheric research, boulder, co, usa

a7 department of family and preventive medicine, university of california san diego, la jolla, ca, usa

a8 departments of nutrition and epidemiology, harvard school of public health, boston, ma, usa

abstract

in 1981, r. edgar hope-simpson proposed that a 'seasonal stimulus' intimately associated with solar radiation explained the remarkable seasonality of epidemic influenza. solar radiation triggers robust seasonal vitamin d production in the skin; vitamin d deficiency is common in the winter, and activated vitamin d, 1,25(oh)2d, a steroid hormone, has profound effects on human immunity. 1,25(oh)2d acts as an immune system modulator, preventing excessive expression of inflammatory cytokines and increasing the 'oxidative burst' potential of macrophages. perhaps most importantly, it dramatically stimulates the expression of potent anti-microbial peptides, which exist in neutrophils, monocytes, natural killer cells, and in epithelial cells lining the respiratory tract where they play a major role in protecting the lung from infection. volunteers inoculated with live attenuated influenza virus are more likely to develop fever and serological evidence of an immune response in the winter. vitamin d deficiency predisposes children to respiratory infections. ultraviolet radiation (either from artificial sources or from sunlight) reduces the incidence of viral respiratory infections, as does cod liver oil (which contains vitamin d). an interventional study showed that vitamin d reduces the incidence of respiratory infections in children. we conclude that vitamin d, or lack of it, may be hope-simpson's 'seasonal stimulus'.

(accepted august 5 2006)

(published online september 7 2006)

as for the medscape one you have to login to access the article so here it is - this is the abstract and intro.

vitamin d for treatment and prevention of infectious diseases: a systematic review of randomized controlled trials

alexandra v. yamshchikov, md; nirali s. desai, md; henry m. blumberg, md; thomas r. ziegler, md; vin tangpricha, md, phd, face

authors and disclosures

published: 08/31/2009

abstract

objective: to review the existing human controlled intervention studies of vitamin d as adjunctive therapy in settings of infection and provide recommendations for design and implementation of future studies in this field on the basis of the evidence reviewed.

methods: we conducted a systematic review of randomized controlled clinical trials that studied vitamin d for treatment or prevention of infectious diseases in humans. studies from 1948 through 2009 were identified through search terms in pubmed and ovid medline.

results: thirteen published controlled trials were identified by our search criteria. ten trials were placebo controlled, and 9 of the 10 were conducted in a rigorous double-blind design. the selected clinical trials demonstrated substantial heterogeneity in baseline patient demographics, sample size, and vitamin d intervention strategies. serious adverse events attributable to vitamin d supplementation were rare across all studies. on the basis of studies reviewed to date, the strongest evidence supports further research into adjunctive vitamin d therapy for tuberculosis, influenza, and viral upper respiratory tract illnesses. in the selected studies, certain aspects of study design are highlighted to help guide future clinical research in the field.

conclusion: more rigorously designed clinical trials are needed for further evaluation of the relationship between vitamin d status and the immune response to infection as well as for delineation of necessary changes in clinical practice and medical care of patients with vitamin d deficiency in infectious disease settings.

introduction

the link between vitamin d deficiency and susceptibility to infection has been suggested for longer than a century, with the early observation that children with nutritional rickets were more likely to experience infections of the respiratory system, leading to the coining of the phrase "rachitic lung".[1] the isolation of vitamin d3 from cod liver oil, which was used to treat tuberculosis (tb) in the 1930s, led to its widespread use in tb treatment and prevention, until the introduction of antiinfective chemotherapy in the 1950s.[2] more recently, epidemiologic studies have demonstrated strong associations between seasonal variations in vitamin d levels and the incidence of various infectious diseases, including septic shock,[3] respiratory infection,[4] and influenza.[4,5]

our understanding of vitamin d metabolism and its extraskeletal functions has improved considerably during the past 3 decades. the discovery that vitamin d receptor (vdr) and 1α-hydroxylase, the enzyme necessary for conversion of vitamin d into its active form, are present in cells of the immune system, including circulating mononuclear cells,[6,7] has revolutionized the field of vitamin d immunology. moreover, the discovery of nonskeletal functions of vitamin d has reinvigorated interest in vitamin d as a potential modulator in a variety of disease states.[8-10] recent studies have demonstrated that vitamin d regulates the expression of specific endogenous antimicrobial peptides in immune cells[11]; this action leads to a potential role for vitamin d in modulating the immune response to various infectious diseases.

these findings highlight the need to refine our understanding of the nonskeletal functions of vitamin d through future controlled studies of vitamin d supplementation and clinical outcomes in specific disease states. in this report, we focus on reviewing the existing human controlled intervention studies of vitamin d as adjunctive therapy in settings of infection and provide recommendations for design and implementation of future studies in this field.

Specializes in Telemetry, Ortho, Resp, Float Pool.

Just one more follow up... This is a catch all follow up on a couple of different things. First, the VAERS report-there are 63 cases of dystonia reported from vaccinations, 30 of which are documented from the vaccinations my daughter received at her 6 month check up. This is broad spectrum and covers not only flu but also childhood immunizations. The previous poster jumped on the flu shot and missed my point about the safety of the additives that the drug companies are using. It wasn't about the flu shot for me because that's not what my daughter got when she was 6 months old.

Second, to the poster that wanted references about physicians using vits d and c to treat their patients. I had initially listed a bunch of article references but here's a personal anecdote(uh-oh, is that allowed here?:) A friend of my husband who lives in TX got the swine flu and he and his family were treated with high doses of vitamin D and vitamin C. He reported that they were all significantly better within 1-2 days of starting the treatment.

My husband and I started taking supplements of Vit D over 2 1/2 months ago-he's taking 5,000 iu/day and I'm taking 4,000 iu/day(I was being just a bit more precautionary than him) and we just got our blood work back. My level is only at 42 and his is at 47 which is within the normal range but optimal level is considered 50-80 according to vitd council.org(there is debate about what is optimal so don't write me about that ok?)

Specializes in Vents, Telemetry, Home Care, Home infusion.

Fixed medscape link..

Just one more follow up... This is a catch all follow up on a couple of different things. First, the VAERS report-there are 63 cases of dystonia reported from vaccinations, 30 of which are documented from the vaccinations my daughter received at her 6 month check up. This is broad spectrum and covers not only flu but also childhood immunizations. The previous poster jumped on the flu shot and missed my point about the safety of the additives that the drug companies are using. It wasn't about the flu shot for me because that's not what my daughter got when she was 6 months old.

Second, to the poster that wanted references about physicians using vits d and c to treat their patients. I had initially listed a bunch of article references but here's a personal anecdote(uh-oh, is that allowed here?:) A friend of my husband who lives in TX got the swine flu and he and his family were treated with high doses of vitamin D and vitamin C. He reported that they were all significantly better within 1-2 days of starting the treatment.

My husband and I started taking supplements of Vit D over 2 1/2 months ago-he's taking 5,000 iu/day and I'm taking 4,000 iu/day(I was being just a bit more precautionary than him) and we just got our blood work back. My level is only at 42 and his is at 47 which is within the normal range but optimal level is considered 50-80 according to vitd council.org(there is debate about what is optimal so don't write me about that ok?)

Anecdotes are always fun to hear and why wouldn't they be "allowed?" They're not evidence of course, but they're fun.

I'd love some link to studies if you have them. :)

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