Congential Nephrotic Syndrome Finnish Type

  1. My best friend's 7 week old baby was just diagnosed with Congential Nephrotic Syndrome of the finnish type. i have found very little info on this. All that she has been told is that he has approx. a year until he will be in complete failure and will then need a transplant. I was wondering if anyone had any info on this or could lead me in the right direction. Your help would be greatly appreciated. Carolyn