Ablation and my daughter

  1. I am a little nervous, so if I ramble, please bear with me.

    My youngest daughter had her routine GYN check up and the physician heard an irregularity. She told him she had palpitaitons and was fatigued. More so since the birth of her son 15 months before.

    So after seeing a cardiologist, having echo, holter, etc., now has seen an electrical cardiac specialist.

    Having MUCH irregularity. He cannot rule out WPW at this time. Gave her informed consent regarding treatments. She will have the ablation on Aug. 18. He has one other person as young as she....age 25.

    I am a little taken back for she never mentioned anything to me. I am just her mother, I know. If she has left sided heart involvement, he will have to abandon the procedure and that is what really concerns me.

    I guess I just needed to share this with someone.

    Siri, concerned mom
    •  
  2. 15 Comments

  3. by   jnette
    Hi Siri...

    Sorry to hear about your dd's condition, and I know you're concerned.

    I had an ablation just a few mos. ago, and it was a breeze. There is a LOT of info on the web, just do a google search and type in "cardiac ablation".

    I was having a lot of SVTs which were interfering with work, so I opted for that as opposed to meds.

    They assess the heart rythms and can immediately see what's going on where, and fix it right then and there.

    As you say, SHOULD there be any left sided involvement, they will abort the procedure, but hopefully it is something more benign, such as an extra electrical pathway that's being triggered, causing the irregularities and palpitations.

    Wish her the best, and keep us posted on her outcome ! (((HUGS)))
  4. by   sirI
    I appreciate the ones who have viewed this thread. Please pray for her as she prepares for more testing. Thanks.
  5. by   Poohsdw
    Quote from siri
    I am a little nervous, so if I ramble, please bear with me.

    My youngest daughter had her routine GYN check up and the physician heard an irregularity. She told him she had palpitaitons and was fatigued. More so since the birth of her son 15 months before.

    So after seeing a cardiologist, having echo, holter, etc., now has seen an electrical cardiac specialist.

    Having MUCH irregularity. He cannot rule out WPW at this time. Gave her informed consent regarding treatments. She will have the ablation on Aug. 18. He has one other person as young as she....age 25.

    I am a little taken back for she never mentioned anything to me. I am just her mother, I know. If she has left sided heart involvement, he will have to abandon the procedure and that is what really concerns me.

    I guess I just needed to share this with someone.

    Siri, concerned mom
    What is WPW? Sorry...not a nurse yet. I had atriel tach when I was 13...my heart rate while resting was over two hundred beats per minute. I was very sick all the time. I tried meds and they didn't work. So I had an ablation and the first time it didn't work. So, I had to have a second one...only this time they made a mistake and burnt my natural pacemaker. I went 7 years without know...I was just feel bad all the time. I went to the ER one night for chest pain and they found out what was going on. My heart rate was dropping to less than 30 beats per minute. I was admitted and a pacemaker was implanted the next day...I was 20 years old. I don't know if this is the same thing that your daughter has or not!? I am not trying to scare you I just wanted you to know what happened to me and also know that it is a risk. I don't think anyone told my parents about that risk and they certianly didn't mention their mistake afterward. :angryfire All I am saying to you is make sure your daughter knows all the risks. Every surgery has the! I am 26 and just had my second pacemaker implanted on May 27th. Like I said I don't know if this is the same thing or if it has anything to do with what your daughter is facing but I thought I would tell you my story.

    Steph
  6. by   sirI
    Quote from Poohsdw
    What is WPW? Sorry...not a nurse yet. I had atriel tach when I was 13...my heart rate while resting was over two hundred beats per minute. I was very sick all the time. I tried meds and they didn't work. So I had an ablation and the first time it didn't work. So, I had to have a second one...only this time they made a mistake and burnt my natural pacemaker. I went 7 years without know...I was just feel bad all the time. I went to the ER one night for chest pain and they found out what was going on. My heart rate was dropping to less than 30 beats per minute. I was admitted and a pacemaker was implanted the next day...I was 20 years old. I don't know if this is the same thing that your daughter has or not!? I am not trying to scare you I just wanted you to know what happened to me and also know that it is a risk. I don't think anyone told my parents about that risk and they certianly didn't mention their mistake afterward. :angryfire All I am saying to you is make sure your daughter knows all the risks. Every surgery has the! I am 26 and just had my second pacemaker implanted on May 27th. Like I said I don't know if this is the same thing or if it has anything to do with what your daughter is facing but I thought I would tell you my story.

    Steph

    So sorry for all your problems. Hope you are much better now. And thank you for your concern for my daughter.

    WPW=Wolff Parkinson White syndrome. Simply put this is an extra conduction pathway where the electrical signal arrives at the ventricles to soon. Many people, approximately 80%, have symptoms about ages 11-50. Treated with meds or RF (radiofrequency)/catheter ablation.
  7. by   hollyster
    My thoughts and prayers are with you and your daughter.
    My oldest daughter has had an ablation.
    She had three previous surgeries to correct a congenital coarctation of the aorta. She was fine then when she was 19 she was sitting at the kitchen table and said" I don't feel so great." She was white and diaphoretic. I lost count on her pulse at 180. When we got her to the ER she was tachy at 200. They abalated her and now she is fine. She too had been having runs and did not tell my husband and I because she did not want anything to be wrong and she was afraid we would not let her drive.
  8. by   sirI
    Quote from hollyster
    My thoughts and prayers are with you and your daughter.
    My oldest daughter has had an ablation.
    She had three previous surgeries to correct a congenital coarctation of the aorta. She was fine then when she was 19 she was sitting at the kitchen table and said" I don't feel so great." She was white and diaphoretic. I lost count on her pulse at 180. When we got her to the ER she was tachy at 200. They abalated her and now she is fine. She too had been having runs and did not tell my husband and I because she did not want anything to be wrong and she was afraid we would not let her drive.
    \

    Thank you so much, hollyster. Our children can make us want to pull out our hair, yes?

    Kat, my daughter, cannot even remember when this first started. She has been having these episodes and just really feeling lousy. The physician said, and this concerns me, the irregularities are most irregular. He is really not convinced that she does not have a left sided heart involvement, too. For some reason, I am uncomfortable with that. This has just happened within the last 12 months, too. Don't you think this is uncommon? Maybe I am too close.

    Thank you for your concern and I will keep you posted.

    Siri
  9. by   hollyster
    Quote from siri
    \

    Thank you so much, hollyster. Our children can make us want to pull out our hair, yes?

    Kat, my daughter, cannot even remember when this first started. She has been having these episodes and just really feeling lousy. The physician said, and this concerns me, the irregularities are most irregular. He is really not convinced that she does not have a left sided heart involvement, too. For some reason, I am uncomfortable with that. This has just happened within the last 12 months, too. Don't you think this is uncommon? Maybe I am too close.

    Thank you for your concern and I will keep you posted.

    Siri
    I thought it was uncommon in younger people too until it happened to my daughter.
    On the way to the hsp I called a cardiothoracic surgeon and an interventional cardiologist I worked with. They were in the ER before we were. While Shannon was being x-rayed they told me that these are the kids the drop dead playing football, basketball etc. They(the kids) never say anything about
    or have ignored it until it becomes so severe they can't ignore it anymore.
    I would wait until the study is done, they really cannot tell what areas are involved until they get the studies. Have they scheduled an adenosine stress test or are they going to go straight to the abalation? It is rare that there is left heart involvement. My daughter has an enlarged left vent but that is due to her earlier problems.

    Yes, my daughter makes me want to pull my hair out and wear one of the pretty white coats that tie in the back.:chuckle
    Last edit by hollyster on Jul 23, '05
  10. by   sirI
    Quote from hollyster
    I thought it was uncommon in younger people too until it happened to my daughter.
    On the way to the hsp I called a cardiothoracic surgeon and an interventional cardiologist I worked with. They were in the ER before we were. While Shannon was being x-rayed they told me that these are the kids the drop dead playing football, basketball etc. They(the kids) never say anything about
    or have ignored it until it becomes so severe they can't ignore it.
    I would wait until the study is done, they really cannot tell what areas are involved until they get the studies. Have they scheduled an adenosine stress test or are they going to go straight to the abalation. It is rare that there is left heart involvement. My daughter has an enlarged left vent but that is due to her earlier problems.
    The tachys are usually node/pathway involvement
    I know about the sudden death rate in the young people. Scary that could be something that could have happened with her if she had not had a checkup. However, she was becoming more symptomatic and I think she would have told me and/or gone to the doc on her on.

    That is my concern, the difference in irregularities. She has ventricular as well as atrial. He is somewhat concerned about these findings.

    He is going straight to ablation.
  11. by   hollyster
    Quote from siri
    I know about the sudden death rate in the young people. Scary that could be something that could have happened with her if she had not had a checkup. However, she was becoming more symptomatic and I think she would have told me and/or gone to the doc on her on.

    That is my concern, the difference in irregularities. She has ventricular as well as atrial. He is somewhat concerned about these findings.

    He is going straight to ablation.
    The ventricular irregularities are usually response mechanisms to the SVT. My daughter had SVT/RVR (supraventricular tachycardia with rapid ventricular response) once the SVT was broken she never had any ventricular arrythmias.
    I am glad that they are going directly to ablation.
  12. by   sirI
    Quote from hollyster
    The ventricular irregularities are usually response mechanisms to the SVT. My daughter had SVT/RVR (supraventricular tachycardia with rapid ventricular response) once the SVT was broken she never had any ventricular arrythmias.
    I am glad that they are going directly to ablation.
    You just do not know how much better you have made me feel. Thank you so much.

    Knowing about this and then NOT knowing has made me a little on edge, you know? Well, yes, you do. You lived it.

    Thank you so much. Thank you.

    Siri
  13. by   hollyster
    [QUOTE=siri]You just do not know how much better you have made me feel. Thank you so much.

    Knowing about this and then NOT knowing has made me a little on edge, you know? Well, yes, you do. You lived it.

    Thank you so much. Thank you.

    I am glad I could help. Contact me anytime.
    The not knowing will drive you over the edge.
    I will include a prayer for some peace of mind/heart and an Angel to stay with you as well.
    Take Care
    Holly
  14. by   carachel2
    The signs and symptoms you describe raise a red flag with me. I was diagnosed with a heart condition called "Peripartum Cardiomyopathy" soon after the birth of my daughter. PPCM is an enlargment of the left ventricle and reduced heart function (EF) that occurs in the last few months of pregnancy or in the first five months post-partum. Some women are VERY symptomatic and are in full blown congestive heart failure due to the decreased ejection fraction. Still others are mildly symptomatic and experience just fatigue and a little shortness of breath in the post-partum period. Because they are not extremely ill AND because PPCM often heals on it's own given enough time, these women are not diagnosed accurately.

    Even as a cardiac nurse who specialized in working with heart failure patients, I had never heard of this condition. Your daughters description of increased fatigue and symptoms after her delivery raise a red flag. Fortunately her Dr. has done an echocardiogram....what were the results of that test ?

    My ejection fraction was 25-30% and I was in mild congestive heart failure. It took about 6 months for my EF to come up completely, but fortunately I did experience a complete recovery. I did, however, experience recurring PSVT/AV nodal re-entry tachycardia and after receiving adenosine x 2 in an ambulance with my 3yr old daughter in my lap...I finally decided to have the EP study done and the resulting ablation. The procedure was not a big deal at all to me (keep in mind though that I've been a cardiac nurse for years, so in my twisted way I thought it was actually kind of interesting). My husband and I went to see a movie the next day and I was kept just overnight.

    So bottom line....ask the cardio what her EF is. Examine her symptoms in her last month of pregnancy. Any swelling ? Eclampsia ? You might look at our website for more information but do *not* let it freak you out. Survival rates for PPCM are WAY better than they were even 10 years ago thanks to the treatment with beta blockers and ACE inhibitors. Most of us are living wonderful productive mommy lives and loving every minute.

    www.amothersheart.com

close