A Point of View From a Dialysis Patient - page 4

I have to admit, I have found some of these posts to be interesting. I hear alot of complaining about patients. I have to ask, is this a health care facility or a jail??? Having worked as a police... Read More

  1. Visit  NDXUFan profile page
    0
    Professor of Nephrology John Agar and Director of
    Department of Renal Medicine, The Geelong Hospital- Australia
    Australia:

    "Thirst is a powerful, primitive, primal survival mechanism

    Thirst simply cannot be resisted - no matter how much the patient tries.

    The inevitable result ...?

    Another 4 kg (4 litres) is gained and ... it all starts over again."

    http://www.nocturnaldialysis.org/about_us.htm
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  3. Visit  traumaRUs profile page
    0
    Where I live (IL) most of my 250 pts are ambulatory, our state is broke as is our Medicaid system, some take taxis (the ones that live in the city), there is an equally broken wheelchair van system that brings a few more. The vast majority of my pts are people that drive themselves and/or their families bring them.

    The rural clinics have NO transportation available: the families/pts themselves drive.
  4. Visit  NDXUFan profile page
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    I am not bitter, many on dialysis are unable to verbalize their feelings. I challenge you to show me where I am wrong.
  5. Visit  NDXUFan profile page
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    First, of all, BIG BOY, I do not have any mental health issues. Second, I have not sued any medical providers. Third, the truth does hurt, does it not? The problem has been and will be that not enough dialysis is being given for these folks to have a productive life, is that their fault?
  6. Visit  traumaRUs profile page
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    NDXUfan - can you clarify who you are addressing? I certainly wasn't insinuating that you had "mental health issues."
  7. Visit  pjpond profile page
    1
    I am a dialysis nurse and absolutely agree with your post. We (as dialysis nurses) are in the setting to help, not control. One can not stop living just due to a disease process. I thank you for writing this if it even makes one staff member stop and think.
    NDXUFan likes this.
  8. Visit  Pangtidor profile page
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    I have worked in 3 different settings of healthcare system on dialysis. My first dialysis experience was in the developing country with a poor healthcare system, the service will be provided when the patients have bought or paid the equipments or the meds only. We had to reuse the kidneys, the patients try to be as strict as they could so they could come twice weekly for dialysis. Terrible situation, we tried to get help from the insured patients to get some equipments for the uninsured. After a year, I worked in a middle east country, an oil filthy rich country, where all the healthcare is free. They don't have to pay for anything at all. The patients are incompliant at all, thinking that anything they eat/drink will be removed by dialysis. Most of the doctors and nurses are non citizens, the system overweight the patients' demand. They had to open a big 24 hours dialysis center, to meet the need of daily dialysis incompliant patient, all around the clock. Patients drink and eat during the treatment. Yes, they do in there. The dialysis treatment room looks like a real tea/coffee parties. They bring their own maids to assist with the food and drink. Each room has their own ice maker machines, they eat as much ice they could during dialysis. The new nurses who don't know the no restriction rules end up yelled, spit, cursed by the patients when they tried to enforce the diet and fluid restriction. Really low survival years on dialysis for 'the tea/coffee party members.'I am now working in acute setting of dialysis in US healthcare system where I see the non compliance patients/the frequent fliers. With Creatinine 15.5 and Potassium 9.2 (yes, still alive and alert enough to fight for the soda) and 10kg higher than the dry weight, do you expect the nurse will let you eat/drink whatever you want? IT IS OUR RESPONSIBILITIES to help you understand the restrictions you have to follow to prolong your life. Whenever you come in with the bigger labs and scale, we will assume you don't follow the rules and you will have to hear the annoying restrictions on your diet and fluid over and over again. Many home dialysis patients in my area end up intubated in ER/ICU within a year. When they survive, we find ridiculous reasons how they came to the ER: I stop my machine because it makes loud noise, I tried to remove more fluid because I ate alot, my husband is gone for deer hunting. At least you have options in here to stay alive, other dialysis patients in other part of the world has to struggle for their payments on each treatment. If you don't want to hear your nurse nagging about your diet, tell you don't want to hear anymore health teaching you have already known, the nurse will write it on her chart. The nurse who don't even try to remind you about your renal dialysis diet when your lab and weight are high are not capable to be the dialysis nurse at all. At the end, it is all about your choice how you want to live your life.
  9. Visit  NDXUFan profile page
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    Provide Nocturnal dialysis and it will not be a issue.
  10. Visit  NDXUFan profile page
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    I drink alot and I have been on dialysis for 6 years and I have never been in the hospital for a dialysis related issue.
  11. Visit  madwife2002 profile page
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    I think that you have been lucky so far not to be admitted to the hospital.

    Do you still urinate?

    How many kgs are you over pre treatment?
  12. Visit  NDXUFan profile page
    0
    I am on Nocturnal 6 days per week, 8 hours per treatment. Yes, if you are curious, I still use the bathroom. I am over maybe .5 or 4 kgs per treatment. I take off .55 per hour, which is not very much. Other than my kidneys, I do not have any issues, no heart or liver issues. I have to take potassium and calcium supplements, had to take them even when I was In-Center. As a rule, the only time, where I drink a fair amount of fluid is drainage in my throat, I have had asthma and allergies for 30 years, since I was in high school. Once, I had to take Accutane for Level III Acne, that drug creates horrible thirst, I was using the dialysis machine 7 days per week. Accutane also really dries out the skin, it is awful, avoid it if you can. Believe it or not, many days, I do not drink anything, some days alot. I am ordered by my Indiana University Nephrologist to have at least one serving of potassium per day, and more, if possible. If you are curious, my last potassium score was 3.0 with eating at least 2 servings of potassium(oranges) per day, and low sugar orange juice. They have run all kinds of tests on me and every time, "Strike three swinging, the ballgame is over!!!!" I also have a very strong immune system, was able to get rid of the current flu in 24 hours.


    I am not in favor of every other day treatments, do not like them, have never liked them. I love my Nocturnal treatments The only way I would go to short daily treatments is sickness or needing to get enough sleep to assist my immune system to beat down flu, fever, or pneumonia. I also survived Acute pneumonia. If you saw me on the street, you would be clueless that I am on dialysis, and when I first went to IU, they were blown away, also. Not every dialysis patient is a stereotype. I hope that tells you more about me. My last cholesterol was 50
  13. Visit  NDXUFan profile page
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    I love to run my machine, I would run 7 days per week, if IU would let me get away with it. With dialysis at 8 hours per treatment, 6 days per week, why do you need restrictions???? The IU Nephrologist and IU Nursing staff would agree with me. The average IU RN has 20-30 years of experience and they are outstanding, the best. One IU RN of 30 years experience said, "NDXUFan, you are going to be around forever, just to hassle me!!!!"
  14. Visit  NDXUFan profile page
    0
    I would write more, but, I need to get on my machine.


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